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Spinal Cord Injury Paralysis Resource Center

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I have no health insurance, what are my options?

Being uninsured or underinsured does not mean there are no avenues to get health coverage. Hospitals that accept federal money must provide a certain amount of free or reduced fee care. Check with the hospital's financial aid department to see if you qualify for reduced or charity care. To start the process of getting care, meet with a caseworker at the hospital to gather relevant paperwork and begin applying for Medicare, Medicaid, and Social Security. Caseworkers or social workers are sometimes assigned by your hospital (though you may have to ask for one). They are there to assist you in managing your family member's care. Here are some possible sources of health coverage:

Health Insurance Marketplaces
A Health Insurance Marketplace is "a new way to find quality health coverage. It can help if you don't have coverage now or if you have it but want to look at other options. With one Marketplace application, you can learn if you can get lower costs based on your income, compare your coverage options side-by-side, and enroll."

The health reform law requires that all American citizens have the opportunity to shop online (or by phone) for the best available insurance coverage to fit their individual needs and budget. Depending on a person's income, the coverage options provided through the Marketplaces may be a better choice than what is currently offered through an individual's employer, but they may not be. Of course, the Marketplaces will also offer the uninsured choices they may not have been privy to in the past. Depending on where you live, the Marketplace in your state will be accessible through a website operated by either the federal or state governments.

Where can you get started?
Healthcare.gov will direct you to the Marketplace in your state, pretty seamlessly. It's certainly the best place to get started. The Marketplace site will ask you basic questions about your income, your family size, where you live, etc. and will provide an overview of the insurance options (both private and public) for which you qualify. But ultimately, you will have to make decisions based on your own needs, the needs of your family, and your budget.

The role of Medicare
Medicare is a federal insurance program available to those:
- 65 years and older (whatever their income)
- Younger than 65 years with a disability (and have received Social Security Disability Insurance (SSDI) for at least 24 months)
- Individuals of all ages who have end-stage renal disease (permanent kidney failure in need of dialysis or a transplant)

Medicare enrollees pay part of costs through deductibles for hospital and other costs. Small monthly premiums are required for non-hospital coverage. For more information on Medicare – including resources to help you compare coverage options and costs, check current enrollment, or enroll in coverage, you can call 1-800-MEDICARE or visit www.medicare.gov.

Important note on Medicare and Health Insurance Marketplaces
If you're covered under Medicare, the following are some important things to remember:

- Medicare isn't part of the Health Insurance Marketplace so, if you are already covered by Medicare, no action is needed.
- Medicare's open enrollment period hasn't changed. In 2013, open enrollment began on October 15 and will run through December 7. During this time, all people who have Medicare can make changes to their health plans and prescription drug coverage for 2014. To find out how to make such changes, visit medicare.gov, or call 1-800-MEDICARE.
- The good news is, if you're on Medicare now, the ACA won't affect your choices, and your benefits won't be changing. According to the Centers for Medicare & Medicaid Services (CMS), "No matter how you get Medicare, whether through Original Medicare or a Medicare Advantage Plan, you'll still have the same benefits and security you have now, and you won't have to make any changes."
- Note: The Marketplace does not offer Medicare supplement (Medigap) insurance or Part D prescription drug plans.

Source: Healthcare.gov

Medicaid is a state-based assistance program serving low-income people under the age of 65. Patients usually pay no part of costs for covered medical expenses, although a small co-payment may be required. Each state sets its own guidelines regarding eligibility and services so you should contact your local Medicaid office directly. Contact the relevant benefit offices to set up any appointments or interviews needed to expedite the process. Be aware of any deadlines or important documentation that you may need to provide. Be sure to keep accurate and thorough records of everyone you are in contact with. If you are unsure of your eligibility, it is best to apply and have a caseworker or legal aid office review your application before submission.

The Affordable Care Act (ACA) provides all states with the option to expand their Medicaid programs starting in 2014. Currently, 25 states have expanded their programs, 21 have indicated that they will not participate in expansion and 5 states are currently in the process of debating the best way to move forward.

For information regarding the Medicaid program in your state, you can call the Centers for Medicare and Medicaid Services (CMS) at 1-877-267-2323 or visit www.medicaid.gov.

State Children's Health Insurance Program
If an individual is under 18 years of age, they may quality for coverage under their state's Children's Health Insurance Program (CHIP). CHIP “provides health coverage to nearly 8 million children in families with incomes too high to qualify for Medicaid, but can't afford private coverage.” Eligibility is determined by each state and is income and disability based. Each state's CHIP or SCHIP program may have a different name. It is important to note that your child may qualify for SCHIP coverage even if denied Medicaid. Children may also be eligible for some disability benefits from Supplemental Security Income.

Additionally, under the Affordable Care Act, many young adults are now able to remain on their parents' health insurance plan until age 26. You can learn more about this change here.

Below are some websites and publications to help you navigate the Medicaid, Medicare and Health Insurance Marketplace process along with websites specific to the SCHIP program:

- Affordable Health Care Act Center
- Center for Medicare and Medicaid Service
- Medicare and Medicaid
- Kaiser Foundation's Navigating Medicare and Medicaid: Resource Guides for People with Disabilities, Their Families, and Their Advocates
- State Children's Health Insurance Program
- Insure Kids Now
- Shriners Hospital

A Reeve Foundation Fact Sheet on Social Security and Disability (PDF)

Disability.govserves as the official government website on disability resources for the public. It was created by the federal government to serve as the single online point-of-reference for information and programs related to disability. The site is managed across all federal agencies under the New Freedom Initiative.

Model Systems Knowledge Translation CenterThe factsheets listed at the MSKTC were produced through a collaboration between the MSKTC and the SCI Model Systems. These materials undergo expert and consumer reviews to ensure they are up-to-date, evidence-based, and consumer-friendly.

Just One Break-JOBEmployment placement service for people with disabilities.

The Job Accommodation Network (JAN)The Job Accommodation Network (JAN) is a free consulting service that provides information about job accommodations, the Americans with Disabilities Act (ADA), and the employability of people with disabilities.

The National Organization of Social Security Claimants’ RepresentativesThe National Organization of Social Security Claimants’ Representatives (NOSSCR) provides representation and advocacy on behalf of persons who are seeking Social Security and Supplemental Security Income.

PASS TutorialTutorial on completing the Plan for Achieving Self-Support (PASS).

Social Security AdministrationThe official website for the U.S. Social Security Administration.

Social Security Disability InformationThe Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities.

Ticket to Work and Work Incentives Improvement ActThis site provides information about the Ticket to Work and Work Incentives Improvement Act.

Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.

Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.

Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.

Library Books and VideosFind resources within the PRC library catalog.

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The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.

This project was supported, in part by grant number 90PR3002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship areencouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.