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Spinal Cord Injury Paralysis Resource Center

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Reeve Foundation Peer and Family Support Program

presents

Maximizing Life with a Disability™


Scott Chesney
Scott Chesney
International Speaker
Life Coach

Christopher & Dana Reeve Foundation ambassador, Scott Chesney, a two-time world traveler and navigator of life with paralysis for 24 years, has been described as a "profile in courage," "a master of living life to its fullest," and "a commander in change," while addressing more than 1 million people in 38 countries.

After waking up to a spinal stroke at age 15, Scott has become an internationally recognized workshop and keynote presenter.

Scott's positive, inspiring messages have changed countless lives and his insights have been applauded by Fortune 500 corporations, hospitals/rehab centers, associations and an audience at the United Nations.

Please join us at one of our FREE events, register below.

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News from the Paralysis Community
Check this box to receive free enews updates about the paralysis community, the latest SCI research and therapies, our advocacy efforts, and inspirational stories about everyday heroes living with paralysis.
        

Access-Able Travel SourceHi, we are Bill and Carol Randall and we live in Colorado. We have always liked to travel and like many of you don't get to do it enough. Carol has MS and uses a wheelchair or scooter. This has given us some first hand experience with unpleasant surprises and access problems. That's why we started Access-Able Travel Source. We are an information service! We are not travel agents, just travelers. We think we have come up with a way to help fellow travelers.

Assistive Technology Training Online Project The Assistive Technology Training Online Project (ATTO) provides information on AT applications that help students with disabilities learn in elementary classrooms.

Abledata: ComputersABLEDATA provides objective information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States. We serve the nation's disability, rehabilitation, and senior communities.

AbilityHub: Assistive Technology SolutionsInformation on adaptive equipment and alternative methods for accessing computers.

Access to RecreationOffers some interesting products that may come in handy during your travels.

Accessible Vans of America (AVA)AVA rents and sells full-size and lowered floor minivans.

The Adaptive Sports Center (ASC)A non-profit organization located in Colorado that provides year-round recreation activities for people with disabilities and their families.

Achilles Track Club Achilles is a worldwide organization, represented in sixty countries. Our mission is to enable people with all types of disabilities to participate in mainstream athletics, promote personal achievement, enhance self esteem, and lower barriers.

American Horticultural Therapy AssociationHorticultural therapy (HT) is not only an emerging profession, it is a time-proven practice. The therapeutic benefits of peaceful garden environments have been understood since ancient times. In the 19th century, Dr. Benjamin Rush, a signer of the Declaration of Independence and considered to be the "Father of American Psychiatry," reported that garden settings held curative effects for people with mental illness.

Dowling Community Garden: Building Accessible Raised-Bed GardensFunding for the wheelchair accessible beds was provided by the Longfellow Community Council Neighborhood Revitalization Program (NRP). NRP funds paid for the materials and all labor was provided by Dowling gardeners. If you are a wheelchair gardener or know a wheelchair gardener who would be interested in gardening at Dowling, please call the Dowling Community Garden voice mail at (651) 255-6607.

A Reeve Foundation Fact Sheet on Religion and People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Adjustment to SCI (PDF)

A Reeve Foundation Fact Sheet on Aging with SCI (PDF)

A Reeve Foundation Fact Sheet on Aquatic Therapy (PDF)

A Reeve Foundation Fact Sheet on Arts and Creativity (PDF)

A Reeve Foundation Fact Sheet on Assistive Technology - Computers (PDF)

A Reeve Foundation Fact Sheet on Cars and Driving (PDF)

A Reeve Foundation Fact Sheet on Children with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Gardening for People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Golf for People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Hunting for People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Nutrition and Weight (PDF)

A Reeve Foundation Fact Sheet on Medical Air Transportation (PDF)

A Reeve Foundation Fact Sheet on Parenting with a Disability (PDF)

A Reeve Foundation Fact Sheet on Sailing for People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Travel (PDF)

A Reeve Foundation Fact Sheet on SCI Autobiogs or Biogs (PDF)

A Reeve Foundation Fact Sheet on SCI Chat Rooms (PDF)

