The Path Along the Pines
By Saralee Perel Like the cycle of life in which tides ebb and flow, so it goes with relationships. As often happens with couples when one partner becomes disabled, my husband Bob and I have had our share of receding waters ever since my spinal cord injury. But because of a stick, a pair of earphones and a field of pines, the tide has shifted for both of us. Sitting on the bed, Dashing along fields of pines, In mornings, too early To tell you Thank God we made it better. It wasn't going to happen by itself. We needed to make it happen together, as a team. So one recent afternoon, I could hear Bob rummaging around in our backyard shed. After about an hour, he laughingly called out, "I found it!" "Found what?" "You'll see." And so I did. In one of the dark corners of the shed, he found the wooden walking stick he had hand carved for me when we were first married. It was brittle and dry from years of not being used nor cared for. So what did Bob do? Well, by polishing and re-polishing until its shine was as lovely and rich as it was in those beginning years of our marriage, he gave it new life. Before he presented me with his re-creation, he handed me a card in which he had written the second poem: Sometimes, if we're not aware, When we discover them, Bob and I knew that his words had a lot more to do with "us" than they did with my precious walking stick. After he gave me the gift, I put my regular cane under the couch. The walking stick suits me, in many ways, much better. Later that day, I was sitting outside. I was listening with earphones to a James Taylor CD on my iPod. When I heard "My Romance," I reveled in the words and the music. Suddenly I thought, "I've got to find Bob." I faltered for a moment getting out of my chair, but then I stood myself up. "What's there to think about?" I said to myself. "Go!" I had learned from Bob when I'd heard him rummaging through our shed, that a single decision can change an entire life. When I walk, I need support for balance. With the determination of an Olympian, I held on to tree after tree as I rushed into the house. Bob was at the computer. Then without saying one word, I put the earphones on him and took his hand. He held me up while we danced. My romance . . . doesn't need to have a moon in the sky. We swayed to the music. No month . . . of May. No shining star. No hideaway. No soft guitar. Bob took one earphone off. "You listen too," he said. I closed my eyes. He led me into a slow twirl as we both sang. My romance doesn't need a thing . . . but you. Sometimes, wondrous things right in front of us take a long time to embrace and re-discover. With one set of earphones now belonging to two people, a dash along our backyard pines and a walking stick brought back to life, we have reclaimed our love at last. Award-winning columnist, Saralee Perel, welcomes e-mails as sperel@saraleeperel.com or via her website: www.saraleeperel.com. Tell us your story |
A Reeve Foundation Fact Sheet on Caregivers PCAs Respite (PDF)
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Caregiver.comOffers a directory of support groups for caregivers.
The Caregiver InitiativeA project of the Johnson & Johnson Consumer Products Company to help family caregivers provide care to their loved ones and reduce their own stress. Includes information on caregiver needs, and training materials for family caregivers.
Family Caregiver AllianceCaregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers.
Family Caregiving: It's Not All Up to YouNFCA and the National Alliance for Caregiving launched a public education campaign to give information and support to caregivers.
FacingDisability.comFacing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. I know that this is a lot to ask, but we'd be so grateful for your help. I'm looking forward to discussing this link with you, and to answering any questions you may have.
National Family Caregiver Association (NFCA)The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.
National Alliance for CaregivingThe Alliance was created to conduct research, do policy analysis, develop national programs, increase public awareness of family care giving issues, work to strengthen state and local care giving coalitions, and represent the US care giving community internationally.
Red Cross Family Caregiving ResourcesInformation for caregivers.
Spinal Cord Injury CaregiversYahoo Internet Forum is a place to share information and to support other caregivers who are caring for people with SCI.
Well Spouse AssociationA national, not for profit membership organization that gives support to wives, husbands, and partners of the chronically ill and/or disabled. Through information and support groups, the organization address issues common to family caregivers: anger, guilt, fear, isolation, grief, and financial threat.
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