Chief Program & Policy Officer

Christopher & Dana Reeve Foundation

Job Title: Chief Program & Policy Officer

Date: October 13, 2021

Department: National Paralysis Resource Center (NPRC)

Exempt X Non-Exempt___

Job Reports To: President & CEO

Job Summary:

The Christopher & Dana Reeve Foundation’s National Paralysis Resource Center (NPRC) provides the most comprehensive knowledge, tools, and services for individuals impacted by paralysis through our dedicated Information Specialists, a substantial Quality of Life Grants Program, Peer & Family Support Program, Military and Veterans Program, Racial and Health Equity initiatives and Advocacy program. The Chief Program Officer will plan, direct and manage program development, administration and delivery, and partnerships and collaborations that provide assistance to individuals living with paralysis, their families and caregivers. This individual will work closely with the President and CEO to help implement the care side of the Foundation’s mission as well as collaborate with the Foundation’s Leadership Team and Board of Directors on various initiatives including advancing the strategic plan. They will be responsible for tracking results and reporting activities at the highest level of management with the help of subordinate managers and staff. This individual will be responsible for the oversight of the NPRC team and several consulting groups and will maintain and build relationships with government agencies, and other stakeholders in the field. This individual will also serve as the spokesperson for the NPRC and Foundation as needed.

Major Responsibilities:


  • Ensure continued federal support for the NPRC, including but not limited to oversight of preparation and timely submission of grant applications and required progress and financial reports; collaborate with Director, Public Policy on ensuring continued funding for the PRC through the appropriations process.
  • Maintain the premier resources and programs within the NPRC; work with the communications team to expand awareness and impact
  • Prioritize outreach to underserved communities, emphasizing racial and health equity and ensuring these are embedded in our programs and community engagement initiatives
  • Provide oversight to staff leads on the planning and execution of our annual summit conference and our advocacy summit
  • Direct efforts to evaluate each NPRC program; work closely with key program leaders and provide guidance on strategy, opportunities for improvement and changes that can result in a greater impact for the Reeve and greater paralysis community
  • Identify private funding opportunities for the Reeve Foundation through programmatic work and development
  • Oversee and manage team of 15+ full time staff members and several consultants; provide feedback and opportunities for continued professional development
  • Build relationships with similar organizations in the field to identify opportunities for collaboration, partnership and/or future program efforts

Federal Agency Efforts: Administration for Community Living (ACL)

  • Create and execute strategy, annual programmatic goals, outcomes and funding allocation, ensuring compliance with the NPRC’s federal funding agreement as well as other grant requirements
  • Establish a strong working relationship with federal funder; serve as a key point person between the federal agency and the Foundation; identify opportunities that can be leveraged to support goals
  • Ensure ACL is aware of the impact and clear outcomes of the NPRC work in an effort to secure continued, and ideally increased, federal support over time


  • Represent the NPRC on the Leadership Team; share high level updates and keep the CEO and Leadership Team aware of ongoing initiatives, and challenges and opportunities that may impact the NPRC
  • Serve as liaison with the Quality-of-Life Board Committee, provide quarterly reports to the Committee Chair, participate and manage board-related efforts on an ad hoc basis
  • Participate in Leadership Team discussions and decisions about operations, staff development, company policies, strategic plan and other human resources issues

Community Engagement

  • Create and foster new collaborations with organizations across the field to develop innovative and strategic partnership opportunities
  • Oversee community engagement and community building efforts by NPRC staff and consultants
  • Present and speak in community settings and at conferences on a periodic basis

Desired Attributes:

  • Entrepreneurial spirit; self-driven, independent
  • Flexible and agile, able to adjust to different work styles and environments
  • Excellent communication skills - verbal, written, presentation and interpersonal
  • Ability to effectively manage direct reports and demonstrate the ability to lead, motivate and direct both professional and technical staff
  • Strong relationship-building and partnership development experience
  • Ability to think strategically and programmatically as well as successfully manage operations
  • Strong knowledge of disability issues, health policies, public health and changes to healthcare
  • Ability to set priorities, allocate resources, provide follow-through, assure a well-organized workforce and evaluate projects and efforts

Minimum Requirements:

  • Bachelor’s degree and 10 years of experience or equivalent combination of education and experience in related field
  • Experience within the disability field
  • Leadership experience within a non-profit organization
  • Experience managing federal grants and working with federal agencies
  • A minimum of 10 years of personnel management experience or overseeing a team
  • Experience working in health policy, or healthcare preferred
  • Master’s degree – MBA, MPA or MPP preferred


30% travel required

Physical Demands/Office Environment

This position is primarily a sedentary role but will have periods of physical activity. The person in this position may need to occasionally move about inside the office to liaise with internal staff, access files, office machinery and a copy machine/printer. As stated above, the position involves moderate travel.

The Foundation is an equal opportunity employer and all qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability status, protected veteran status or any other characteristic protected by law.

To perform this job successfully, an individual must be able to perform each essential job duty satisfactorily, with or without a reasonable accommodation. Reasonable accommodations may be made to enable qualified individuals with disabilities to perform essential job functions.

The Foundation is committed to providing a work environment free of harassment and discrimination that supports individual dignity and respect. Accordingly, the Foundation maintains a strict policy prohibiting sexual harassment, unlawful harassment and any type of discriminatory treatment because of any “Protected Characteristic.”

Send a cover letter and resume to [email protected]