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Spinal Cord Injury Paralysis Resource Center

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One Degree of Separation:
Paralysis and Spinal Cord Injury in the United States

Gender

  • 54% of those who reported being paralyzed were males, while 46% were females.
  • 61% of those who reported being paralyzed due to a spinal cord injury were males, while 39% were females.
  • Males were nearly twice as likely (1.77) to incur a spinal cord injury as females.

    Paralysis and Military Service

    • 67,000 (7%) of respondents who said they became paralyzed as a result of an accident or injury reported the paralyzing accident or injury occurred while serving in the military.

    Next: Ethnicity and Hispanic identity

    Military & Veterans Programs (MVP)

    Military Resources

    The Reeve Foundation offers a wealth of knowledge on SCI and Paralysis and partners with other organizations and foundations with expertise in specific areas of importance to the Military & Veterans community. Read more.

    The ALS AssociationThe ALS Association symbolizes the hopes of people everywhere that Amyotrophic Lateral Sclerosis will one day be a disease of the past – relegated to historical status, studied in medical textbooks, conquered by the dedication of thousands who have worked ceaselessly to understand and eradicate this perplexing killer.

    A Reeve Foundation Fact Sheet on Pediatric SCI (PDF)

    A Reeve Foundation Fact Sheet on Adjustment to SCI (PDF)

    A Reeve Foundation Fact Sheet on Aging with SCI (PDF)

    A Reeve Foundation Fact Sheet on Veterans Benefits (PDF)

    Military & Veterans Programs (MVP)

    A Reeve Foundation Fact Sheet on SCI Autobiogs or Biogs (PDF)

    A Reeve Foundation Fact Sheet on SCI Chat Rooms (PDF)

    A Reeve Foundation Fact Sheet on SCI Research (PDF)

    A Reeve Foundation Fact Sheet on SCI Tutorial 101 (PDF)

    A Reeve Foundation Fact Sheet on SCI Videos (PDF)

    Army Wounded Warrior-AW2Taking care of wounded warriors is an important part of the Army's mission. The U.S. Army Wounded Warrior Program (AW2) is the official Army program that serves severely wounded, ill, and injured Soldiers, Veterans and their Families, wherever they are located, regardless of military status, for as long as it takes.

    Air Force Wounded Warrior-AFW2The Air Force will take care of its Wounded Warriors. We will fully support the Office of the Secretary of Defense programs to keep highly skilled men and women on active duty. If this is not feasible, the Air Force will ensure Airmen receive enhanced assistance through the AFW2 program.

    AMVETSAMVETS (or American Veterans) has a proud history of assisting veterans and sponsoring numerous programs that serve our country and its citizens. The helping hand that AMVETS extends to veterans and their families takes many forms.

    A Reeve Foundation Fact Sheet on Brain and Spinal Cord Tumors (PDF)

    A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF) - English

    A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF) - Spanish

    Arkansas Spinal Cord CommissionThe mission of the Arkansas Spinal Cord Commission is to administer a statewide program to identify and meet the unique and lifelong needs of people with spinal cord disabilities in the state.

    Angel Flight for VeteransVeterans Angel Flight (VAF) facilitates no-cost or reduced-rate patient travel services for needy veterans and their families.

    Brain Injury Association of America (BIAA)The Brain Injury Association of America (BIAA) is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI). Together with its network of more than 40 chartered state affiliates, as well as hundreds of local chapters and support groups across the country, the BIAA provides information, education and support to assist the 3.17 million Americans currently living with traumatic brain injury and their families.

    CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.

    Canadian & American Spinal Research OrganizationPromotes and supports funding research to ultimately find a cure for paralysis. Also publishes journal of latest research they fund. Call (800) 361-4004 or use the link above.

    Canadian Paraplegic AssociationAssists people with spinal cord injuries and other disabilities to achieve individuality, self-reliance and full community participation. Call (613) 723-1033 or use the link above.

