People Living with Paralysis Share Their Experiences with Online Dating
By Nate Herpich
Sure, for some, Valentine's Day is a time to enjoy current relationships. But for many others, it's a time to reflect on future aspirations in love. In 2014, this often means thinking about online dating: A recent report from the Pew Internet and American Life Project found that one in every ten Americans has used an internet dating site or mobile dating app.
People living with paralysis have many options for meeting people online. In addition to mainstream dating sites such as Match.com, eHarmony, and OkCupid, there are sites tailored to those living with disabilities such as Dating4Disabled and eDateAbility.
Of course, many people with paralysis have very specific wants and needs for meeting a prospective partner, as well as their own unique fears and trepidations that come with entering the online dating scene. Those with disabilities also need to be aware that some online daters are motivated more by fetishism for the disabled and specific disabilities (i.e. devoteeism), than in finding a lasting partner. And all online daters should be wary of protecting their security online: It's a non-trivial decision whether to disclose information such as your phone number before getting to know someone. Many online daters create a special email address to correspond with their profile (Check out these tips from Match.com on safe internet dating).
Still, online dating can represent an opportunity in exploration, both of yourself, and of the world around you, explains Dr. Dan Gottlieb, a therapist living with spinal cord injury. Dr. Gottlieb is the author of the upcoming book The Wisdom We're Born With: Restoring Faith in Ourselves.
"I recommend approaching online dating openly," he explains. "Be awake and aware as you start your journey, and you will learn a lot about what people are like and how they react to you, and you will also learn a lot about yourself, and what you're attracted to. I can't promise you'll find the love of your life through online dating, but I can guarantee a learning experience."
The Single Lady
Kuen, a 35-year-old comic book creator who lives in Edmonton, Canada, began with the free dating site Plenty of Fish, but found most people to be more interested in "the pretense of dating" than actually getting to know her as a person: in short, sex, and sometimes, devoteeism. However, through a very selective process and luck, she has met a "few good guys." She now uses eHarmony instead, but has yet to make a romantic match. "I'm still keeping my options open!" she says.
At first Kuen says that she first approached online dating by being open-minded and overly optimistic: "I believed that I should give people who are interested in me a chance, even if I wasn't really interested in them," but has since realized the error of her ways. Once she became more self-confident and selective, she started to meet great people.
Kuen's advice for daters living with disabilities is simple, but profound: "Don't sell yourself short. If the right person comes along, they will come along. Don't invest in wrong relationships. Be open, be patient, and be hopeful, but not hopelessly romantic. Finding a fairy tale is rare!"
The Budding Romance
Luticha, a C5/8 quadriplegic, had recently received a disturbing message to her profile, and was feeling pessimistic about online dating. But she became immediately intrigued by Don's note, and his love of books and food. They began by chatting online, and quickly realized that they shared similar values as well. It was a nice change for her: In two years of online dating, she's had little success.
"I've struggled with whether to mention to people that I'm a wheelchair user in my profile," says Luticha, who works as a scientist. "At first, I didn't, and that didn't go over well with people once they found out. And then I did, and I received messages from creepers with fetishes for people in wheelchairs. Really, my experience with online dating has run the gamut from very bad, to very good."
Luticha recognizes the real stigma that is attached to being disabled on many of the more mainstream dating sites. In the end, she decided to make her profile more "about me, and what I care about." Her photos show that she is living with a disability.
Don, who is able-bodied, says that he's tried online dating for the better part of a decade, but hasn't had much luck finding someone who is right for him. He calls Luticha, "an impressive woman" and looks forward to more dates over the coming months.
"To some extent, dating Luticha is like dating anyone else," says Don, an IT technician. "Sure, it takes a bit longer to do certain things, but what's important is that I'm really enjoying getting to know her as a person."
The Happy Married Couple
"Chad's profile was the first one to come up," remembers Ami, who is able-bodied. "I looked at a bunch of profiles after that, but nothing else compared to his, so I sent him a 'wink' and the rest is history."
