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Spinal Cord Injury Paralysis Resource Center

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Health Management

Secondary Conditions

A secondary condition is any medical, social, emotional, mental, family, or community problem that a person with a primary disabling condition (stroke, MS, brain injury, etc.) likely experiences.

Autonomic Dysreflexia
A potentially dangerous reaction that can occur as a result of an irritation or infection in spinal cord injuries at T6 or higher.

Bladder Management
Information on managing either a spastic or flaccid bladder resulting from paralysis.

Bowel Management
Paralysis disrupts the bowel management system.

Pain
Offers suggestions on methods to treat and manage chronic pain related to spinal cord injury or disease.

Deep Vein Thrombosis (DVT)
People with spinal cord injury (SCI) are at particular risk for deep vein thrombosis (DVT) during their acute hospital course.

Depression
Found two or three times more often among people who are paralyzed than among the nondisabled – it is common but not normal.

Respiratory Health
Information especially for people who use vents.

Sepsis
Sepsis is a medical emergency that must be treated immediately. Anyone with an infection must be aware of the risk of development of sepsis. Treatment is most successful within the first hour of onset.

Skin Care
How to keep skin healthy and avoid pressure wounds.

Spasticity
The different types and causes of spasticity.

Upper Extremity Care
With knowledge, the right equipment, exercise and care you can preserve arms and shoulders for the long-term, and avoid pain.

Healthy Living

Fitness and Exercise
It's never too late to get a fitness program going.

Nutrition
People living with SCI are more prone to inactivity, and thus don't burn calories. That's the pathway to obesity.

Sexual Health for Men
Information on sexual function and fertility.

Sexual Health for Women
Generally speaking, sexual expression in the paralyzed female is less affected than in the male; it is physically easier for the woman to adapt or redefine her sexual role, albeit a passive one.

AAHD NewsletterThe American Association on Health and Disability published this Spring 2004 article, "Preventing Pressure Sores," in their Health and Disability Newsletter.

AHRQ's National Guidelines ClearinghousePresents their guidelines, Acute Management of Autonomic Dysreflexia: Individuals with Spinal Cord Injury to Health-Care Facilities.

Agency for Health Care Research and QualityOffers information on antidepressants, especially on various side effects.

A Reeve Foundation Fact Sheet on Religion and People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Alternative Medicine (PDF)

A Reeve Foundation Fact Sheet on Autonomic Dysreflexia (PDF)

A Reeve Foundation Fact Sheet on Bladder Management (PDF)

A Reeve Foundation Fact Sheet on Bowel Management (PDF)

A Reeve Foundation Fact Sheet on Complex Regional Pain Syndrome (PDF)

A Reeve Foundation Fact Sheet on Depression (PDF)

A Reeve Foundation Fact Sheet on Pain (PDF)

A Reeve Foundation Fact Sheet on Sex and Pregnancy for Females (PDF)

A Reeve Foundation Fact Sheet on Sexuality for Males (PDF)

A Reeve Foundation Fact Sheet on Skin-Pressure Sores (PDF)

A Reeve Foundation Fact Sheet on Spasticity (PDF)

A Reeve Foundation Fact Sheet on Mindfullness (PDF)

A Reeve Foundation Fact Sheet on New Injury Top 10 Questions (PDF)

A Reeve Foundation Fact Sheet on Umbilical Cord Blood Banking (PDF)

Ask the Neurologist: How to treat spasticityVideo lecture by Leslie Morrison regarding how to treat spasticity. The latest research publications are shown below the lecture updated daily, and with access to some of the full articles.

American Chronic Pain Association (ACPA)The American Chronic Pain Association (ACPA) facilitates peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain

Craig Hospital: Aching ShouldersWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body.

Craig Hospital: Upper-Extremity PainWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body.

Consortium for Spinal Cord Medicine: Autonomic DysreflexiaThis consumer guide explains in clear language the most common warning signs of autonomic dysreflexia and what steps to follow if you think you are experiencing an episode of this life-threatening condition. All information has been prepared by a committee of qualified professionals based on scientific and professional knowledge about autonomic dysreflexia, its causes and treatments. Published by PVA on behalf of the Consortium for Spinal Cord Medicine.

CareCure CommunityRelationships and Sexuality Forum

CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.

CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.

CareCure's Capsaicin and Resiniferatoxin Therapy of Bladder SpasticityRecent clinical trials indicate that instillation of capsaicin (the essence of pepper) or resiniferatoxin (RTX, from a cactus like plant) into the bladder can reduce bladder spasticity for weeks.

Clinical Practice GuidelinesRecommendations for assessment, education and management of the neurogenic bowel.

CareCure’s Suprapubic Cystostomy vs. Urethral CatheterizationWise Young, Ph.D., M.D.; W. M. Keck Center for Collaborative Neuroscience;Rutgers University, Piscataway, New Jersey reviews several studies comparing urethral and suprapubic catheterization in people with spinal cord injury. These studies indicate that suprapubic catheterization is superior to both chronic indwelling and intermittent urethral catheterization for reducing bladder infections and kidney damage.

Center for Research on Women with DisabilitiesProvides web pages on abuse related to women with disabilities.

CareCure’s Cranberry Therapy of Urinary Tract InfectionsDo cranberry juice or concentrates prevent urinary tract infections? This article reviews clinical trials and mechanisms of cranberry effects on bladder infections.

Chronic Pain Support ForumThe Chronic Pain Support Forum is a support site for all those with chronic pain. It features a message board and chat room covering chronic pain, concerns, feelings, and conditions

Consortium for Spinal Cord Medicine, Clinical Practice GuidelinesThe Guidelines, available at no cost from the Paralyzed Veterans of America, are targeted to professionals. A consumer version is also available: Depression After Spinal Cord Injury, What You Should Know.

