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Spinal Cord Injury Paralysis Resource Center

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Living Life

Living Life to the Fullest with TM

The stories of caregivers, family members, and people living with paralysis of all ages.

Access-Able Travel SourceHi, we are Bill and Carol Randall and we live in Colorado. We have always liked to travel and like many of you don't get to do it enough. Carol has MS and uses a wheelchair or scooter. This has given us some first hand experience with unpleasant surprises and access problems. That's why we started Access-Able Travel Source. We are an information service! We are not travel agents, just travelers. We think we have come up with a way to help fellow travelers.

Access to RecreationOffers some interesting products that may come in handy during your travels.

The Adaptive Sports Center (ASC)A non-profit organization located in Colorado that provides year-round recreation activities for people with disabilities and their families.

Achilles Track Club Achilles is a worldwide organization, represented in sixty countries. Our mission is to enable people with all types of disabilities to participate in mainstream athletics, promote personal achievement, enhance self esteem, and lower barriers.

American Horticultural Therapy AssociationHorticultural therapy (HT) is not only an emerging profession, it is a time-proven practice. The therapeutic benefits of peaceful garden environments have been understood since ancient times. In the 19th century, Dr. Benjamin Rush, a signer of the Declaration of Independence and considered to be the "Father of American Psychiatry," reported that garden settings held curative effects for people with mental illness.

Dowling Community Garden: Building Accessible Raised-Bed GardensFunding for the wheelchair accessible beds was provided by the Longfellow Community Council Neighborhood Revitalization Program (NRP). NRP funds paid for the materials and all labor was provided by Dowling gardeners. If you are a wheelchair gardener or know a wheelchair gardener who would be interested in gardening at Dowling, please call the Dowling Community Garden voice mail at (651) 255-6607.

A Reeve Foundation Fact Sheet on Pediatric SCI (PDF)

A Reeve Foundation Fact Sheet on Religion and People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Adjustment to SCI (PDF)

A Reeve Foundation Fact Sheet on Aging with SCI (PDF)

A Reeve Foundation Fact Sheet on Caregivers PCAs Respite (PDF)

A Reeve Foundation Fact Sheet on Children with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Gardening for People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Service Animals (PDF)

A Reeve Foundation Fact Sheet on Golf for People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Hunting for People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Nutrition and Weight (PDF)

A Reeve Foundation Fact Sheet on Medical Air Transportation (PDF)

A Reeve Foundation Fact Sheet on Medical Air Transportation (PDF)(Spanish)

A Reeve Foundation Fact Sheet on Parenting with a Disability (PDF)

A Reeve Foundation Fact Sheet on Sailing for People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Sports and Competition (PDF)

A Reeve Foundation Fact Sheet on Travel (PDF)

A Reeve Foundation Fact Sheet on SCI Autobiogs or Biogs (PDF)

A Reeve Foundation Fact Sheet on SCI Chat Rooms (PDF)

A Reeve Foundation Fact Sheet on SCI Research (PDF)

A Reeve Foundation Fact Sheet on SCI Tutorial 101 (PDF)

A Reeve Foundation Fact Sheet on SCI Videos (PDF)

A Reeve Foundation Fact Sheet on Fitness and Exercise (PDF)

A Reeve Foundation Fact Sheet on Brain and Spinal Cord Tumors (PDF)

A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF) - English

A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF) - Spanish

A Reeve Foundation Fact Sheet on FES Treadmill Information Sheet (PDF)

A Reeve Foundation Fact Sheet on Mindfullness (PDF)

A Reeve Foundation Fact Sheet on New Injury Top 10 Questions (PDF)

Arkansas Spinal Cord CommissionThe mission of the Arkansas Spinal Cord Commission is to administer a statewide program to identify and meet the unique and lifelong needs of people with spinal cord disabilities in the state.

The American Camping AssociationAccredits camping facilities, including dozens across the U.S. that cater to kids with paralysis, to assure a safe and healthy experience. Click above to locate a camp.

American Association of AdaptedSportWorks to enhance the health, independence and self-sufficiency of youths with physical disabilities by facilitating adapted sports programs in local communities, in cooperation with schools, parks and recreation, YMCA/YWCAs, hospitals, parents and other groups.

Assistance Dogs InternationalA coalition of not for profit organizations that train and place assistance dogs.

AmtrakAmtrak enjoys a good reputation among travelers with disabilities, offers information on reservations, accessible coaches and sleeping accommodations, boarding, use of oxygen, etc.