"I had been online for a number of years, but only had a few responses," says Chad, a C4/5 quadriplegic. "I always put in my profile that I'm a quad, I just figured I should be fair and upfront about it. I wanted whomever it was to know what they were getting into. If they'd really wanted to date me, I'd know it was because they liked me, for me.
An epidemiologist by trade, Ami was familiar with the day to day that people living with paralysis experience, so this didn't bother her. For their first date, they had Chinese takeout, and Ami even met Chad's stepfather and mom. Soon after, they fell in love.
"Communication is the main key," says Chad. "Sure, we've had some rough spots over the years. But we have a very strong bond, something that is very rare."
Chad remembers the dating days, and how scared and vulnerable it can feel to put yourself out there, especially when you're living with paralysis. But ultimately, he says, find a way to show who you are and let it shine through your profile; someone just might like you for who you are. After all, Chad and Ami found each other, after connecting on simple shared interests like European travel and drinking wine.
"Do I get the 'Why would you marry someone with a disability? Yes, and constantly," says Ami. "And I get really sick of being asked, to be perfectly honest.
"But my best answer is to introduce them to my husband. To let them get to know him, to understand he is just a person under the layers of the wheelchair, behind that chin control and head switch. Is this life hard? Yes, it really, really is. Harder than life would be if he weren't disabled? Yes, by 100 fold. But I would do it all again because I love him and he makes it all worth it at the end of the day."
'The Bottom Line is Self-Compassion'
Dr. Gottlieb, a self-admitted tender heart, decided to persevere, and is now in a loving relationship.
"Everyone with spinal cord injury is afraid of something, and certainly, it makes sense that we might be afraid of online dating," he says.
"Still, if you think about how many times in your life you've been hurt, and where you are now, it helps to remember that we do heal. The bottom line in all of this is, always maintain that sense of self-compassion. Remember your resilience, and that, no matter what happens, you are going to be fine."
Available to download: Over 100 PDF fact sheets organized alphabetically on various topics from Aging with SCI to Wish Granting Agencies.
Also contains disability resources for each of the 50 United States and 31 countries (where possible the country fact sheets are in the native language of that country).
Tell us your story
Telling your story is one way to let anyone touched by paralysis know that they are not alone. We've created a place where you can share your journey for your benefit, and the benefit of others. Your story matters. Share it.
CareCure CommunityRelationships and Sexuality Forum
Center for Research on Women with DisabilitiesProvides web pages on abuse related to women with disabilities.
Mobile WomenArticles, resources, online forum for women with disabilities especially wheelchair users.
New MobilityNew Mobility magazine features a web discussion forum called Wheels, Relationships and Sexuality.
New Female SexualityThis link provides part one of Paraplegia News' two part series on women's sexuality, written by Dr. Stanley Ducharme, a clinical psychologist in the Departments of Rehabilitation Medicine and Urology at Boston University Medical Center.
New Female Sexuality, pt. 2This link leads to part two of Dr. Stanley Ducharme's series on women's sexuality, from Paraplegia News
Rehabilitation Institute of ChicagoSpinal Cord Injury: Sexuality
SexualhealthSexualhealth is a website featuring information on sexual function and pleasure for people with disabilities.
University of Miami School of MedicineSexuality in Spinal Cord Injury
Paralysis Resource Center The Reeve Foundation Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 5:00 pm ET. You may also schedule a call or send a message online.
Reeve Foundation Online Paralysis Community Connecting people living with paralysis, families, friends and caregivers so we can share support, experience, knowledge, and hope.
Quality of Life Grants DatabaseFind resources within the PRC Quality of Life Grants Database. Search by Zip Code, State or an Entire Category.
Library Books and VideosFind resources within the PRC library catalog.
This FREE 442 page book is a comprehensive information tool for individuals living with paralysis and for their caregivers. Request or download your copy now!
Check out programs in your area on our one-of-a kind online searchable Quality of Life program database. You can search by location or topic. GO