What are the secondary issues related to SCI that might impact my health?
AAHD NewsletterThe American Association on Health and Disability published this Spring 2004 article, "Preventing Pressure Sores," in their Health and Disability Newsletter.
AHRQ’s National Guidelines ClearinghousePresents their guidelines, Acute Management of Autonomic Dysreflexia: Individuals with Spinal Cord Injury to Health-Care Facilities.
American Chronic Pain Association (ACPA)The American Chronic Pain Association (ACPA) facilitates peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain
CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.
CareCure’s Capsaicin and Resiniferatoxin Therapy of Bladder SpasticityRecent clinical trials indicate that instillation of capsaicin (the essence of pepper) or resiniferatoxin (RTX, from a cactus like plant) into the bladder can reduce bladder spasticity for weeks.
Clinical Practice GuidelinesRecommendations for assessment, education and management of the neurogenic bowel.
Craig HospitalHas developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include spasticity, skin care, exercise, heart disease, weight control and conditions related to the aging body.
Craig HospitalWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.
CareCure’s Suprapubic Cystostomy vs. Urethral CatheterizationWise Young, Ph.D., M.D.; W. M. Keck Center for Collaborative Neuroscience;Rutgers University, Piscataway, New Jersey reviews several studies comparing urethral and suprapubic catheterization in people with spinal cord injury. These studies indicate that suprapubic catheterization is superior to both chronic indwelling and intermittent urethral catheterization for reducing bladder infections and kidney damage.
Craig HospitalProvides an emergency fire plan and checklist.
CareCure’s Cranberry Therapy of Urinary Tract InfectionsDo cranberry juice or concentrates prevent urinary tract infections? This article reviews clinical trials and mechanisms of cranberry effects on bladder infections.
CareCure CommunityCareCure Community’s web site offers numerous bulletin boards on SCI care and cure, as well as on travel, sex and other topics. A lively community.
Chronic Pain Support ForumThe Chronic Pain Support Forum is a support site for all those with chronic pain. It features a message board and chat room covering chronic pain, concerns, feelings, and conditions
Craig HospitalCraig Hospital published this article on skin care entitled: "Skin: It's Too Much Pressure!"
EmedicinePosts an article entitled: Autonomic Dysreflexia in Spinal Cord Injury.
decubitus.orgNational Decubitus Foundation
emedicine.comeMedicine: Decubitus Ulcers
findarticles.comGale Encyclopedia of Medicine: Bedsores
familydoctor.orgFamily Doctor.org's Pressure Sores
MedlinePlusMedlinePlus provides a large directory on Guillain-Barre Syndrome .
MedtronicMedtronic manufactures implantable pumps for delivery of drugs to control spasticity.
Jackson Health SystemOffers an online spinal cord injury discharge manual covering a variety of topics including Autonomic Dysreflexia.
MedlinePlusMedlinePlus: Pressure Sores
merck.comMerck Manual of Diagnosis and Therapy: Pressure Sores
KCIKinetic Concepts Inc. (KCI) offers a "Wound Management Reference Guide."
National Institute of Neurological Disorders and StrokeThe National Institute of Neurological Disorders and Stroke (NINDS) offers a GBS information page.
National Institute of Neurological Disorders and StrokeThe National Institute of Neurological Disorders and Stroke (NINDS) offers fact sheets on Spina Bifida.
National Spinal Cord Injury AssociationEducates and empowers survivors of spinal cord injury and disease through a toll-free help-line, nationwide chapters and support groups.
National Spinal Cord Injury AssociationProvides a fact sheet on Autonomic Dysreflexia for people with spinal cord injury.
National Foundation for the Treatment of PainA not-for-profit organization providing support for people with intractable pain
National Foundation for the Treatment of PainThe National Foundation for the Treatment of Pain is a not-for-profit organization providing support for people with intractable pain, their families, friends and the physicians who treat them
National Library of Medicine (NLM)Offers deep resources on numerous medical conditions.