Blaze Sports501(c)(3) nonprofit organization that advances the lives of youth and adults with physical disability through sport and healthy lifestyles. BlazeSports provides sports training, competitions, summer camps and other sports and recreational opportunities for youth and adults with spinal cord injury, spina bifida, cerebral palsy, traumatic brain injury, muscular dystrophy, amputation, visual impairment or blindness as well as other physical disabilities.

Challenged AmericaThe Challenged America program is dedicated to introduce sailing as a therapeutic and rehabilitative enhancing activity to individuals with disabilities, their loved ones, and professionals in healthcare and rehabilitation.

Craig Hospital: SCI Health and WellnessWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.

CaringRoad.comCaringRoad.com is dedicated to helping family caregivers obtain information, locate services and find support so they can make informed decisions about the care of their loved ones. An online community of family caregivers.

CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.

Canadian & American Spinal Research OrganizationPromotes and supports funding research to ultimately find a cure for paralysis. Also publishes journal of latest research they fund. Call (800) 361-4004 or use the link above.

Canadian Paraplegic AssociationAssists people with spinal cord injuries and other disabilities to achieve individuality, self-reliance and full community participation. Call (613) 723-1033 or use the link above.

Children With DisabilitiesOffers information about advocacy, education, employment, health, housing, recreation, technical assistance, and transportation covering a broad array of developmental, physical, and emotional disabilities.

Craig HospitalWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.

The Council for Exceptional ChildrenDedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.

Canine Companions for IndependenceA national network of highly-trained assistance dogs and ongoing support.

Children's Neurobiological SolutionsChildren's Neurobiological Solutions, Inc. (CNS) is a national, non-profit organization supporting collaborative research to advance treatments and therapies for children with neurodevelopmental abnormalities, birth injuries to the nervous system, and related neurological problems. CNS offers families and health care providers information and educational resources.

Centers for Disease Control and Prevention (CDC)Features numerous articles and resources on fitness, nutrition and healthy living.

Caregiver.comOffers a directory of support groups for caregivers.

The Caregiver InitiativeA project of the Johnson & Johnson Consumer Products Company to help family caregivers provide care to their loved ones and reduce their own stress. Includes information on caregiver needs, and training materials for family caregivers.

Exceptional ParentThe magazine often runs a column on dentistry for people with disabilities.

Emerging HorizonsLots of information in this accessible travel magazine covering news, resources and travel tips.

Environmental Traveling CompanionsOffers outdoor adventures.

DREAMMS for KidsDevelopmental Research for the Effective Advancement of Memory and Motor Skills specializes in assistive technology for students and youth with special needs in schools, homes, and the community.

Determined 2 HealProvides helpful information for the newly spinal cord injured.

Disabled Sports USAOffers nationwide sports rehabilitation programs to anyone with a permanent physical disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. DSUSA, as a member of the U.S. Olympic Committee, is the governing body for winter sports for all athletes with disabilities, and for summer sports for amputee athletes. Nationwide chapter network of sports and rec programs.

eHow: How to Make a Wheelchair/Scooter Accessible Raised Garden BedHow to build an accessible raised bed garden from inexpensive, easily obtained materials. This is a thoughtful, enriching and enabling gift for the elderly, disabled and arthritic individuals.

E Nasco: CelluGro™ Wheelchair Accessible Green Thumb Therapy GardenDesigned by a horticultural therapist, this makes it possible for anyone who may not be able to do traditional gardening to be active gardeners.

Inclusive Fitness CoalitionAddresses the policy, environmental and societal issues associated with the lack of access to physical activity among people with disabilities.

ILRU: RRTC on SCI: Exercise InformationThe ILRU (Independent Living Research Utilization) program is a national center for information, training, research, and technical assistance in independent living. Its goal is to expand the body of knowledge in independent living and to improve utilization of results of research programs and demonstration projects in this field. It is a program of TIRR (The Institute for Rehabilitation and Research), a nationally recognized medical rehabilitation facility for persons with disabilities.

Family Caregiver AllianceCaregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers.

Family Caregiving: It's Not All Up to YouNFCA and the National Alliance for Caregiving launched a public education campaign to give information and support to caregivers.

The Fathers NetworkSupports men who have children with special needs through support and mentoring programs, technical assistance, national conferences and information resources.

Helping HandsProvide highly trained monkeys to assist people with severe spinal cord injuries or mobility-impairments.

Federal Aviation Administration (FAA)Information on laws regarding air travel for persons with disabilities.

The Handicapped Scuba AssociationPromotes the physical and social well being of people with disabilities through the exhilarating sport of scuba diving.

Hand CyclingWhether for fitness, serious competition, or pure recreation, here's a sport that can be enjoyed by many and provide quite the "ride" at the same time.

Internet Resources for Special ChildrenProvides information to parents, family members, caregivers, friends, educators, and medical professionals who provide for children with disabilities and other health related disorders.

