Mất điều hòa Friedreich / Friedreich's Ataxia
Friedreich’s Ataxia Research Alliance (FARA)Features information on Friedreich’s Ataxia and related ataxias, research and support.
Friedreich’s Ataxia Parents GroupAn online support organization for parents of children with FA. The group helps to limit the isolation many feel while raising children with degenerative diseases. This website provide a forum for parents to share experiences.
Muscular Dystrophy AssociationA primary source for news and information about neuromuscular diseases, including ataxias, MDA research and services for adults and children with neuromuscular diseases and their families. The site features a searchable database of our 230 MDA clinics and numerous publications.
National Ataxia Foundation (NAF)NAF supports research into hereditary ataxia, a group of neurological disorders which are chronic and progressive conditions affecting coordination. NAF has more than 45 affiliated chapters and support groups throughout the U.S. and Canada. The foundation strives to improve diagnosis and develop treatment models, locating families affected by ataxia or at risk for ataxia in order to offer information and education, and identify needs and services for referral.
Library Books and VideosFind resources within the PRC library catalog.
Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.