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Spinal Cord Injury Paralysis Resource Center

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Helpful Living

BedCane + Organizer Pouch1. BedCane + Organizer Pouch
This handy attachable bedside cane is convenient for quick help when others aren't around. Just attach it to the side of the bed to lend a hand when needed. It also has a stylish side pouch, making it hard to misplace the TV remote.

Price: $80.00
Link: www.ablemart.com


TeleStik TS3040

2. TeleStik TS3040
The TeleStik TS3040 makes the perfect holiday present. With its soft handled grip and washable magnet and two hooks, reaching could never be easier. Its unique features help it extend from around 8" to 34", giving more independence and range of motion.

Price: $29.95
Link: telestik.com


Big Lamp Switch

3. Big Lamp Switch
The easy grip and turn Big Lamp Switch fits on most standard lamps. By simply screwing it into place of the original lamp switch, it makes turning lamps on and off easier.

Price: $22.19
Link: www.allegromedical.com


Writing Bird4. Writing Bird
Eliminate hand stress that writing can cause. The Writing Bird is ideal for those with limited hand movement. Its easy grip with thumb and fingertip pinch indents make writing less difficult.

Price: $19.95
Link: www.activeforever.com
Related Product: The Pencil Grip ($1.79)


Easy Action Scissors5. Easy Action Scissors
Using scissors is sometimes difficult with the small holes to place fingers in. The stress of having to open and close the scissor can be painful on hands, but these scissors make cutting and gripping easier with the unique straight handle grip.

Price: $23.93
Link: www2.fiskars.com


Receive All Adaptive Arm Brace6. Receive All Adaptive Arm Brace
Designed for an individual living with a spinal cord injury, this adaptive brace makes holding objects easier and less painful. Simply attach the object of choice to the brace and it’s readily available when needed.

Price: $54.95
Link: receive-all.com


Easy Grip Jar & Bottle Opener7. Easy Grip Jar & Bottle Opener
Enjoy this convenient bottle opener, magnet, and gripper as an all-in-one product that alleviates joint pain while struggling to open medicine bottles or small water bottle caps.

Reeve Review: "The easy grip was useful once I was able to get a good grip of it. The problem I had was that I wasn't able to grip the jar as well. So, it would just spin in my lap." Josh Marshbanks, C5 quadriplegic.

Price: $10.95
Link: www.purrfectopener.com
Related product: Easy Open Pill Extractor($10.95)


Baby Hug8. Baby Hug
Never drop your baby again! Seriously, erase all fears with this padded foam board that supports the baby from head to toe. Supporting a baby's neck properly is a concern for everyone who’s not comfortable with such a tiny person. Ease fears and simply wrap the baby in the cotton fabric for a much easier, safer hold.

Reeve Review: "The Baby Hug does give more support under the baby. Not sure if it would be supportive enough for someone with minimal hand use, but it is easy to swaddle. My daughter, Liv, seemed to hold my newborn, Eliana, more comfortably." Michele Loiacono, Christopher & Dana Reeve Foundation Vice President, Human Resources and Special Initiatives.

Price: $64.00
Link: www.sillymonkeybaby.com



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A Reeve Foundation Fact Sheet on Wheelchair and Equipment Donations (PDF)

A Reeve Foundation Fact Sheet on Adjustment to SCI (PDF)

A Reeve Foundation Fact Sheet on Aging with SCI (PDF)

A Reeve Foundation Fact Sheet on SCI Autobiogs or Biogs (PDF)

A Reeve Foundation Fact Sheet on SCI Chat Rooms (PDF)

A Reeve Foundation Fact Sheet on SCI Research (PDF)

A Reeve Foundation Fact Sheet on SCI Tutorial 101 (PDF)

A Reeve Foundation Fact Sheet on SCI Videos (PDF)

A Reeve Foundation Fact Sheet on Brain and Spinal Cord Tumors (PDF)

A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF)

Arkansas Spinal Cord CommissionThe mission of the Arkansas Spinal Cord Commission is to administer a statewide program to identify and meet the unique and lifelong needs of people with spinal cord disabilities in the state.

Assistive Technology (AT) Resources: Proper fit of a wheelchairThe National Academy of Neuropsychology (NAN) has compiled a list of various Assistive Technology (AT) resource agencies around the nation, including resources on driver education, independent living, state agencies, mobility equipment and more.

Aquila Wheelchair CushionsThe Aquila Corporation offers a line of alternating pressure wheelchair cushions along with a two-zone static manual inflate cushion. These cushions are designed to meet pressure relief needs thereby helping to prevent pressure sores from developing down the road.

BrunoBruno Independent Living Aids has become known for its: power chairs, scooters, high quality stair lifts and Turning Automotive Seating.

CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.

Canadian & American Spinal Research OrganizationPromotes and supports funding research to ultimately find a cure for paralysis. Also publishes journal of latest research they fund. Call (800) 361-4004 or use the link above.

Canadian Paraplegic AssociationAssists people with spinal cord injuries and other disabilities to achieve individuality, self-reliance and full community participation. Call (613) 723-1033 or use the link above.

ColoursFor people who like to think outside the box, check out the chairs put out by Colours In Motion.

Craig HospitalWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.

e.motionA standard manual wheelchair can get extra help with special rims containing small yet powerful motors.

Determined 2 HealProvides helpful information for the newly spinal cord injured.

Frog LegsFrog Legs Inc. makes a product that makes mobility a much smoother experience. A flexible hinge allows the castor wheels on wheelchairs to move more easily over bumps and obstacles thereby reducing the impact normally felt by the person seated. Think of them as shock absorbers for your wheelchair.

