Tell Congress not to leave the paralysis community out of COVID-19 legislation; updates on Reeve advocacy efforts

Posted by Reeve Foundation Staff in Daily Dose on August 31, 2020 # Advocacy and Policy

Hello Advocates,

The Christopher & Dana Reeve Foundation is so grateful for your efforts in these last few months.Capital Building D.C.

  • Since mid-July, we have twice asked you to take action and contact your members of Congress. The first time was to urge passage of Paralysis Resource Funding (PRC) funding for FY’21before the scheduled August recess. Four hundred and twenty advocates stepped up, sending 1,294 emails to their Representatives and Senators. We are thrilled to report that on July 31, 2020, the House passed the funding bill by a vote of 217-197!
  • On August 4th, we asked you to remind Congress that the needs of the paralysis community must be considered in the next COVID-19 relief bill. You did! 552 advocates took action, sending 1,703 emails.

Thank you to everyone who made their voice heard. Know that despite the current breakdown in negotiations, our work towards COVID-19 relief legislation continues. Many people have shared the responses they received from Congressional offices and we have been helping advocates convert those initial contacts into face-to-face or virtual meetings with staffers.

If you have not yet joined these advocacy efforts, it is not too late! Negotiations on new COVID-19 relief have stalled for the moment, but the issue is still very much alive. Senators and their staff are still discussing a number of outstanding issues, including how much aid will be provided to state and local governments, which could impact Medicaid programs across the country, as well as a broad shield from lawsuits related to COVID-19 exposure for businesses, educational institutions and healthcare providers.

Now is your chance to be heard. Tell Congress not to leave the paralysis community out of their next round of COVID-19 legislation. Send this note to your Representatives and Senators today!

Finally, to help you navigate the ever-shifting issues around COVID-19, we have also compiled a wealth of information (available in English and Spanish) on our COVID-19 resource page. This includes a recent post, “Will COVID-19 Adaptations Create a More Disability-Inclusive World?” by Lauren Presutti, founder of Presutti Counseling.

Thank you for taking the time to contact your Representatives to urge their consideration of the paralysis community in any future COVID-19 legislation. We rely on advocates like you to speak up on the community’s behalf, and this simple action will remind Congress that the unique needs of everyone must be considered when finding solutions to this ongoing pandemic.

Take Action Now!

The National Paralysis Resource Center website is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $8,700,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.