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Spinal Cord Injury Paralysis Resource Center

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Reeve Foundation Peer and Family Support Program

Support Staff

Bill Cawley  

Bill Cawley
Manager, Peer & Family Support Program

I started working at the Reeve Foundation in 2009. I am currently the Manager of the Peer & Family Support Program. I am proud to work on such an important program and feel fortunate to work with a dedicated group of regional coordinators and peer mentors across the country.

What has always drawn me to the Reeve Foundation is the tagline of "Today's Care. Tomorrow's Cure." I believe there will be a cure for paralysis one day, but until then, there is a lot of living to do. I graduated from Penn State in 1990 and after graduated I spent most of my professional career in financial services and banking. I am a c6-c7 quadriplegic after a diving injury in 1992; since then I continued working, got married, and have four amazing children.

Rebecca Sultzbaugh  

Rebecca Sultzbaugh
Operations Manager, Peer & Family Support Program
Rebecca began her career with the Reeve Foundation (then the American Paralysis Association) in 1995, when she worked for a year as the front desk receptionist and development assistant. She came on board just as Christopher was joining the APA, and experienced firsthand the excitement and impact generated by his commitment to SCI research and the disability community.

She left the Foundation in 1996 to pursue a Master of Social Work degree at Rutgers University, and returned from 2000 to 2003 to work on the Quality of Life Grants program with Dana Reeve during the program’s early years. After an eight year hiatus spent raising her children, she returned to the Reeve Foundation to work on the Quality of Life Grants again. In 2014, she transitioned into her role with the Peer & Family Support Program.

TJ Griffin  

TJ Griffin
Program Coordinator, Western United States

I was paralyzed on October 19, 1990 playing high school football for Trinity high school in Euless, TX. I broke my neck making a tackle. (But, as I like to say I went out in style.) Since my accident I went on to graduate from university of Texas of Arlington then went on to work for 12 years at IBM. In January 2013, I started working for the Christopher & Dana Reeve Foundation as a regional coordinator.

While working with the Reeve Foundation I also try to help as many individuals with disabilities by running the neuro fitness foundation in Euless, Texas. The neuro fitness foundation is a gym for people disabilities and it is free of cost to any of the clients. I also serve on the board of a non-profit organization called helping restore ability which helps disabled individuals with home modifications and pays for their full time attendant care. Being paralyzed 23 years ago definitely changed my life. Fortunately, realizing that I can help other people with their disability and let them understand that life is not over is proof to me that I have a great life. As I like to say the only thing different about me is I sit down and get better parking spaces.

Todd Johnston  

Todd Johnston
Program Coordinator, Eastern United States

While driving home after work on July 23, 1982 I had a motorcycle accident which left me blind in my right eye and a T4 paraplegic. Since my accident I spent my professional career in IT and financial services but during that time I have stayed very active in our community. My first real involvement was serving as the Employment Services Manager at Ability Beyond Disability and played for The Connecticut Spokebenders, a wheelchair basketball team.

I have continued to get more involved in helping our community members and hold the following positions: A Steering Committee member of: Connect-Ability; Connecticut Cross Disability Lifespan Alliance, a board member of: The CT Chapter of National Spinal Cord Injury Association; Moving With Health Oriented Physical Education; Connecticut Team Reeve, as well as Co-Chairing a Powerful Tools for Caregivers program in Connecticut. I also chair 2 events in CT; the Wheel-Walk to Work and The Take A Veteran Sailing event. For enjoyment I like to smoke cigars, have a cocktail, play 9-Ball pool, and dance.

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A Reeve Foundation Fact Sheet on Pediatric SCI (PDF)

A Reeve Foundation Fact Sheet on Religion and People with Disabilities (PDF)

A Reeve Foundation Fact Sheet on Adjustment to SCI (PDF)

A Reeve Foundation Fact Sheet on Aging with SCI (PDF)

A Reeve Foundation Fact Sheet on SCI Autobiogs or Biogs (PDF)

A Reeve Foundation Fact Sheet on SCI Chat Rooms (PDF)

A Reeve Foundation Fact Sheet on SCI Research (PDF)

A Reeve Foundation Fact Sheet on SCI Tutorial 101 (PDF)

A Reeve Foundation Fact Sheet on SCI Videos (PDF)

A Reeve Foundation Fact Sheet on Brain and Spinal Cord Tumors (PDF)

A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF) - English

A Reeve Foundation Fact Sheet on Deep Vein Thrombosis (PDF) - Spanish

A Reeve Foundation Fact Sheet on New Injury Top 10 Questions (PDF) - EnglishA Reeve Foundation Fact Sheet on New Injury Top 10 Questions (PDF) - Spanish

Arkansas Spinal Cord CommissionThe mission of the Arkansas Spinal Cord Commission is to administer a statewide program to identify and meet the unique and lifelong needs of people with spinal cord disabilities in the state.

