What are the secondary issues related to SCI that might impact my health?
AAHD NewsletterThe American Association on Health and Disability published this Spring 2004 article, "Preventing Pressure Sores," in their Health and Disability Newsletter.
AHRQ's National Guidelines ClearinghousePresents their guidelines, Acute Management of Autonomic Dysreflexia: Individuals with Spinal Cord Injury to Health-Care Facilities.
American Chronic Pain Association (ACPA)The American Chronic Pain Association (ACPA) facilitates peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain
CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.
CareCure’s Capsaicin and Resiniferatoxin Therapy of Bladder SpasticityRecent clinical trials indicate that instillation of capsaicin (the essence of pepper) or resiniferatoxin (RTX, from a cactus like plant) into the bladder can reduce bladder spasticity for weeks.
Clinical Practice GuidelinesRecommendations for assessment, education and management of the neurogenic bowel.
CareCure’s Suprapubic Cystostomy vs. Urethral CatheterizationWise Young, Ph.D., M.D.; W. M. Keck Center for Collaborative Neuroscience;Rutgers University, Piscataway, New Jersey reviews several studies comparing urethral and suprapubic catheterization in people with spinal cord injury. These studies indicate that suprapubic catheterization is superior to both chronic indwelling and intermittent urethral catheterization for reducing bladder infections and kidney damage.
Craig HospitalProvides an emergency fire plan and checklist.
CareCure’s Cranberry Therapy of Urinary Tract InfectionsDo cranberry juice or concentrates prevent urinary tract infections? This article reviews clinical trials and mechanisms of cranberry effects on bladder infections.
CareCure CommunityCareCure Community’s web site offers numerous bulletin boards on SCI care and cure, as well as on travel, sex and other topics. A lively community.
Chronic Pain Support ForumThe Chronic Pain Support Forum is a support site for all those with chronic pain. It features a message board and chat room covering chronic pain, concerns, feelings, and conditions
EmedicinePosts an article entitled: Autonomic Dysreflexia in Spinal Cord Injury.
decubitus.orgNational Decubitus Foundation
emedicine.comeMedicine: Decubitus Ulcers
findarticles.comGale Encyclopedia of Medicine: Bedsores
familydoctor.orgFamily Doctor.org's Pressure Sores
MedlinePlusMedlinePlus provides a large directory on Guillain-Barre Syndrome .
MedtronicMedtronic manufactures implantable pumps for delivery of drugs to control spasticity.
Jackson Health SystemOffers an online spinal cord injury discharge manual covering a variety of topics including Autonomic Dysreflexia.
MedlinePlusMedlinePlus: Pressure Sores
merck.comMerck Manual of Diagnosis and Therapy: Pressure Sores
KCIKinetic Concepts Inc. (KCI) offers a "Wound Management Reference Guide."
National Institute of Neurological Disorders and StrokeThe National Institute of Neurological Disorders and Stroke (NINDS) offers a GBS information page.
National Foundation for the Treatment of PainThe National Foundation for the Treatment of Pain is a not-for-profit organization providing support for people with intractable pain, their families, friends and the physicians who treat them
National Library of Medicine (NLM)Offers deep resources on numerous medical conditions.
National Institute of Neurological Disorders and StrokeNINDS offers fact sheets on all medical issues related to paralysis, including spasticity.
National Multiple Sclerosis SocietyNMSS offers information and resources on all medical issues related to MS including spasticity.
National Organization for Rare DisordersNORD lists numerous diseases that are accompanied by spasticity.
National Institute of Neurological Disorders and StrokeProvides research overviews for all diseases and conditions related to paralysis.
National Spinal Cord Injury AssociationProvides support groups and resources by state.
National Spinal Cord Injury AssociationProvides a fact sheet on starting a support group of your own.
National Institute of Neurological Disorders and StrokeThe National Institute of Neurological Disorders and Stroke (NINDS) offers information pages on Syringomyelia and Tethered cord.
North American Chronic Pain Association (NACPAC)The North American Chronic Pain Association (NACPAC) is a Canadian association of self-help groups dedicated to providing support to people in chronic pain
npuap.orgNPUAP stands for National Pressure Ulcer Advisory Panel. Visit their website to learn about some of the panel's latest research and recommendations.
Paralyzed Veterans of America (PVA)The Paralyzed Veterans of America, in support of The Consortium for Spinal Cord Medicine, offers authoritative clinical practice guidelines for autonomic dysreflexia. Download from the web; some fees required.
Spinal Cord Injury Information CenterThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.
Shoulder PainThis site, run by Craig Hospital, asks -- and answers -- all the important questions about shoulder pain. From the home page, click on Spinal Cord Injury, then Health and Wellness. See Educational Brochures.
Spinal Cord Injury Information CenterThe Spinal Cord Injury Information Center features information on chronic pain and all other medical aspects of SCI paralysis.
spinalcord.orgHere is the National Spinal Cord Injury Association's fact sheet on skin care.
spinalinjury.netSpinal Injury.net's Pressure Sores
Translational Pain ResearchOur overall goal is to relieve each person's pain experience, which we hope will ultimately improve quality of life.
travisroyfoundation.orgTravis Roy Foundation: Pressure Sores
University of Alabama at BirminghamOffers an information sheet (Info Sheet #11) on bladder care and management.
University of Washington School of Medicine: Bowel CareThe University of Washington School of Medicine/Department of Rehabilitation Medicine.
VAC TherapyVacuum Assisted Closure (VAC) Therapy: An Advanced System for Wound Healing.
We MovePosts news of clinical advances and therapeutic approaches to the management and treatment of 14 major movement disorders including spasticity.
Library Books and VideosFind resources within the PRC library catalog.
Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.