A Reeve Foundation Fact Sheet on SCI Research (PDF)

A Reeve Foundation Fact Sheet on SCI Tutorial 101 (PDF)

A Reeve Foundation Fact Sheet on SCI Videos (PDF)

A Reeve Foundation Fact Sheet on Fitness and Exercise (PDF)

A Reeve Foundation Fact Sheet on Brain and Spinal Cord Tumors (PDF)

A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF)

A Reeve Foundation Fact Sheet on FES Treadmill Information Sheet (PDF)

A Reeve Foundation Fact Sheet on FES Treadmill Information Sheet (PDF)

A Reeve Foundation Fact Sheet on Mindfullness (PDF)

A Reeve Foundation Fact Sheet on New Injury Top 10 Questions (PDF)

Arkansas Spinal Cord CommissionThe mission of the Arkansas Spinal Cord Commission is to administer a statewide program to identify and meet the unique and lifelong needs of people with spinal cord disabilities in the state.

Art Therapy StudioProvides therapeutic art programs in a variety of settings so people can benefit from the healing power of art.

Art Promote: Disabled ArtistsExplore thousands of art galleries, museums and artists from around the world. Browse by subject, medium, movement, nationality and more.

American Association of AdaptedSportWorks to enhance the health, independence and self-sufficiency of youths with physical disabilities by facilitating adapted sports programs in local communities, in cooperation with schools, parks and recreation, YMCA/YWCAs, hospitals, parents and other groups.

American Association of SCI Psychologists and Social WorkersPromote research to improve quality of care and works to improve skills and techniques of members.

The Association for Driver Rehabilitation Specialists (ADED)Certifies driver trainers who are experts in adaptive driving and vehicles.

Axis Dance CompanyPrepare to leave all your preconceptions at the door — AXIS Dance Company, one of the world's most acclaimed and innovative ensembles of performers with and without disabilities, will change the way you think about the possibilities of the human body forever.

Association of Foot and Mouth Painting ArtistsOffers financial support to develop talents of painters who are accepted.

AmtrakAmtrak enjoys a good reputation among travelers with disabilities, offers information on reservations, accessible coaches and sleeping accommodations, boarding, use of oxygen, etc.

Aquaticnet.comTherapists. Instructors. Managers. To all in the Aquatics industry. This is your single online clearinghouse of aquatic therapy and fitness information. Why re-create the (aquatic therapy) wheel? We are The Aquatic Therapy Command Center.

Blaze Sports501(c)(3) nonprofit organization that advances the lives of youth and adults with physical disability through sport and healthy lifestyles. BlazeSports provides sports training, competitions, summer camps and other sports and recreational opportunities for youth and adults with spinal cord injury, spina bifida, cerebral palsy, traumatic brain injury, muscular dystrophy, amputation, visual impairment or blindness as well as other physical disabilities.

Challenged AmericaThe Challenged America program is dedicated to introduce sailing as a therapeutic and rehabilitative enhancing activity to individuals with disabilities, their loved ones, and professionals in healthcare and rehabilitation.

Craig Hospital: SCI Health and WellnessWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.

Camera MouseThe Camera Mouse uses a standard USB camera to convert head and finger motions into computer mouse pointer movements.

CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.

Canadian & American Spinal Research OrganizationPromotes and supports funding research to ultimately find a cure for paralysis. Also publishes journal of latest research they fund. Call (800) 361-4004 or use the link above.

Canadian Paraplegic AssociationAssists people with spinal cord injuries and other disabilities to achieve individuality, self-reliance and full community participation. Call (613) 723-1033 or use the link above.

Craig HospitalWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.

The CyberlinkBrain Actuated Technologies has developed this unique, futuristic system enabling hands-free control of a mouse cursor to power video games and other electronic products. The Cyberlink device, reminicent of a science fiction gadget, utilizes a headband with sensors that detect electrical signals made from subtle facial muscle and eye movements as well as from brain wave activity.

Centers for Disease Control and Prevention (CDC)Features numerous articles and resources on fitness, nutrition and healthy living.

Caregiver.comOffers a directory of support groups for caregivers.

Clinical Trials: Ambulation ProgramsList of ambulation programs currently seeking volunteers.