    Craig HospitalWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.

    Computer Electronic Accomodations Program (CAP)The Computer/Electronic Accommodations Program (CAP) provides assistive technology and services to people with disabilities, Federal managers, supervisors, and IT professionals. CAP increases access to information and works to remove barriers to employment opportunities by eliminating the costs of assistive technology and accommodation solutions.

    Defense and Veterans Brain Injury Center (DVBIC)The mission of the Defense and Veterans Brain Injury Center (DVBIC) is to serve active duty military, their dependents and veterans with traumatic brain injury (TBI) through state-of-the-art medical care, innovative clinical research initiatives and educational programs.

    Department of Veterans Affairs -- Benefits AdministrationCommitted to helping veterans get the services they have earned such as patient care and veteran's benefits.

    Determined 2 HealProvides helpful information for the newly spinal cord injured.

    Disabled American VeteransAn organization of disabled veterans focused on building better lives for disabled veterans and their families.

    Defense Centers of Excellence for Psychological Health and Traumatic Brain InjuryDCoE assesses, validates, oversees and facilitates prevention, resilience, identification, treatment, outreach, rehabilitation, and reintegration programs for psychological health and traumatic brain injury to ensure the Department of Defense meets the needs of the nation's military communities, warriors and families.

    Defense & Veterans Pain Management InitiativeEstablished in 2003, the Defense & Veterans Pain Management Initiative (DVPMI) seeks to improve the management of pain in military and civilian medicine. Through clinical research efforts, it has become a model for effective integration of acute and chronic pain medicine.

    Fisher HouseThe Fisher House™ program is a unique private-public partnership that supports America's military in their time of need. The program recognizes the special sacrifices of our men and women in uniform and the hardships of military service by meeting a humanitarian need beyond that normally provided by the Departments of Defense and Veterans Affairs.

    Family Caregiver AllianceCaregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers.

    HelpHOPELiveHelpHOPELive has a 26-year record of success helping families address financial hardships arising from uninsured medical expenses related to transplantation (solid organ, bone marrow, stem cell or tissue) and catastrophic injury (spinal cord or traumatic brain).

    Homes For Our TroopsTheir mission is to build specially adapted homes for severely disabled soldiers and their families.

    Federal Recovery Coordinator ProgramThe program is designed to cut across bureaucratic lines and reach into the private sector as necessary to identify services needed for seriously wounded and ill service members, veterans and their families.

    Homes for Wounded HeroesThis program assist veterans in adapting their homes for a disability that occurred serving in Iraq or Afghanistan at little or no cost for the veteran.

    Fallen Patriot FundWas established to help families of U.S. military personnel who were killed or seriously injured during Operation Iraqi Freedom.

    Injured Marine Semper Fi FundProvides financial assistance and quality of life solutions to marines and sailors injured in combat, training, or with life threatening illness. Can help with associate expenses including purchasing of special equipment, adaptive vans or vehicles, and handicap home purchases and modification.

    FacingDisability.comFacing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. I know that this is a lot to ask, but we'd be so grateful for your help. I'm looking forward to discussing this link with you, and to answering any questions you may have.

    Kosair Charities Center for Pediatric NeuroRecovery at the University of LouisvilleThe Kosair Charities Center for Pediatric NeuroRecovery provides activity-based therapies to promote recovery from neurologic injury in children; conducts research to enhance recovery; and trains families, practitioners and scientists to maximize recovery and improve the quality of life for children and their families. In short, we are here to help kids kick paralysis and through science have every reason to hope.

    Military One SourceMilitary OneSource is provided by the Department of Defense at no cost to active duty, Guard and Reserve (regardless of activation status) and their families. Military OneSource is there for military personnel and their families by phone or online.

    Model Systems CentersA federally funded program of 14 specialty medical and/or rehabilitation centers across the US. The SCI Care System collects and submits acute, rehabilitation and follow-up (annual, long-term post-discharge) data on SCI patients who received care in the these centers following injury.