Getting Benefits for KidsThis link illustrates the kinds of Social Security and Supplemental Security Income (SSI) benefits a child with a disability might be eligible for and explains how we evaluate disability claims for children.

Indian Health ServiceU.S. Dept. of Health & Human Services.

International Paralympic CommitteeThe International Paralympic Committee (IPC) is the global governing body of the Paralympic Movement. The IPC organizes the Summer and Winter Paralympic Games, and serves as the International Federation for nine sports, for which it supervises and co-ordinates the World Championships and other competitions.

Flaghouse: Gardening ProductsTo enhance the quality of life for all people, with resources for physical activity, recreation, therapy, and the development and support of life skills.

Friends Hospital: Adaptive Gardening to Meet Your Changing NeedsGardening is one of our most popular national pastimes. Horticulture can be enjoyed by almost everyone, whether young or old, weak or strong, able-bodied or handicapped. Gardening can be a vigorous activity or a sedentary one. As you grow older or your physical abilities change, there is no need for you to stop gardening. Gardens and tools may be modified to help ease stress and strain and allow you to continue to participate in one of the best leisure activities.

Gardener's Supply Co.Disability Opens New Doors for a Lifelong Gardener .

Infinitec: Enabling Gardens This section demonstrates accessible ways to garden, but please consult general gardening resources for help with soil preparation, planting, fertilizing, mulching, pruning, etc.

FacingDisability.comFacing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. I know that this is a lot to ask, but we'd be so grateful for your help. I'm looking forward to discussing this link with you, and to answering any questions you may have.

Kosair Charities Center for Pediatric NeuroRecovery at the University of LouisvilleThe Kosair Charities Center for Pediatric NeuroRecovery provides activity-based therapies to promote recovery from neurologic injury in children; conducts research to enhance recovery; and trains families, practitioners and scientists to maximize recovery and improve the quality of life for children and their families. In short, we are here to help kids kick paralysis and through science have every reason to hope.

Model Systems CentersA federally funded program of 14 specialty medical and/or rehabilitation centers across the US. The SCI Care System collects and submits acute, rehabilitation and follow-up (annual, long-term post-discharge) data on SCI patients who received care in the these centers following injury.

The Miami Project to Cure ParalysisThe Miami Project to Cure Paralysis has studied functional electrical systems for exercise.

Mobility International USAThe National Clearinghouse on Disability and Exchange has programs to increase the participation of people with disabilities in international exchange programs.

Life Rolls OnLRO is the story of able-bodied individuals, working in concert with those with spinal cord injury, to motivate each other with the inspirational message of achievement in the face of extreme adversity. Life Rolls On utilizes action sports through our flagship program, They Will Surf Again, which pushes the boundary of possibility for those with spinal cord injury (SCI).

Loving Paws Assistance DogsSpecializes in placing assistance dogs with children who are spinal cord injured as well as children with Muscular Dystrophy, Cerebral Palsy, and Spina Bifida.

KidsHealthOffers reliable health information about children from before birth through adolescence, with separate areas for kids, teens, and parents.

Kids MoveDevoted to pediatric movement disorders with up-to-date information about the recognition, assessment, treatment, and support.

National Family Caregiver Association (NFCA)The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

National Information Center for Children and Youth with Disabilities (NICHCY)Provides information on disabilities and disability-related issues for families, educators, and other professionals; special focus is children and youth (birth to age 22).

The National Spinal Cord Injury Statistical Center (NSCISC)NSCISC supervises and directs the collection, management and analysis of the world's largest spinal cord injury database. Headquartered at the University of Alabama, Birmingham.

The National Center on Physical Activity and Disability (NCPAD)Resources promoting physical activity for people, and for health, fitness and exercise professionals.

National Wheelchair Basketball AssociationBasketball is perhaps the oldest organized sport for athletes in wheelchairs. The game is fast and fun, and played in dozens of cities across the U.S.

The National Center on AccessibilityNSCD provides recreation for children and adults with disabilities. In addition to recreational downhill and cross-country skiing, snowboarding and snowshoeing, NSCD provides year-round competition training to ski racers with disabilities. Summer recreation opportunities include biking, hiking, in-line skating, sailing, therapeutic horseback riding, white water rafting, baseball, fishing, rock climbing for the blind, and camping.

National Resource Center for Parents with DisabilitiesA deep resource on childbirth and parenting, adaptive equipment for childcare, networking and support groups

National Spinal Cord Injury Association (NSCIA)At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education.

National Alliance for CaregivingThe Alliance was created to conduct research, do policy analysis, develop national programs, increase public awareness of family care giving issues, work to strengthen state and local care giving coalitions, and represent the US care giving community internationally.

