"Are you the guy with that tattoo?"NeuroRecovery Network participant lives his life without limits
We first met Brad Burns when we were told about his Reeve Foundation tattoo. Inked on his right bicep, it represents his progression at the Foundation's NeuroRecovery Network (NRN). In November of 2011, Burns told us the tattoo "pretty much put me on the map." As he completed the 5K portion of the Kentucky Derby Festival in Louisville, KY in the spring of 2011, Burns was well recognized for more than just his motivation to cross the finish line. "I had about five people come up to me and ask, 'Are you the guy with that tattoo?'"
Skip to a few months later in the summer of 2011. Brad decided to leap through life -- literally. He went wheelchair bungee jumping and shared his story with the rest of the paralysis community.
"I think what I did with that (bungee jumping) trip, was finally put my money where my mouth was," says Burns. "I kept talking about it, I think you have to do that, keep telling yourself you can do this or that, and eventually make that jump and go for it."
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That trip motivated Burns to create a 'to-do under 30' list. At age 28, he's prepared for a life without limits. The list includes everything from water skiing and kayaking to walking and handcycling in half and full marathons, to speaking fluent Spanish and traveling abroad. Some of the activities have already been checked off the list, but Burns is confident that if he stays on track, he can accomplish them all.
In addition to actively pursuing his to-do list that hangs on his wall, Burns is now certified to scuba dive and is enrolled in college.
Having always been attracted the medical field, studying to be an EMT before his injury, Burns is currently studying full-time for his Associates Degree in Health Information Management at Columbus State University.
"When I was looking for degrees," explains Burns, "what really got me focused on this one was one, it's going to boom, there will be a lot of openings in the next couple of years. And two, because of the voice activation software. Since I'm a quad, I have half use of my left hand, and no use of my right, so I took this into consideration. It's not the most exciting job but as you can tell, I do lot of other crazy stuff in my life!"
Taking a serious interest in his education hasn't stopped Burns from continuously improving his physical capabilities. Burns completes an upper body workout every morning and walks at least one mile every day with his walker. Burns has also taken up handcycling.
Since being discharged from the NRN in September 2010, Burns pursues walking on his own terms. "I started using a walk-aid on my right leg," explains Burns. "The device attaches onto my right calf and bends my ankle for me. It sends a shock, causing my right ankle to flex which helps me to walk far." This helped Burns train for the previously mentioned 5K marathon.
"Being active, eating right, and staying in shape are things that are so integrated in my lifestyle I can't get rid of them," says Burns. "I was so used to being at the NRN with these good routines, I can't let any of them go!"
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Available to download: Over 100 PDF fact sheets organized alphabetically on various topics from Aging with SCI to Wish Granting Agencies.
Also contains disability resources for each of the 50 United States and 31 countries (where possible the country fact sheets are in the native language of that country).
American Horticultural Therapy AssociationHorticultural therapy (HT) is not only an emerging profession, it is a time-proven practice. The therapeutic benefits of peaceful garden environments have been understood since ancient times. In the 19th century, Dr. Benjamin Rush, a signer of the Declaration of Independence and considered to be the "Father of American Psychiatry," reported that garden settings held curative effects for people with mental illness.
Dowling Community Garden: Building Accessible Raised-Bed GardensFunding for the wheelchair accessible beds was provided by the Longfellow Community Council Neighborhood Revitalization Program (NRP). NRP funds paid for the materials and all labor was provided by Dowling gardeners. If you are a wheelchair gardener or know a wheelchair gardener who would be interested in gardening at Dowling, please call the Dowling Community Garden voice mail at (651) 255-6607.
Arkansas Spinal Cord CommissionThe mission of the Arkansas Spinal Cord Commission is to administer a statewide program to identify and meet the unique and lifelong needs of people with spinal cord disabilities in the state.
Assistive Technology (AT) Resources: Proper fit of a wheelchairThe National Academy of Neuropsychology (NAN) has compiled a list of various Assistive Technology (AT) resource agencies around the nation, including resources on driver education, independent living, state agencies, mobility equipment and more.
Aquila Wheelchair CushionsThe Aquila Corporation offers a line of alternating pressure wheelchair cushions along with a two-zone static manual inflate cushion. These cushions are designed to meet pressure relief needs thereby helping to prevent pressure sores from developing down the road.