    The Miami Project to Cure ParalysisThe Miami Project to Cure Paralysis has studied functional electrical systems for exercise.

    Marine Wounded Warrior RegimentThe Wounded Warrior Regiment's mission is to provide and facilitate assistance to wounded/injured/ill Marines, Sailors attached to or in support of Marine units, and their family members throughout the phases of recovery.

    National Family Caregiver Association (NFCA)The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

    The National Spinal Cord Injury Statistical Center (NSCISC)NSCISC supervises and directs the collection, management and analysis of the world's largest spinal cord injury database. Headquartered at the University of Alabama, Birmingham.

    The National Stroke Foundation National Stroke Association is the only national organization in the United States that focuses 100% of its efforts on stroke. National Stroke Association achieves its mission to lower the incidence and impact of stroke by developing compelling community outreach programs, calling for continued improvement in the quality of stroke patient care, and educating both healthcare professionals and the general public about stroke.

    The National MS SocietyThe National MS Society is a collective of passionate individuals who want to do something about MS now -- to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn't.

    National Spinal Cord Injury Association (NSCIA)At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education.

    Navy/Coast Guard Safe HarborNavy Safe Harbor is the Navy's lead organization for coordinating the non-medical care of wounded, ill, and injured Sailors, Coast Guardsmen, and their families. Through proactive leadership, we provide a lifetime of individually tailored assistance designed to optimize the success of our Shipmates' recovery, rehabilitation, and reintegration activities.

    Navy/Coast Guard Safe HarborNavy Safe Harbor is the Navy's lead organization for coordinating the non-medical care of wounded, ill, and injured Sailors, Coast Guardsmen, and their families. Through proactive leadership, we provide a lifetime of individually tailored assistance designed to optimize the success of our Shipmates' recovery, rehabilitation, and reintegration activities.

    The National Parkinson FoundationThe mission of the National Parkinson Foundation is to improve the quality of care for people with Parkinson’s disease through research, education and outreach.

    National Alliance for CaregivingThe Alliance was created to conduct research, do policy analysis, develop national programs, increase public awareness of family care giving issues, work to strengthen state and local care giving coalitions, and represent the US care giving community internationally.

    National Association of American Veterans (NAAV)The NAAV is a 501(c) (3) nonprofit organization incorporated in November 2005 to be a provider of health care information, emergency assistance and advocacy, counseling, housing coordination, and educational programs for all service members, with an emphasis on the severely wounded and single parent service members, military caregivers, veterans, and their families at risk of not returning to normalcy after serving in a war, and residing in underserved areas nationwide.

    New York Online Access to Health (N.O.A.H)Offers information and links related to spinal cord and head injury treatment, rehabilitation, and children. Materials in Spanish.

    Neuroscience for KidsOffers an understandable look at the segments of the spinal cord; from University of Washington.

    OEF/OIF ServicesOperation Enduring Freedom (OEF) Operation Iraqi Freedom (OIF)

    Operation Helping HealProvides financial assistance to wounded service men and women returning from our current overseas military operations.

    OPMWelcome to the U.S. Office of Personnel Management’s Government-wide Veterans Employment Website. This website is a critical component of the Federal Government’s strategy for the recruitment and employment of Veterans.

    Paralyzed Veterans of America (PVA)Paralyzed Veterans of America works to maximize the quality of life for its members and all people with SCI/D as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and disability rights.

    Paralyzed Veterans of America, in support of The Consortium for Spinal Cord Medicine, offers authoritative clinical practice guidelines for bladder management. Consumer guides are available to download.

    Rebuilding Together's Heroes at HomeHeroes at Homesm was launched by Rebuilding Together and Sears Holdings in May 2007. Heroes at Home strives to improve the lives of all low-income U.S. service members, veterans, and military families in need across America by making necessary repairs, improvements, and modifications to their homes.

