Available to download: Over 100 PDF fact sheets organized alphabetically on various topics from Aging with SCI to Wish Granting Agencies.
Also contains disability resources for each of the 50 United States and 31 countries (where possible the country fact sheets are in the native language of that country).
Friedreich’s Ataxia Research Alliance (FARA)Features information on Friedreich’s Ataxia and related ataxias, research and support.
Friedreich's Ataxia Parents GroupAn online support organization for parents of children with FA. The group helps to limit the isolation many feel while raising children with degenerative diseases. This website provide a forum for parents to share experiences.
Muscular Dystrophy Association: Friedreich's Ataxia (FA)A primary source for news and information about neuromuscular diseases, including ataxias, MDA research and services for adults and children with neuromuscular diseases and their families. The site features a searchable database of our 230 MDA clinics and numerous publications.
MedlinePlus: Friedreich's AtaxiaMedlinePlus will direct you to information to help answer health questions. MedlinePlus brings together authoritative information from NLM, the National Institutes of Health (NIH), and other government agencies and health-related organizations. Preformulated MEDLINE searches are included in MedlinePlus and give easy access to medical journal articles. MedlinePlus also has extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.
National Ataxia Foundation (NAF)NAF supports research into hereditary ataxia, a group of neurological disorders which are chronic and progressive conditions affecting coordination. NAF has more than 45 affiliated chapters and support groups throughout the U.S. and Canada. The foundation strives to improve diagnosis and develop treatment models, locating families affected by ataxia or at risk for ataxia in order to offer information and education, and identify needs and services for referral.
The Spinal Cord Injury Information Network: Friedreich's AtaxiaThe Spinal Cord Injury Information Network at the University of Alabama at Birmingham is funded through federal grants to the UAB Rehabilitation Research and Training Center on Secondary Conditions of Spinal Cord Injury and the UAB Model SCI Center.
We MoveWE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them.
Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.
Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.
Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.
Library Books and VideosFind resources within the PRC library catalog.
This FREE 442 page book is a comprehensive information tool for individuals living with paralysis and for their caregivers. Request or download your copy now!
Check out programs in your area on our one-of-a kind online searchable Quality of Life program database. You can search by location or topic. GO