American Association of SCI Psychologists and Social WorkersPromote research to improve quality of care and works to improve skills and techniques of members.

CareCure CommunityCareCure Community features a SpinalNurse bulletin board with informed comments on matters of the bowel, and all issues of paralysis.

Canadian & American Spinal Research OrganizationPromotes and supports funding research to ultimately find a cure for paralysis. Also publishes journal of latest research they fund. Call (800) 361-4004 or use the link above.

Canadian Paraplegic AssociationAssists people with spinal cord injuries and other disabilities to achieve individuality, self-reliance and full community participation. Call (613) 723-1033 or use the link above.

Craig HospitalWith funding from the US Department of Education's National Institute on Disability & Rehabilitation Research, has developed educational materials to help people with spinal cord injuries live in the community maintain their health. Topics include skin care, exercise, heart disease, weight control, alcohol abuse and conditions related to the aging body. Use the link above and click on SCI Health and Wellness.

Caregiver.comOffers a directory of support groups for caregivers.

Determined 2 HealProvides helpful information for the newly spinal cord injured.

FacingDisability.comFacing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. I know that this is a lot to ask, but we'd be so grateful for your help. I'm looking forward to discussing this link with you, and to answering any questions you may have.

Model Systems Knowledge Translation CenterThe factsheets listed at the MSKTC were produced through a collaboration between the MSKTC and the SCI Model Systems. These materials undergo expert and consumer reviews to ensure they are up-to-date, evidence-based, and consumer-friendly.

Kosair Charities Center for Pediatric NeuroRecovery at the University of LouisvilleThe Kosair Charities Center for Pediatric NeuroRecovery provides activity-based therapies to promote recovery from neurologic injury in children; conducts research to enhance recovery; and trains families, practitioners and scientists to maximize recovery and improve the quality of life for children and their families. In short, we are here to help kids kick paralysis and through science have every reason to hope.

Model Systems CentersA federally funded program of 14 specialty medical and/or rehabilitation centers across the US. The SCI Care System collects and submits acute, rehabilitation and follow-up (annual, long-term post-discharge) data on SCI patients who received care in the these centers following injury.

The Miami Project to Cure ParalysisThe Miami Project to Cure Paralysis has studied functional electrical systems for exercise.

The National Spinal Cord Injury Statistical Center (NSCISC)NSCISC supervises and directs the collection, management and analysis of the world's largest spinal cord injury database. Headquartered at the University of Alabama, Birmingham.

National Spinal Cord Injury Association (NSCIA)At NSCIA, we educate and empower survivors of spinal cord injury and disease to achieve and maintain the highest levels of independence, health and personal fulfillment. We fulfill this mission by providing an innovative Peer Support Network and by raising awareness about spinal cord injury and disease through education.

New York Online Access to Health (N.O.A.H)Offers information and links related to spinal cord and head injury treatment, rehabilitation, and children. Materials in Spanish.

Neuroscience for KidsOffers an understandable look at the segments of the spinal cord; from University of Washington.

NJ Self-Help Group ClearinghouseEnables people to help themselves with self-help groups.

Paralyzed Veterans of America, in support of The Consortium for Spinal Cord Medicine, offers authoritative clinical practice guidelines for bladder management. Consumer guides are available to download.

SpineUniverseAt SpineUniverse our goal is to help patients and their families understand their back or neck problems. In clear, straightforward language we aim to explain what causes spinal problems and how they can be treated. We are committed to ensure that all of the information we present is trustworthy and of the highest quality.

Spinal Cord Injury Information NetworkThe Spinal Cord Injury Information Center features clinical information about bowel management and all other medical issues of paralysis.

University of Alabama at BirminghamOffers an information sheet (Info Sheet #11) on bladder care and management.

United Spinal AssociationOur mission is to improve the quality of life of all Americans living with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, Lou Gehrig’s Disease (ALS), and post polio.

U.S. Department of Veterans Affairs Fact Sheet: VA and Spinal Cord InjuryOf the more than 250,000 Americans with serious spinal cord injuries and disorders, about 42,000 are veterans eligible for medical care and other benefits from the Department of Veterans Affairs (VA).

Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.

Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.

Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.

Library Books and VideosFind resources within the PRC library catalog.

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  • Call our Paralysis Information Specialists
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Paralysis Resource Guide

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The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.

This project was supported, in part by grant number 90PR3002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.