Exploring SpasicityExploring Spasticity is open to anyone whose life is affected by spasticity. This includes individuals with spasticity, their caregivers, children, or other family members and friends.

EmedicineTitle: Autonomic Dysreflexia in Spinal Cord Injury

decubitus.orgNational Decubitus Foundation

emedicine.comeMedicine: Decubitus Ulcers

findarticles.comGale Encyclopedia of Medicine: Bedsores

familydoctor.orgFamily Doctor.org's Pressure Sores

The Louis Calder Memorial Library: SpasticityThe mission of the Louis Calder Memorial Library is to support the activities and programs of the University of Miami/Jackson Memorial Medical Center and member institutions and individuals as they relate to education, research, and patient care.

MedlinePlusStart here with 750 topics on conditions, diseases and wellness. MedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.

MedtronicMedtronic manufactures implantable pumps for delivery of drugs to control spasticity.

merck.comMerck Manual of Diagnosis and Therapy: Pressure Sores

KCIKinetic Concepts Inc. (KCI) offers a "Wound Management Reference Guide."

Mobile WomenArticles, resources, online forum for women with disabilities especially wheelchair users.

National Library of Medicine (NLM)Offers deep resources on numerous medical conditions.

National Multiple Sclerosis SocietyNMSS offers information and resources on all medical issues related to MS including spasticity.

National Organization for Rare DisordersNORD lists numerous diseases that are accompanied by spasticity.

National Institute of Neurological Disorders and StrokeProvides research overviews for all diseases and conditions related to paralysis.

National Suicide Prevention LifelineNational Suicide Prevention Lifeline is a 24-hour, toll-free suicide prevention service available to anyone in suicidal crisis. If you need help, dial 1-800-273-TALK (8255).

National Library of MedicineDiscussion of depression and treatment options.

Northwest Regional Spinal Cord Injury SystemPain and Spinal Cord Injury

North American Chronic Pain Association (NACPAC)The North American Chronic Pain Association (NACPAC) is a Canadian association of self-help groups dedicated to providing support to people in chronic pain

New MobilityNew Mobility magazine features a web discussion forum called Wheels, Relationships and Sexuality.

New Female SexualityThis link provides part one of Paraplegia News' two part series on women's sexuality, written by Dr. Stanley Ducharme, a clinical psychologist in the Departments of Rehabilitation Medicine and Urology at Boston University Medical Center.

New Female Sexuality, pt. 2This link leads to part two of Dr. Stanley Ducharme's series on women's sexuality, from Paraplegia News

npuap.orgNPUAP stands for National Pressure Ulcer Advisory Panel. Visit their website to learn about some of the panel's latest research and recommendations.

Preservation of Upper Limb Function: What You Should KnowClinical Practice Guidelines developed by the Consortium for Spinal Cord Injury, of which the Reeve Foundation is a steering committee member. The primary guidelines are targeted to health care professionals. A consumer guide, “Preservation of Upper Limb Function: What You Should Know” was recently released. The publications are available at no cost from the Paralyzed Veterans of America.

Rehabilitation Institute of ChicagoSpinal Cord Injury: Sexuality

The Spinal Cord Injury Information Network: DepressionResources and materials related to depression.

Shepherd Center Learning ConnectionsBladder Care: An online course for patients and their families.

Spinal Cord Injury Information NetworkFeatures articles and references for AD and all other SCI conditions.

Spinal Cord Injury Information NetworkPain Following SCI

Spinal Cord Injury Information NetworkSexual Function for Men with Spinal Cord Injury

Shoulder PainThis site, run by Craig Hospital, asks -- and answers -- all the important questions about shoulder pain. From the home page, click on Spinal Cord Injury, then Health and Wellness. See Educational Brochures.

SexualhealthSexualhealth is a website featuring information on sexual function and pleasure for people with disabilities.

spinalinjury.netSpinal Injury.net's Pressure Sores

SCI-Info Pages: Skin CareFrom the SCI-Info-Pages: Spinal Cord Injury: Skin and Pressure Sores Synopsis

Translational Pain ResearchOur overall goal is to relieve each person's pain experience, which we hope will ultimately improve quality of life.

travisroyfoundation.orgTravis Roy Foundation: Pressure Sores

University of Alabama at BirminghamOffers an information sheet (Info Sheet #11) on bladder care and management.

University of Miami School of MedicineSexuality in Spinal Cord Injury

University of Washington School of Medicine: Bowel CareThe University of Washington School of Medicine/Department of Rehabilitation Medicine.

University of Washington School of Medicine: Bladder Management
The University of Washington School of Medicine/Department of Rehabilitation Medicine.

The University of Miami School of MedicineAD

University of Washington/Department of Rehabilitation MedicineOffers a series of pamphlets: Staying Healthy after a Spinal Cord Injury; depression is covered.

WrongDiagnosis.com: SpasticityWrongDiagnosis.com is one of the world’s leading providers of online medical health information. The site is an independent, objective source of factual, mainstream health information for both consumers and health professionals.

VAC TherapyVacuum Assisted Closure (VAC) Therapy: An Advanced System for Wound Healing.

We MovePosts news of clinical advances and therapeutic approaches to the management and treatment of 14 major movement disorders including spasticity.

Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.

Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.

Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.

Library Books and VideosFind resources within the PRC library catalog.

ASK OUR EXPERTS
  • Email our Paralysis Information Specialists
  • Call our Paralysis Information Specialists
  • Call our Paralysis Information Specialists
  • Newly paralyzed or spinal cord injured? Start here.
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Paralysis Resource Guide

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The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.

This project was supported, in part by grant number 90PR3001, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.