Clinical Trials: Locomotor (treadmill) TrainingList of trials involving locomotor (treadmill) training.

Digi DriveAdapted vans for those with limited upper extremity function.

Emerging HorizonsLots of information in this accessible travel magazine covering news, resources and travel tips.

Environmental Traveling CompanionsOffers outdoor adventures.

dSi-ScottThis California based company manufactures a mechanical/hydraulic car system. Every joystick is custom made and vans are modified to fit each driver.

Dragon SystemsVoice activation at its finest, the Dragon Systems technology is used not only to operate laptops and pda's but can even control multimedia centers, navigation systems, mobile phones and much more.

Determined 2 HealProvides helpful information for the newly spinal cord injured.

Disabled DealerDisabled Dealer's mission is to bring people with disabilities and the elderly complete access to new and pre-owned adaptive equipment, services, resources, and events throughout the nation. They present their services and products through both a print magazine and a web site.

Disabled Sports USAOffers nationwide sports rehabilitation programs to anyone with a permanent physical disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. DSUSA, as a member of the U.S. Olympic Committee, is the governing body for winter sports for all athletes with disabilities, and for summer sports for amputee athletes. Nationwide chapter network of sports and rec programs.

Disabled Online: Arts & EntertainmentArts and Entertainment Web links are sites that offer ways for individuals with disabilities to display their artistic talents. These clubs and organizations provide opportunities using all kinds of creative and cultural tools to allow individuals to express their artistic side.

eHow: How to Make a Wheelchair/Scooter Accessible Raised Garden BedHow to build an accessible raised bed garden from inexpensive, easily obtained materials. This is a thoughtful, enriching and enabling gift for the elderly, disabled and arthritic individuals.

E Nasco: CelluGro™ Wheelchair Accessible Green Thumb Therapy GardenDesigned by a horticultural therapist, this makes it possible for anyone who may not be able to do traditional gardening to be active gardeners.

Inclusive Fitness CoalitionAddresses the policy, environmental and societal issues associated with the lack of access to physical activity among people with disabilities.

ILRU: RRTC on SCI: Exercise InformationThe ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field. It is a program of TIRR (The Institute for Rehabilitation and Research), a nationally recognized medical rehabilitation facility for persons with disabilities.

Federal Aviation Administration (FAA)Information on laws regarding air travel for persons with disabilities.

The Handicapped Scuba AssociationPromotes the physical and social well being of people with disabilities through the exhilarating sport of scuba diving.

Hand CyclingWhether for fitness, serious competition, or pure recreation, here's a sport that can be enjoyed by many and provide quite the "ride" at the same time.

High Hopes Head Injury ProgramThe High Hopes Head Injury Program was started in 1975, as a result of tough hard work and need of several families. This one-of-a-kind non-profit charitable organization was dedicated to the rehabilitation and retraining of their loved ones who had been devastated by traumatic head injuries.

Flaghouse: Gardening ProductsTo enhance the quality of life for all people, with resources for physical activity, recreation, therapy, and the development and support of life skills.

Friends Hospital: Adaptive Gardening to Meet Your Changing NeedsGardening is one of our most popular national pastimes. Horticulture can be enjoyed by almost everyone, whether young or old, weak or strong, able-bodied or handicapped. Gardening can be a vigorous activity or a sedentary one. As you grow older or your physical abilities change, there is no need for you to stop gardening. Gardens and tools may be modified to help ease stress and strain and allow you to continue to participate in one of the best leisure activities.

Gardener's Supply Co.Disability Opens New Doors for a Lifelong Gardener .

Infinitec: Enabling Gardens This section demonstrates accessible ways to garden, but please consult general gardening resources for help with soil preparation, planting, fertilizing, mulching, pruning, etc.

FacingDisability.comFacing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. I know that this is a lot to ask, but we'd be so grateful for your help. I'm looking forward to discussing this link with you, and to answering any questions you may have.

Lokomat at Sister KennyLokomat® is a robot-assisted treadmill that supports a patient in an upright position while moving the legs through a normal walking pattern – even if a patient is unable to move his or her legs independently.

laesieworks.com: Computer AccessIt's can be very important for a quadriplegia to have very good access to normal computer & software, even when laying flat in bed. This page is about how I do it. No, that dot is nothing religious! With that dot I control my computer.

