The mission of the Christopher & Dana Reeve Foundation is to cure spinal cord injury by funding innovative research, and to improve the quality of life for people living with paralysis through grants, information and advocacy. The Foundation's advocacy priorities are focused around a core set of issues connected to this mission.
A second research initiative supported by the Foundation is the North American Clinical Trials Network (NACTN), a network of nine clinical centers and a data management and pharmacological center dedicated to bringing therapies out of the laboratory and into clinical trials. Supported by the Department of Defense, NACTN is the only established standing network for clinical trials for spinal cord injury in North America. NACTN has established a spinal cord injury database which is being used to establish trajectories of recovery for defined injuries and to develop models to predict outcomes of recovery. NACTN has also organized a Neurological Outcome Assessment initiative (NOA), an international task force of scientists and clinicians to develop, test, and validate new, more sensitive outcome measures to detect improvements for use in clinical trials. With continued Federal support, NACTN will be able to expand its civilian and military sites and conduct more clinical trials.
Providing Critical Information and Support to the Community
With additional federal support, the Foundation is planning to connect its new Peer Certification program to the PRC and QOL Grants program to provide more effective support. The Foundation will also conduct outreach to military communities to leverage the PRC services throughout the military/veteran communities. In addition, the implementation of an ongoing national survey of people living with paralysis will identify both problems and solutions to overcoming all aspects of secondary conditions in the lives of the paralyzed. This information will be translated into PRC information services and guide the QOL Grants program.
Ensuring Access to Health Care Services
Download the Reeve Foundation Advoacy Toolkit (PDF)
- Introduction to Advocacy
- Get Involved - Stay Informed!
- Advocacy Priorities
- Outpatient Therapy Caps
- Coalitions we belong to
Find out more about:
- NeuroRecovery Network (NRN)
- North American Clinical Trials Network (NACTN)
- Paralysis Resource Center
- Health Care Reform
Read about our advocates:
- Elle Rausin
- Taylor Price
- Kris Gulden
- Melissa Pitts
- Eva and Joseph Briseno