    Rebuilding Together's Veterans Housing InitiativeCreated to meet the growing needs of veterans from past and present wars. The initiative serves to fill the gaps in housing modifications and repair services that retired and active service men and women struggle to meet. Working in partnership with corporate sponsors, Rebuilding Together's Veterans Housing Initiative strives to provide safe and accessible housing for all low-income veterans.

    SpineUniverseAt SpineUniverse our goal is to help patients and their families understand their back or neck problems. In clear, straightforward language we aim to explain what causes spinal problems and how they can be treated. We are committed to ensure that all of the information we present is trustworthy and of the highest quality.

    Spinal Cord Injury Information NetworkThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.

    Soldiers AngelsProvides financial assistance to OEF OIF service members and veterans for financial assistance to pay mortgages and utilities.

    State Respite CoalitionsThe Chapel Hill Training-Outreach Project was established in 1969 with funding from the Federal government as part of our nation's earliest attempts to provide educational services to young children with disabilities.

    United Spinal AssociationOur mission is to improve the quality of life of all Americans living with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, Lou Gehrig’s Disease (ALS), and post polio.

    U.S. Department of Veterans Affairs Fact Sheet: VA and Spinal Cord InjuryOf the more than 250,000 Americans with serious spinal cord injuries and disorders, about 42,000 are veterans eligible for medical care and other benefits from the Department of Veterans Affairs (VA).

    US ARMYThe Office of the Chief of Public Affairs Media Relations Division is the primary link between the Army and the news media from around the world. The goal of the Media Relations Division is to increase public awareness and understanding of the Army missions as well as its Soldiers, family members, and civilian employees.

    US NavyThe purpose of this website is to provide information and news about the United States Navy to the general public.

    US Marine CorpsThis is an official Marine Corps website, and is provided as a public service by the Marine Corps Division of Public Affairs.

    US Air ForceAF.mil is provided as a public service by the Office of the Secretary of Air Force (Public Affairs).

    US Coast GuardFor over two centuries the U.S. Coast Guard has safeguarded our Nation’s maritime interests in the heartland, in the ports, at sea, and around the globe. We protect the maritime economy and the environment, we defend our maritime borders, and we save those in peril.

    US Special Operations CommandTo provide SOF warriors and their families a model advocacy program in order to enhance their quality of life and strengthen the overall readiness of Special Operations.

    VA Center LocatorGuide to the over 1300 VA centers in the US broken down by region.

    The Wounded Warrior ProjectSeeks to assist those men and women of our armed forces who have been severely injured during the conflicts in Iraq, Afghanistan, and elsewhere around the world.

    VetJobsVetJobs makes it easy for employers to reach and employ all the members of the military community. VetJobs defines the military community to include Air Force, Army, Coast Guard, Department of Defense Civilians, Marine Corps, Merchant Marine, National Guard, Navy, National Oceanic and Atmospheric Administration, Public Health Service, Reserves and their spouses and dependents.

    Vietnam Veterans of America (VVA)Vietnam Veterans of America is the only national Vietnam veterans organization congressionally chartered and exclusively dedicated to Vietnam-era veterans and their families.

    Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.

    Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.

    Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.

    Library Books and VideosFind resources within the PRC library catalog.

    ASK OUR EXPERTS
    • Email our Paralysis Information Specialists
    • Call our Paralysis Information Specialists
    • Call our Paralysis Information Specialists
    • Newly paralyzed or spinal cord injured? Start here.
    Get your free copy of the Paralysis Resource Guide
    Paralysis Resource Guide

    This FREE 442 page book is a comprehensive information tool for individuals living with paralysis and for their caregivers. Request or download your copy now!

    Find Resources in Your Area

    Check out programs in your area on our one-of-a kind online searchable Quality of Life program database. You can search by location or topic. GO



     

    The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.

    This project was supported, in part by grant number 90PR3001, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.