BrunoBruno Independent Living Aids has become known for its: power chairs, scooters, high quality stair lifts and Turning Automotive Seating.
Challenged AmericaThe Challenged America program is dedicated to introduce sailing as a therapeutic and rehabilitative enhancing activity to individuals with disabilities, their loved ones, and professionals in healthcare and rehabilitation.
CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.
Canadian & American Spinal Research OrganizationPromotes and supports funding research to ultimately find a cure for paralysis. Also publishes journal of latest research they fund. Call (800) 361-4004 or use the link above.
Canadian Paraplegic AssociationAssists people with spinal cord injuries and other disabilities to achieve individuality, self-reliance and full community participation. Call (613) 723-1033 or use the link above.
ColoursFor people who like to think outside the box, check out the chairs put out by Colours In Motion.
Craig HospitalWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.
e.motionA standard manual wheelchair can get extra help with special rims containing small yet powerful motors.
Determined 2 HealProvides helpful information for the newly spinal cord injured.
eHow: How to Make a Wheelchair/Scooter Accessible Raised Garden BedHow to build an accessible raised bed garden from inexpensive, easily obtained materials. This is a thoughtful, enriching and enabling gift for the elderly, disabled and arthritic individuals.
E Nasco: CelluGro™ Wheelchair Accessible Green Thumb Therapy GardenDesigned by a horticultural therapist, this makes it possible for anyone who may not be able to do traditional gardening to be active gardeners.
Frog LegsFrog Legs Inc. makes a product that makes mobility a much smoother experience. A flexible hinge allows the castor wheels on wheelchairs to move more easily over bumps and obstacles thereby reducing the impact normally felt by the person seated. Think of them as shock absorbers for your wheelchair.
Flaghouse: Gardening ProductsTo enhance the quality of life for all people, with resources for physical activity, recreation, therapy, and the development and support of life skills.
Friends Hospital: Adaptive Gardening to Meet Your Changing NeedsGardening is one of our most popular national pastimes. Horticulture can be enjoyed by almost everyone, whether young or old, weak or strong, able-bodied or handicapped. Gardening can be a vigorous activity or a sedentary one. As you grow older or your physical abilities change, there is no need for you to stop gardening. Gardens and tools may be modified to help ease stress and strain and allow you to continue to participate in one of the best leisure activities.
Gardener's Supply Co.Disability Opens New Doors for a Lifelong Gardener .
Infinitec: Enabling Gardens This section demonstrates accessible ways to garden, but please consult general gardening resources for help with soil preparation, planting, fertilizing, mulching, pruning, etc.
FacingDisability.comFacing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. I know that this is a lot to ask, but we'd be so grateful for your help. I'm looking forward to discussing this link with you, and to answering any questions you may have.
Kosair Charities Center for Pediatric NeuroRecovery at the University of LouisvilleThe Kosair Charities Center for Pediatric NeuroRecovery provides activity-based therapies to promote recovery from neurologic injury in children; conducts research to enhance recovery; and trains families, practitioners and scientists to maximize recovery and improve the quality of life for children and their families. In short, we are here to help kids kick paralysis and through science have every reason to hope.
Model Systems CentersA federally funded program of 14 specialty medical and/or rehabilitation centers across the US. The SCI Care System collects and submits acute, rehabilitation and follow-up (annual, long-term post-discharge) data on SCI patients who received care in the these centers following injury.
The Miami Project to Cure ParalysisThe Miami Project to Cure Paralysis has studied functional electrical systems for exercise.
The Jay CushionSunrise Medical produces a cushion for wheelchairs called The Jay which is filled with a slow-flowing gel. The Jay addresses posture, skin and functional needs.
The National Spinal Cord Injury Statistical Center (NSCISC)NSCISC supervises and directs the collection, management and analysis of the world's largest spinal cord injury database. Headquartered at the University of Alabama, Birmingham.
National Spinal Cord Injury Association (NSCIA)At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education.
New York Online Access to Health (N.O.A.H)Offers information and links related to spinal cord and head injury treatment, rehabilitation, and children. Materials in Spanish.
Neuroscience for KidsOffers an understandable look at the segments of the spinal cord; from University of Washington.
Paralyzed Veterans of America, in support of The Consortium for Spinal Cord Medicine, offers authoritative clinical practice guidelines for bladder management. Consumer guides are available to download.