FacingDisability.comFacing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. I know that this is a lot to ask, but we'd be so grateful for your help. I'm looking forward to discussing this link with you, and to answering any questions you may have.

Model Systems CentersA federally funded program of 14 specialty medical and/or rehabilitation centers across the US. The SCI Care System collects and submits acute, rehabilitation and follow-up (annual, long-term post-discharge) data on SCI patients who received care in the these centers following injury.

The Miami Project to Cure ParalysisThe Miami Project to Cure Paralysis has studied functional electrical systems for exercise.

The Jay CushionSunrise Medical produces a cushion for wheelchairs called The Jay which is filled with a slow-flowing gel. The Jay addresses posture, skin and functional needs.

The National Spinal Cord Injury Statistical Center (NSCISC)NSCISC supervises and directs the collection, management and analysis of the world's largest spinal cord injury database. Headquartered at the University of Alabama, Birmingham.

National Spinal Cord Injury Association (NSCIA)At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education.

New York Online Access to Health (N.O.A.H)Offers information and links related to spinal cord and head injury treatment, rehabilitation, and children. Materials in Spanish.

Neuroscience for KidsOffers an understandable look at the segments of the spinal cord; from University of Washington.

Paralyzed Veterans of America, in support of The Consortium for Spinal Cord Medicine, offers authoritative clinical practice guidelines for bladder management. Consumer guides are available to download.

PermobilPermobil produces chairs ideal for those requiring the flexibility to constantly change positions. Technology and comfort combine to allow for active sitting.

Pride MobilityFor tight and precise control, Pride Mobility Products Corporation makes the very popular Jazzy Power Chairs.

Rehabilitation Institute of Chicago: Wheelchair Seating & PositioningHaving mobility is an important factor in being able to lead a productive and fulfilling life. If an individual is unable to walk, an appropriate mobility base and seating system are imperative to enhance the ability to interact and perform functional skills.

ROHOThe ROHO is a brand of cushion seats designed for protection and comfort. Each cushion is based on a support system of evenly distributed air.

The Spinal Cord Injury Information Network: Wheelchairs & SeatingInformation on seating and positioning.

SpineUniverseAt SpineUniverse our goal is to help patients and their families understand their back or neck problems. In clear, straightforward language we aim to explain what causes spinal problems and how they can be treated. We are committed to ensure that all of the information we present is trustworthy and of the highest quality.

Spinal Cord Injury Information NetworkThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.

Spinlife.comOnline durable medical equipment (including wheelchairs and cushions).

SportaidOnline catalog for durable medical equipment.

TiLiteTitanium wheelchairs; lightweight and strong.

UCP Wheels for HumanityA non-profit organization that refurbishes donated wheelchairs and hand fits them to children and adults with disabilities in developing nations.

United Spinal AssociationOur mission is to improve the quality of life of all Americans living with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, Lou Gehrig’s Disease (ALS), and post polio.

U.S. Department of Veterans Affairs Fact Sheet: VA and Spinal Cord InjuryOf the more than 250,000 Americans with serious spinal cord injuries and disorders, about 42,000 are veterans eligible for medical care and other benefits from the Department of Veterans Affairs (VA).

Wheelchairjunkie.comA resourceful and opinionated website owned and operated by self-described "power chair gonzo" Mark E. Smith, who also designs power chairs for Pride Mobility Products. Says Smith, "WheelchairJunkie.com is about mobility, not manufacturers, so the voices expressed here represent only users."

WheelchairNetA federally funded virtual community for people who have an interest in wheelchair technology.

Wheelchair FoundationOver 100 million of the world's citizens today are deprived of mobility because of warfare, disease, disaster or advanced age. The wheelchairs they need simply to get across the street - or across the room - are out of reach. The Wheelchair Foundation believes that these people deserve the independence and dignity that comes with owning a wheelchair, regardless of their nationality. This is a nonprofit organization leading an international effort to deliver a wheelchair to every man, woman and child in the world who needs one. For those individuals, the Wheelchair Foundation offers freedom, self-reliance, mobility and hope.

Whirlwind Wheelchair InternationalWhirlwind Wheelchair International (WWI) is the communications hub of the Whirlwind Wheelchair Network of independent wheelchair-producing workshops in developing countries. Founded in 1989 as the Wheeled Mobility Center (WMC), WWI's primary mission is 1) to teach wheelchair riders in developing countries to design, build, and repair their own wheelchairs; 2) to enable rider/builders to create businesses for the manufacture and distribution of wheelchairs to others; and 3) to foster the ever-widening Whirlwind Network of rider/builders around the world who exchange ideas for the continuous improvement of wheelchair design.

World Wide Wheelchairs & Used Medical EquipmentScott Dier began this company in July 1998. He wanted to sell a hearing aid on the Internet. Then people started asking about wheelchairs and other medical equipment! Mr. Dier then proceeded to look for equipment around North America and found many items available. World Wide Wheelchairs exploded into a company that was needed throughout the world! They have sent medical equipment and wheelchairs to India, Saudi Arabia, Chile, Japan, Mexico, Jamaica, Canada, England, Brazil and all over the U.S. and the U.S. Military.

Wheelchair AccessoriesClick on this link to see how you can accessorize your chair or scooter and improve matters. Backpacks, cupholders, trays, canopies and umbrellas are just a few examples.

Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.

Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.

Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.

Library Books and VideosFind resources within the PRC library catalog.

ASK OUR EXPERTS
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Paralysis Resource Guide

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The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.

This project was supported, in part by grant number 90PR3001, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.