New York Online Access to Health (N.O.A.H)Offers information and links related to spinal cord and head injury treatment, rehabilitation, and children. Materials in Spanish.

Neuroscience for KidsOffers an understandable look at the segments of the spinal cord; from University of Washington.

The Office of Special Education and Rehabilitative ServicesThe Office of Special Education and Rehabilitative Services (OSERS) is committed to improving results and outcomes for people with disabilities of all ages.

Our-KidsAn online family of parents, caregivers and others working with children with physical and/or mental disabilities.

Owner Trained Assistance DogsAn email discussion list for those who train their own assistance dogs.

Paralyzed Veterans of America, in support of The Consortium for Spinal Cord Medicine, offers authoritative clinical practice guidelines for bladder management. Consumer guides are available to download.

Piers Park Sailing CenterA non-profit community sailing center that uses Boston Harbor and the seas beyond to provide year-round recreational, educational, and personal growth opportunities for people of all ages and abilities!

Parenting with Disabilities OnlineProvides information, support and resources to parents with disabilities.

Parents On WheelsSite is dedicated to parents who use wheelchairs.

The President’s Council on Physical Fitness and SportsInformation on making exercise an important part of your life

Quad RugbyFormerly known as murderball, Quad Rugby is a game for quads who can push a chair. Fast, rough and very competitive.

Parents with Disabilities OnlineProvide information and resources to parents with disabilities.

Red Cross Family Caregiving ResourcesInformation for caregivers.

SpineUniverseAt SpineUniverse our goal is to help patients and their families understand their back or neck problems. In clear, straightforward language we aim to explain what causes spinal problems and how they can be treated. We are committed to ensure that all of the information we present is trustworthy and of the highest quality.

Spinal Cord Injury CaregiversYahoo Internet Forum is a place to share information and to support other caregivers who are caring for people with SCI.

Spinal Cord Injury Information NetworkThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.

The Society for Accessible Travel & Hospitality (SATH)A clearinghouse for accessible tourism information, dedicated to a barrier-free environment throughout the travel and tourism industry.

ScootAround IncOffers scooter and wheelchair rentals in dozens of North America destinations

The Shriners HospitalsThe Shriners have three facilities in the U.S. to provide expert, no-cost care to children under 18 with spinal cord injuries.

Special Needs GroupGlobal provider of special needs equipment rentals including mobility scooters, wheelchairs, powerchairs, oxygen, patient lifts, hospital beds and more. Equipment is delivered to cruises, hotels, convention centers and other requested locations.

State Respite CoalitionsThe Chapel Hill Training-Outreach Project was established in 1969 with funding from the Federal government as part of our nation's earliest attempts to provide educational services to young children with disabilities.

Through the Looking GlassThe purpose of the National Parent-to-Parent Network at Through the Looking Glass is to connect parents, as well as those who are considering becoming parents, with others who may have shared similar experiences or faced common barriers as parents with disabilities.

Top DogOffers assistance in training your own dog to be a service dog. They sell a book and video on the topic also.

United Spinal AssociationOur mission is to improve the quality of life of all Americans living with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, Lou Gehrig’s Disease (ALS), and post polio.

The Uppertone SystemIntroduced in 1990 by a C4-C5 quadriplegic, the Uppertone System allows people with C4-C5 paralysis and below to do upper body exercises necessary for rehabilitation and maintenance, without assistance.

The United States Tennis AssociationTennis has been adapted for the wheelchair player: the ball can bounce two times. This allows chair-players to give standup players a run for the their money. The sport is growing fast and is very competitive at the elite level. Click on "community tennis."

U.S. ParalympicsA division of the U.S. Olympic Committee, it is dedicated to becoming the world leader in the Paralympic sports movement and promoting excellence in the lives of people with physical disabilities through education, sports programs and partnerships with community organizations, medical facilities and government agencies.

U.S. Department of Veterans Affairs Fact Sheet: VA and Spinal Cord InjuryOf the more than 250,000 Americans with serious spinal cord injuries and disorders, about 42,000 are veterans eligible for medical care and other benefits from the Department of Veterans Affairs (VA).

Well Spouse AssociationA national, not for profit membership organization that gives support to wives, husbands, and partners of the chronically ill and/or disabled. Through information and support groups, the organization address issues common to family caregivers: anger, guilt, fear, isolation, grief, and financial threat.

World T.E.A.M. SportsUnites people with and without disabilities through unique athletic events taking place all over the world.

Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.

Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.

Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.

Library Books and VideosFind resources within the PRC library catalog.

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The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.

This project was supported, in part by grant number 90PR3001, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.