Can stem cell and spinal cord injury research help me?

(Note: Go here more details on stems cells and the Reeve Foundation's Stem Cell Initiative.)

We think about the usefulness of stem cells in two ways: the here and now and the future. In the here and now, stem cells are a powerful tool for scientists to use as they explore the underlying causes and mechanisms of injury and disease. Human embryonic stem cells can help reveal how organisms, including human beings, develop, which will in turn enable scientists to better understand how the body might repair itself after injury and disease. Stem cells can also be used to screen and test drugs.

In the future, innovative stem cell therapies will likely be developed to treat disorders such as spinal cord injury and diseases like diabetes, heart disease and Parkinson's.

There are potential risks for undergoing a treatment that has not been validated and approved by an appropriate national regulatory agency. An person who receives an unapproved treatment is unlikely to achieve a function benefit that can be clearly related to the treatment, while risking unknown and potential harm. Participation in a stem cell trial or any clinical trial may prevent you from being eligible for future trials.

Before participating in any clinical trial it is important to read the booklet: Experimental Treatments for Spinal Cord Injury: What You Should Know If You Are Considering Participation in a Clinical Trial. Download that booklet and read more about clinical trials.

The Alan T Brown Foundation to Cure ParalysisFormed to support research in spinal cord injury.

The Australian Spinal Research FoundationFunds research for treatments of spinal cord injuries.

The Amyotrophic Lateral Sclerosis Association (ALS)Funds numerous projects to develop treatments for ALS (Lou Gehrig's disease).

Clinical TrialsAn internet resource with current listings of all federally supported clinical trials in the U.S., sorted by disease or condition, location, treatment or sponsor. Developed by the National Library of Medicine.

Center WatchClinical trials listing of industry professionals, patients and info.

Dana FoundationA nonprofit organization that provides reliable, accessible information on brain and spinal cord research.

The Department of Veterans Affairs (VA)Funds research to develop therapies for many conditions related to paralysis, including traumatic injury and chronic disease.

The International Spinal Research TrustISRT is the only charity based in the United Kingdom dedicated to funding research to end the permanence of paralysis caused by spinal cord injury.

International Campaign for Cures of Spinal Cord Injury ParalysisA group of organizations around the world that together fund about $25 million a year in SCI research. The members include: the Miami Project to Cure Paralysis, Christopher Reeve Paralysis Foundation, Australasian and International Spinal Research Trusts, Paralyzed Veterans of America, Rick Hansen Institute and Kent Waldrep National Paralysis Foundation.

The Mike Utley FoundationProvides financial support of selected research, rehabilitation and education programs on spinal cord injuries.

Miami Project to Cure ParalysisA program affiliated with the University of Miami Medical School. The Project. Founded in 1985, has assembled a broad spectrum of researchers, clinicians and therapists whose full-time focus is spinal cord injury research.

Myelin ProjectFunds research for diseases related to loss of myelin (a fatty insulation on nerve fibers) including multiple Sclerosis and leukodystrophy.

The National Multiple Sclerosis Society (NMSS)Funds millions of dollars in research each year seeking therapies for MS. Site includes an overview of MS neuroscience, deep detail and progress reports.

The Paralysis Project of AmericaBased in Los Angeles, The Paralysis Project of America funds selected scientific and clinical studies that focus on spinal cord repair and regeneration.

The Rick Hansen Man in Motion FoundationCreated in Canada in 1988 to support spinal cord injury research, as well as wheelchair sport, injury prevention and rehabilitation programs.

SpinalCure AustraliaEstablished in 1994 to fund scientific research to find a cure for paralysis.

Library Books and VideosFind resources within the PRC library catalog.

Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.

Sus 336 páginas hacen de la PRG una herramienta amplia de información para gente afectada por la parálisis y aquellos que cuidan por ellos. La guía se encuentra disponible en inglés y en español. Solicite su copia.

The information provided in the Paralysis Resource Center was supported by Grant/Cooperative Agreement Number 1U59DD000338 from the Centers for Disease Control and Prevention (CDC). The contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC.