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Spinal Cord Injury Paralysis Resource Center

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Paid in Full

by Donna Lowich

Donna and her son, Jeff

Donna and her son Jeff

Hard as it was to believe, my son, Jeff, was soon to graduate from college! It still is amazing to me that twenty-two years can slip by that quickly. Time slipped by quickly as I watched him grow and mature as he assisted me before, during and after two spinal cord surgeries that left me paralyzed from the shoulders down in December 1985 when he was four-years-old.

One Friday night in March of 2003, my husband, Walter and I called Jeff to see if he was available to meet us at a restaurant for breakfast the next morning. We wanted to surprise him with our plans to buy him a car as a graduation gift!

Jeff had no plans for the morning, so we planned to drive the two hours to his college in Pennsylvania.

Once in the restaurant, all plans were off. I was so excited, I could hardly contain myself. Before we even looked at the menu, I told Jeff that we had decided to buy him a car as a graduation gift. "Now, you know," I warned, "we can't afford a brand-new car, but you're going to need something a little more reliable." Jeff was driving a fifteen-year-old car at the time.

Jeff looked at us, completely shocked. He shook his head, no. "I feel as though I should be buying a car for you guys. You have always done so much for me and have always been there for me. I owe you so much already. But, thanks."

By that time, I was about halfway through my scrambled eggs. I put down my fork and said to him, "Jeff, you have done more for us than we could ever do for you. Do you remember the time you..." and we began to reminisce about times past. The time may have passed, but the memories lingered, fresh and clear.

In November 1998, when Jeff was a junior in high school, I was having more than the usual amount of trouble while working in a large corporation. On this particular day, some people from our department but who were located at another building had come over in the late morning after a meeting. I left the office for a few minutes; when I returned, everyone was gone. They had gone to lunch but had waited for me to leave, I believe, so that they could leave without me. I was having issues with one person at the time; now, it looked like no one was willing to support me, someone who needed extra assistance due to my spinal surgeries all those years before. I was shocked as this had never happened before; I had always been included in all of our outings in years past.

I cried all the way home that afternoon. I came into the house, and sat at my kitchen table. I lay my head on my folded arms, and let the flood of emotions burst forth, emotions that had built up in recent months.

I don't remember hearing Jeff come in; he didn't speak at all. I still had my head on my arms when I felt the warmth of his hand encircling mine. I looked up at him, and told him what had happened. He listened to me then just as he always does, with an open heart. At that moment, I knew that the only important thing was that my family loved me and that I was important to them. How others feel and think are out of my control.

Imagine! He did all that with a squeeze of his hand and a few thoughtful words.

I told Jeff on that Saturday morning, "That's pretty impressive stuff for a seventeen year old."

There were other stories, such as Jeff saving money and ordering Mother's Day baskets through his school, from the time he was in second grade, all the way through middle school. He loved to get up early, wait with the basket on his lap and surprise me with it when I came downstairs.

When he was still in preschool, and just learning to print, Walter and I received the following note in block letters, written in red crayon: "Hapy Navrsry. I wsh I hd mny to by you a prsnt." (He was still learning vowels.)

Jeff, I'd say this 'debt' can be marked "Paid in Full".

Editor's note: Donna Lowich is an;Information Specialist in the Foundation's Paralysis Resource Center. Donna was spinal cord injured over twenty years ago and has since dedicated her life to helping others living with paralysis.

A Reeve Foundation Fact Sheet on Religion and People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Adjustment to SCI (PDF)

A Reeve Foundation Fact Sheet on Aging with SCI (PDF)

A Reeve Foundation Fact Sheet on Children with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Parenting with a Disability (PDF)

A Reeve Foundation Fact Sheet on SCI Autobiogs or Biogs (PDF)

A Reeve Foundation Fact Sheet on SCI Chat Rooms (PDF)

A Reeve Foundation Fact Sheet on SCI Research (PDF)

A Reeve Foundation Fact Sheet on SCI Tutorial 101 (PDF)

A Reeve Foundation Fact Sheet on SCI Videos (PDF)

A Reeve Foundation Fact Sheet on Brain and Spinal Cord Tumors (PDF)

A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF)

A Reeve Foundation Fact Sheet on Mindfullness (PDF)

A Reeve Foundation Fact Sheet on New Injury Top 10 Questions (PDF)

A Reeve Foundation Fact Sheet on Umbilical Cord Blood Banking (PDF)

Arkansas Spinal Cord CommissionThe mission of the Arkansas Spinal Cord Commission is to administer a statewide program to identify and meet the unique and lifelong needs of people with spinal cord disabilities in the state.

The American Camping AssociationAccredits camping facilities, including dozens across the U.S. that cater to kids with paralysis, to assure a safe and healthy experience. Click above to locate a camp.

CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.

Canadian & American Spinal Research OrganizationPromotes and supports funding research to ultimately find a cure for paralysis. Also publishes journal of latest research they fund. Call (800) 361-4004 or use the link above.

Canadian Paraplegic AssociationAssists people with spinal cord injuries and other disabilities to achieve individuality, self-reliance and full community participation. Call (613) 723-1033 or use the link above.

Children With DisabilitiesOffers information about advocacy, education, employment, health, housing, recreation, technical assistance, and transportation covering a broad array of developmental, physical, and emotional disabilities.

Craig HospitalWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.