National Institute of Neurological Disorders and StrokeNINDS offers fact sheets on all medical issues related to paralysis, including spasticity.
National Multiple Sclerosis SocietyNMSS offers information and resources on all medical issues related to MS including spasticity.
National Organization for Rare DisordersNORD lists numerous diseases that are accompanied by spasticity.
National Institute of Neurological Disorders and StrokeProvides research overviews for all diseases and conditions related to paralysis.
National Spinal Cord Injury AssociationProvides support groups and resources by state.
National Spinal Cord Injury AssociationProvides a fact sheet on starting a support group of your own.
National Institute of Neurological Disorders and StrokeThe National Institute of Neurological Disorders and Stroke (NINDS) offers information pages on Syringomyelia and Tethered cord.
North American Chronic Pain Association (NACPAC)The North American Chronic Pain Association (NACPAC) is a Canadian association of self-help groups dedicated to providing support to people in chronic pain
npuap.orgNPUAP stands for National Pressure Ulcer Advisory Panel. Visit their website to learn about some of the panel's latest research and recommendations.
Paralyzed Veterans of America (PVA)The Paralyzed Veterans of America, in support of The Consortium for Spinal Cord Medicine, offers authoritative clinical practice guidelines for autonomic dysreflexia. Download from the web; some fees required.
Shepherd Center Learning ConnectionsBladder Care: An online course for patients and their families.
Spinal Cord Injury Information CenterThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.
Spinal Cord Injury Information NetworkFeatures articles and references for AD and all other SCI conditions.
Spinal Cord Injury Information NetworkLinks to several articles and fact sheets related to bladder function.
Shoulder PainThis site, run by Craig Hospital, asks -- and answers -- all the important questions about shoulder pain. From the home page, click on Spinal Cord Injury, then Health and Wellness. See Educational Brochures.
Spinal Cord Injury Information CenterThe Spinal Cord Injury Information Center features information on chronic pain and all other medical aspects of SCI paralysis.
Spinal Cord Injury Information NetworkThe Spinal Cord Injury Information Network website provides information on skin care and other topics relating to paralysis and spinal cord injury.
spinalcord.orgHere is the National Spinal Cord Injury Association's fact sheet on skin care.
spinalinjury.netSpinal Injury.net's Pressure Sores
SCI-Info PagesFrom the SCI-Info-Pages: Spinal Cord Injury: Skin and Pressure Sores Synopsis
Translational Pain ResearchOur overall goal is to relieve each person's pain experience, which we hope will ultimately improve quality of life.
travisroyfoundation.orgTravis Roy Foundation: Pressure Sores
University of Miami School of MedicineProvides clinical information on AD and other paralysis-related conditions.
University of Miami School of MedicineOffers clinical information on bladder, bowel and other paralysis-related conditions.
University of Alabama at BirminghamOffers an information sheet (Info Sheet #11) on bladder care and management.
University of Washington School of MedicineProvides some details on bladder health.
University of Miami School of MedicineOffers detail on sexual physiology and functioning, orgasm, fertility, childbirth, etc.
University of Washington School of MedicineThe University of Washington School of Medicine/Department of Rehabilitation Medicine provides a fact sheet on female sexuality after spinal cord injury.
University of Washington School of MedicineMaintains a very useful site with information on skin care and other health topics.
University of WashingtonSCI Forum Report 2003: Spasticity and Spinal Cord Injury.
University of Alabama at BirminghamOffers information on the process of adjusting to a spinal cord injury.
University of Washington School of MedicineThe University of Washington School of Medicine's Department of Rehabilitation Medicine offers details on bowel management.
VAC TherapyVacuum Assisted Closure (VAC) Therapy: An Advanced System for Wound Healing.
We MovePosts news of clinical advances and therapeutic approaches to the management and treatment of 14 major movement disorders including spasticity.
Library Books and VideosFind resources within the PRC library catalog.
Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.
Check out programs in your area on our one-of-a kind online searchable Quality of Life program database. You can search by location or topic. GO