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"I never imagined politics would get in the way of hope." - Christopher Reeve

Advocacy

Become an advocate. Be a hero.

Lend your voice and join the movement.
You can make a difference.

"I think a hero is an ordinary individual who finds
the strength to persevere and endure in spite of overwhelming obstacles. They are the real heroes, and so are the families and friends who stood by them."
-Christopher Reeve

 
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  • Spinal Cord Injury Resource Center
  • Reeve Foundation Advocacy
Continue Christopher Reeve's LegacyPhoto by Timothy Greenfield-Sanders
 

Protect the Rights of the Disability Community

Call your Senator to tell them to support the Disability Treaty and tell Majority Leader Reid to schedule a floor vote. TAKE ACTION!

Advocacy Alert Update

Lifetime Requirement to the Durable Medical Equipment Definition
The Reeve Foundation joined with the disability community in sending a letter to CMS encouraging the agency to reconsider its proposal to change the way durable medical equipment is defined because the proposed change could restrict access to specialized equipment for people living with spinal cord injury and paralysis. Download the letter (PDF) and view the list of sponsoring organizations.

Competitive Bidding under Medicare
The Reeve Foundation has joined a number of patient advocacy and consumer groups in support of bipartisan legislation that would repeal the Medicare Durable Medical Equipment Prosthetics, Orthotics, and Supplies (DMEPOS) competitive bidding program. Read the press release (PDF).

Read more about the Medicare DMEPOS Competitive Bidding Program.

Update: DMEPOS Competitive Bidding Program - Round 2 Delayed


Congressional Letters of Support

The Reeve Foundation joined nearly 3,000 national, state and local groups, associations and foundations in a letter to Congress urging members to support nondefense discretionary funding. The letter emphasizes the devastating impact of an 8.4 percent cut to nondiscretionary programs via sequestration. This action would affect the NIH, CDC, FDA and the National Science Foundation, among countless other programs. Sequestration could have a potentially distressing effect on the disability community -- reducing critical funding for paralysis research and critical support and resource programs.
View the letter (PDF).

To make Congress aware of certain issues, the Reeve Foundation will join with other organizations in signing and circulating letters of support to explain critical issues. Below is the current issues the Foundation is engaged in.
Find out more.

Toolkit

Advocacy

We offer some basic guidance on how to effectively use letter writing, phone calls, emails, faxes, face-to-face meetings and social media to develop strong relationships and influence your senators or representatives. Download the entire toolkit (PDF) or use the links below.

Stay informed

Join the Community

Discuss the issues in our community.

Share Your Story

If you have been negatively impacted by the Medicare Competitive Bidding Program, we encourage you to share your story. With your help, we can work together to ensure that people living with spinal cord injuries and paralysis have access to the quality care and equipment they deserve.
Share your story.

Why Advocate?

You don't need to be a scientist, economist, or paid professional lobbyist to be an effective advocate.
Find out why you should get involved.

Advocacy Priorities

Advocacy Priorities

The Reeve Foundation's advocacy priorities are focused around these core set of issues:

The Watch List

  • Outpatient Therapy Caps
    If Congress does not act before December 31st, outpatient therapy caps under Medicare will be enforced. These caps would impact access to medically necessary therapy services for individuals living with spinal cord injury and paralysis.
  • Medicare DMEPOS Competitive Bidding Program
    The competitive bidding program under Medicare will result in fewer suppliers for individuals living with spinal cord injury and paralysis to choose from for both purchase and repair of power wheelchairs and other durable medical equipment.
  • Home and Community Based Services
    Health reform included several provisions that will make it easier for people living with spinal cord injury and paralysis to receive services at home, rather than being forced to receive needed services in an institutional setting.
  • Essential Benefits under Health Reform
    Under health reform, most insurance plans are required to cover a set of "essential benefits" - including services and devices that are important for people living with spinal cord injury and paralysis.
  • Medicare Two-Year Waiting Period
    Under current law, people living with disabilities must first receive Social Security Disability Insurance (SSDI) for 24 months before they are eligible for Medicare benefits.