Model Systems CentersA federally funded program of 14 specialty medical and/or rehabilitation centers across the US. The SCI Care System collects and submits acute, rehabilitation and follow-up (annual, long-term post-discharge) data on SCI patients who received care in the these centers following injury.

The Miami Project to Cure ParalysisThe Miami Project to Cure Paralysis has studied functional electrical systems for exercise.

Mobility International USAThe National Clearinghouse on Disability and Exchange has programs to increase the participation of people with disabilities in international exchange programs.

Lokomat Program at Rehabilitation Institute of ChicagoThe Rehabilitation Institute of Chicago (RIC) provides robot-assisted walking therapy using the Lokomat® to help people improve their ability to walk after disability caused by brain and spinal cord injuries, stroke or neurological and orthopedic conditions.

The National Spinal Cord Injury Statistical Center (NSCISC)NSCISC supervises and directs the collection, management and analysis of the world's largest spinal cord injury database. Headquartered at the University of Alabama, Birmingham.

National Rehabilitation Information Center for Independence (NARIC)NARIC offers a range of services, from quick information and referral to extensive database searches of the latest disability and rehabilitation research. They also offer a number of publications, including directories, guides and statistical reports.

The National Center on Physical Activity and Disability (NCPAD)Resources promoting physical activity for people, and for health, fitness and exercise professionals.

National Wheelchair Basketball AssociationBasketball is perhaps the oldest organized sport for athletes in wheelchairs. The game is fast and fun, and played in dozens of cities across the U.S.

The National Center on AccessibilityNSCD provides recreation for children and adults with disabilities. In addition to recreational downhill and cross-country skiing, snowboarding and snowshoeing, NSCD provides year-round competition training to ski racers with disabilities. Summer recreation opportunities include biking, hiking, in-line skating, sailing, therapeutic horseback riding, white water rafting, baseball, fishing, rock climbing for the blind, and camping.

National Mobility Equipment Dealers Association (NMEDA)A trade group of companies that sell adaptive driving equipment.

National Resource Center for Parents with DisabilitiesA deep resource on childbirth and parenting, adaptive equipment for childcare, networking and support groups

National Spinal Cord Injury Association (NSCIA)At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education.

New York Online Access to Health (N.O.A.H)Offers information and links related to spinal cord and head injury treatment, rehabilitation, and children. Materials in Spanish.

Neuroscience for KidsOffers an understandable look at the segments of the spinal cord; from University of Washington.

NJ Self-Help Group ClearinghouseEnables people to help themselves with self-help groups.

Origin Instruments CorporationThis company manufactures The HeadMouse Extreme which translates head motions into computer mouse pointer movements. They also offer other helpful accessories such as soft and smart type keyboards, a sip and puff switch and a dragger utility for manipulating the left and right buttons of the standard mouse.

Open Door Art StudioColumbus Center for Human Services, Inc. prioritizes health, safety, personal goals, and promotes positive community roles for individuals with disabilities.

Paralyzed Veterans of America (PVA): Spinal Cord InjuryFor more detailed information on the clinical practice guidelines on respiratory management with spinal cord injury you can request booklets from the Paralyzed Veterans of America. These booklets also provide guidelines on proper weaning from a ventilator.

Piers Park Sailing CenterA non-profit community sailing center that uses Boston Harbor and the seas beyond to provide year-round recreational, educational, and personal growth opportunities for people of all ages and abilities!

Prentke Romich CompanyFor complete computer control, visit this site which offers just about every possible device for accessibility from specialized keyboards to the headmouse.

Parenting with Disabilities OnlineProvides information, support and resources to parents with disabilities.

Parents On WheelsSite is dedicated to parents who use wheelchairs.

Quad-JoyThis hands-free system was developed by a quadriplegic who, fueled by his own needs, figured a way to operate his computer using a joystick controlled mouse. The mouse works by sip and puff.