The Council for Exceptional ChildrenDedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.

Children's Neurobiological SolutionsChildren's Neurobiological Solutions, Inc. (CNS) is a national, non-profit organization supporting collaborative research to advance treatments and therapies for children with neurodevelopmental abnormalities, birth injuries to the nervous system, and related neurological problems. CNS offers families and health care providers information and educational resources.

Center for Research on Women with Disabilities (CROWD)Dept of Physical Medicine and Rehab Services at Baylor College of Medicine.

Exceptional ParentThe magazine often runs a column on dentistry for people with disabilities.

DREAMMS for KidsDevelopmental Research for the Effective Advancement of Memory and Motor Skills specializes in assistive technology for students and youth with special needs in schools, homes, and the community.

Determined 2 HealProvides helpful information for the newly spinal cord injured.

The Fathers NetworkSupports men who have children with special needs through support and mentoring programs, technical assistance, national conferences and information resources.

Internet Resources for Special ChildrenProvides information to parents, family members, caregivers, friends, educators, and medical professionals who provide for children with disabilities and other health related disorders.

Getting Benefits for KidsThis link illustrates the kinds of Social Security and Supplemental Security Income (SSI) benefits a child with a disability might be eligible for and explains how we evaluate disability claims for children.

Indian Health ServiceU.S. Dept. of Health & Human Services.

FacingDisability.comFacing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. I know that this is a lot to ask, but we'd be so grateful for your help. I'm looking forward to discussing this link with you, and to answering any questions you may have.

Model Systems CentersA federally funded program of 14 specialty medical and/or rehabilitation centers across the US. The SCI Care System collects and submits acute, rehabilitation and follow-up (annual, long-term post-discharge) data on SCI patients who received care in the these centers following injury.

The Miami Project to Cure ParalysisThe Miami Project to Cure Paralysis has studied functional electrical systems for exercise.

Mobile WomenArticles, resources, online forum for women with disabilities especially wheelchair users.

KidsHealthOffers reliable health information about children from before birth through adolescence, with separate areas for kids, teens, and parents.

Kids MoveDevoted to pediatric movement disorders with up-to-date information about the recognition, assessment, treatment, and support.

National Information Center for Children and Youth with Disabilities (NICHCY)Provides information on disabilities and disability-related issues for families, educators, and other professionals; special focus is children and youth (birth to age 22).

The National Spinal Cord Injury Statistical Center (NSCISC)NSCISC supervises and directs the collection, management and analysis of the world's largest spinal cord injury database. Headquartered at the University of Alabama, Birmingham.

National Resource Center for Parents with DisabilitiesA deep resource on childbirth and parenting, adaptive equipment for childcare, networking and support groups

National Spinal Cord Injury Association (NSCIA)At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education.

New York Online Access to Health (N.O.A.H)Offers information and links related to spinal cord and head injury treatment, rehabilitation, and children. Materials in Spanish.

Neuroscience for KidsOffers an understandable look at the segments of the spinal cord; from University of Washington.

The Office of Special Education and Rehabilitative ServicesThe Office of Special Education and Rehabilitative Services (OSERS) is committed to improving results and outcomes for people with disabilities of all ages.

Our-KidsAn online family of parents, caregivers and others working with children with physical and/or mental disabilities.

Paralyzed Veterans of America (PVA): Spinal Cord InjuryFor more detailed information on the clinical practice guidelines on respiratory management with spinal cord injury you can request booklets from the Paralyzed Veterans of America. These booklets also provide guidelines on proper weaning from a ventilator.

Parenting with Disabilities OnlineProvides information, support and resources to parents with disabilities.

Parents On WheelsSite is dedicated to parents who use wheelchairs.

Parents with Disabilities OnlineProvide information and resources to parents with disabilities.

SpineUniverseAt SpineUniverse our goal is to help patients and their families understand their back or neck problems. In clear, straightforward language we aim to explain what causes spinal problems and how they can be treated. We are committed to ensure that all of the information we present is trustworthy and of the highest quality.

Spinal Cord Injury Information NetworkThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.

The Shriners HospitalsThe Shriners have three facilities in the U.S. to provide expert, no-cost care to children under 18 with spinal cord injuries.

State Respite CoalitionsThe Chapel Hill Training-Outreach Project was established in 1969 with funding from the Federal government as part of our nation's earliest attempts to provide educational services to young children with disabilities.

Through the Looking GlassThe purpose of the National Parent-to-Parent Network at Through the Looking Glass is to connect parents, as well as those who are considering becoming parents, with others who may have shared similar experiences or faced common barriers as parents with disabilities.

United Spinal AssociationOur mission is to improve the quality of life of all Americans living with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, Lou Gehrig’s Disease (ALS), and post polio.

U.S. Department of Veterans Affairs Fact Sheet: VA and Spinal Cord InjuryOf the more than 250,000 Americans with serious spinal cord injuries and disorders, about 42,000 are veterans eligible for medical care and other benefits from the Department of Veterans Affairs (VA).

Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.

Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.

Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.

Library Books and VideosFind resources within the PRC library catalog.

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The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.

The information provided in the Paralysis Resource Center was supported by Cooperative Agreement number 1U59DD000838-01 from the Centers for Disease Control and Prevention (CDC). Its contents are solely the responsibility of the Reeve Foundation and do not necessarily represent the official views of the CDC.