PermobilPermobil produces chairs ideal for those requiring the flexibility to constantly change positions. Technology and comfort combine to allow for active sitting.
Pride MobilityFor tight and precise control, Pride Mobility Products Corporation makes the very popular Jazzy Power Chairs.
Rehabilitation Institute of Chicago: Wheelchair Seating & PositioningHaving mobility is an important factor in being able to lead a productive and fulfilling life. If an individual is unable to walk, an appropriate mobility base and seating system are imperative to enhance the ability to interact and perform functional skills.
ROHOThe ROHO is a brand of cushion seats designed for protection and comfort. Each cushion is based on a support system of evenly distributed air.
The Spinal Cord Injury Information Network: Wheelchairs & SeatingInformation on seating and positioning.
SpineUniverseAt SpineUniverse our goal is to help patients and their families understand their back or neck problems. In clear, straightforward language we aim to explain what causes spinal problems and how they can be treated. We are committed to ensure that all of the information we present is trustworthy and of the highest quality.
Spinal Cord Injury Information NetworkThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.
Spinlife.comOnline durable medical equipment (including wheelchairs and cushions).
SportaidOnline catalog for durable medical equipment.
TiLiteTitanium wheelchairs; lightweight and strong.
UCP Wheels for HumanityA non-profit organization that refurbishes donated wheelchairs and hand fits them to children and adults with disabilities in developing nations.
United Spinal AssociationOur mission is to improve the quality of life of all Americans living with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, Lou Gehrig’s Disease (ALS), and post polio.
U.S. Department of Veterans Affairs Fact Sheet: VA and Spinal Cord InjuryOf the more than 250,000 Americans with serious spinal cord injuries and disorders, about 42,000 are veterans eligible for medical care and other benefits from the Department of Veterans Affairs (VA).
Wheelchairjunkie.comA resourceful and opinionated website owned and operated by self-described "power chair gonzo" Mark E. Smith, who also designs power chairs for Pride Mobility Products. Says Smith, "WheelchairJunkie.com is about mobility, not manufacturers, so the voices expressed here represent only users."
WheelchairNetA federally funded virtual community for people who have an interest in wheelchair technology.
Wheelchair FoundationOver 100 million of the world's citizens today are deprived of mobility because of warfare, disease, disaster or advanced age. The wheelchairs they need simply to get across the street - or across the room - are out of reach. The Wheelchair Foundation believes that these people deserve the independence and dignity that comes with owning a wheelchair, regardless of their nationality. This is a nonprofit organization leading an international effort to deliver a wheelchair to every man, woman and child in the world who needs one. For those individuals, the Wheelchair Foundation offers freedom, self-reliance, mobility and hope.
Whirlwind Wheelchair InternationalWhirlwind Wheelchair International (WWI) is the communications hub of the Whirlwind Wheelchair Network of independent wheelchair-producing workshops in developing countries. Founded in 1989 as the Wheeled Mobility Center (WMC), WWI's primary mission is 1) to teach wheelchair riders in developing countries to design, build, and repair their own wheelchairs; 2) to enable rider/builders to create businesses for the manufacture and distribution of wheelchairs to others; and 3) to foster the ever-widening Whirlwind Network of rider/builders around the world who exchange ideas for the continuous improvement of wheelchair design.
World Wide Wheelchairs & Used Medical EquipmentScott Dier began this company in July 1998. He wanted to sell a hearing aid on the Internet. Then people started asking about wheelchairs and other medical equipment! Mr. Dier then proceeded to look for equipment around North America and found many items available. World Wide Wheelchairs exploded into a company that was needed throughout the world! They have sent medical equipment and wheelchairs to India, Saudi Arabia, Chile, Japan, Mexico, Jamaica, Canada, England, Brazil and all over the U.S. and the U.S. Military.
Wheelchair AccessoriesClick on this link to see how you can accessorize your chair or scooter and improve matters. Backpacks, cupholders, trays, canopies and umbrellas are just a few examples.
Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.
Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.
Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.
Library Books and VideosFind resources within the PRC library catalog.
This FREE 442 page book is a comprehensive information tool for individuals living with paralysis and for their caregivers. Request or download your copy now!
Check out programs in your area on our one-of-a kind online searchable Quality of Life program database. You can search by location or topic. GO