Get Involved -- Stay Informed!
To be an effective advocate, you must be informed. Although many resources exist to help connect advocates with the latest SCI and paralysis news and developments, one of the easiest ways to stay current is by registering for online newsletters. If you are unsure where to start, we encourage you to begin by subscribing to the Reeve Foundation eNewsletters. These eNewsletters will not only provide timely information on the issues facing people living with SCI and paralysis, but will also help advocates learn more about the Foundation and its upcoming events.
Community Advocacy -- Approaches and Opportunities
A good way to increase your effectiveness as an advocate is by getting others to help share your message. There are many ways to do this, including the use of online networks, message boards and community forums dedicated to spinal cord injury and paralysis. Many of these message boards and online communities already exist -- including the SCI and Paralysis Community created by the Reeve Foundation. If you haven't already, we encourage you to join the Foundation's SCI and Paralysis Community to meet other advocates, to share your story, and to discuss issues related to SCI and paralysis. Many successful call-ins and community events have been organized by one or two people using this method of communication. If you meet someone who shares your position on a particular issue, work together to form a coalition to take action!
In addition to networking with people who share your position on SCI and Paralysis issues, it is important for advocates to reach out beyond the paralysis community. An easy way to do this is by using social media tools to connect your existing network of friends, family, neighbors and community members to your issue.
The Reeve Foundation has a presence on many of the social media networks that you may already use. These include Facebook, Twitter and YouTube. If you already have one of these accounts, we encourage you to join us today by following the links provided below. If you do not currently use these tools, we encourage you to visit the sites below to learn how easy it is to participate.
Facebook: Facebook is a social networking website that can be used to connect friends, family and business associates. Check out and "like" the Reeve Foundation Facebook pages below:
Twitter: Twitter is a tool that can be used to share information and links to stories in 140 characters or less. These short posts can then be shared with other friends who also have twitter accounts. To follow the Foundation on Twitter, please visit any of the links below.
YouTube: YouTube is a video-sharing website on which users can upload, share, and view videos. You can use the link below to view some of the videos posted by the Foundation and its supporters.
Other Ways to Get Involved:
Download the Reeve Foundation Advoacy Toolkit (PDF)
- Introduction to Advocacy
- Get Involved - Stay Informed!
- Advocacy Priorities
- Coalitions we belong to
Find out more about:
- NeuroRecovery Network (NRN)
- North American Clinical Trials Network (NACTN)
- Paralysis Resource Center
- Health Care Reform
Read about our advocates:
- Elle Rausin
- Taylor Price
- Kris Gulden
- Melissa Pitts
- Eva and Joseph Briseno