The President’s Council on Physical Fitness and SportsInformation on making exercise an important part of your life

Quad RugbyFormerly known as murderball, Quad Rugby is a game for quads who can push a chair. Fast, rough and very competitive.

Parents with Disabilities OnlineProvide information and resources to parents with disabilities.

RT 300 FES BikeRTI designs and markets innovative electrical stimulation ergometers to help people with a neurological impairment achieve their full potential.

Reeve Foundation NeuroRecovery Network (NRN)The Reeve Foundation NRN is a perfect example of basic science being translated to the clinic and changing lives. Funded by the Reeve Foundation through a cooperative agreement with the Centers for Disease Control and Prevention, it is a network of cutting-edge rehabilitation centers whose staffs have been trained in intensive activity-based treatments.

SpineUniverseAt SpineUniverse our goal is to help patients and their families understand their back or neck problems. In clear, straightforward language we aim to explain what causes spinal problems and how they can be treated. We are committed to ensure that all of the information we present is trustworthy and of the highest quality.

Spinal Cord Injury Information NetworkThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.

The Society for Accessible Travel & Hospitality (SATH)A clearinghouse for accessible tourism information, dedicated to a barrier-free environment throughout the travel and tourism industry.

ScootAround IncOffers scooter and wheelchair rentals in dozens of North America destinations

Sprint AquaticsOver the years Rothhammer International, commonly referred to as Sprint Aquatics, has been designing and patenting products that continue to revolutionize the aquatic industry. As the current owner, Laurel Maas's primary goal for Sprint Rothhammer was and continues to be creating products that meet the needs of those who use the pool as a form of physical therapy, training, and recreation.

Special Needs GroupGlobal provider of special needs equipment rentals including mobility scooters, wheelchairs, powerchairs, oxygen, patient lifts, hospital beds and more. Equipment is delivered to cruises, hotels, convention centers and other requested locations.

State Respite CoalitionsThe Chapel Hill Training-Outreach Project was established in 1969 with funding from the Federal government as part of our nation's earliest attempts to provide educational services to young children with disabilities.

The Talking DesktopHands-free computer operation becomes possible with this voice activated software. Through speech recognition, the talking desktop will guide you through virtually any computer function.

Through the Looking GlassThe purpose of the National Parent-to-Parent Network at Through the Looking Glass is to connect parents, as well as those who are considering becoming parents, with others who may have shared similar experiences or faced common barriers as parents with disabilities.

TrackerProThe TrackerPro technology allows for cursor control to function through head pointing using a unit which is located on the top of the computer. The unit tracks head movements by the user and then converts the motions into computer mouse operations.

University of Alabama at BirminghamOffers an information sheet (Info Sheet #11) on bladder care and management.

United Spinal AssociationOur mission is to improve the quality of life of all Americans living with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, Lou Gehrig’s Disease (ALS), and post polio.

The Uppertone SystemIntroduced in 1990 by a C4-C5 quadriplegic, the Uppertone System allows people with C4-C5 paralysis and below to do upper body exercises necessary for rehabilitation and maintenance, without assistance.

The United States Tennis AssociationTennis has been adapted for the wheelchair player: the ball can bounce two times. This allows chair-players to give standup players a run for the their money. The sport is growing fast and is very competitive at the elite level. Click on "community tennis."

U.S. Department of Veterans Affairs Fact Sheet: VA and Spinal Cord InjuryOf the more than 250,000 Americans with serious spinal cord injuries and disorders, about 42,000 are veterans eligible for medical care and other benefits from the Department of Veterans Affairs (VA).

World T.E.A.M. SportsUnites people with and without disabilities through unique athletic events taking place all over the world.

Wheelchair Getaways: Wheelchair and Scooter Accessible Van RentalRental facilities are located nationwide.

VSACreates learning opportunities through the arts for people with disabilities.

Wheelers Accessible Van RentalsRents wheelchair and scooter accessible transportation by the day, week, month and longer.

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The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.

The information provided in the Paralysis Resource Center was supported by Cooperative Agreement number 1U59DD000838-01 from the Centers for Disease Control and Prevention (CDC). Its contents are solely the responsibility of the Reeve Foundation and do not necessarily represent the official views of the CDC.