"Parenting with Paralysis" Booklet Overview

Posted by Reeve Staff in Life After Paralysis on September 03, 2020 # Health, SCI Awareness

There are more than 4 million parents with disabilities caring for children under the age of 18 in the United States. From the moment they’re born, children upend the life of every family, creating a world that is unpredictable, stressful and joyful —sometimes all in the span of a few minutes."Parenting with Paralysis" Booklet Cover

The Christopher & Dana Reeve Foundation recently published Parenting with Paralysis,” designed to spotlight and support potential challenges encountered by families living with disabilities. The booklet provides parents with an array of detail specific advice and guidance, from what to expect during pregnancy to enjoying life as a grandparent.

Topics include:

  • How to mitigate secondary health conditions, including urinary tract infections, pressure wounds and spasticity, during pregnancy
  • The benefits of building community, from joining local playgroups to connecting with other parents with disabilities in online forums
  • Adapting to logistical challenges of life with a baby; practical ideas for sleeping arrangements, nursing and changing diapers
  • Successfully navigating back-to-school nights, field trips and the world of kids’ sports with limited mobility
  • Creating family traditions, from movie nights to backyard barbecues
  • How to talk to kids about disabilities
  • Parental rights: what to know

To receive a hard copy of this free booklet, please call the Information Specialist team at 800-539-7309, or download it directly from the publications page.

The National Paralysis Resource Center website is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $8,700,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.