“Restoring Hope” booklet

Posted by Reeve Staff in Life After Paralysis on June 16, 2020 # SCI Awareness

The moments and hours after a spinal cord injury often disappear in a haze of grief and shock. Life is forever changed for the entire family. But for caregivers who must immediately advocate for a loved one, there is little time to waste. Understanding the new language and landscape of trauma centers and rehabilitation hospitals will help families navigate a stressful new world."Restoring Hope" booklet cover

The Christopher & Dana Reeve Foundation has partnered with the Shepherd Center in Atlanta, Ga to produce Restoring Hope: Preparing for Rehabilitation After Spinal Cord Injury,” a booklet designed to prepare families for the initial urgent care of spinal cord injuries and guide them through the transition to rehabilitation centers.

“Restoring Hope” provides an overview of the early days of spinal cord injuries, anticipating questions families will have, whether related to care and treatment or the specifics of insurance policies. Topics include:

  • Comprehensive glossary of medical terms related to spinal cord injuries
  • Explanation of spinal cord anatomy
  • Basic facts about and potential effects of spinal cord injuries
  • Descriptions of doctors and staff found in trauma and rehabilitation centers
  • Guidance for navigating insurance policies
  • A checklist to help investigate and identify rehabilitation centers that best match a loved one’s injuries and recovery needs.
  • Self-care tips for family members

“Restoring Hope” is dedicated to James H. Shepherd, Jr., a co-founder of the Shepherd Center, who died on December 21, 2019. After sustaining a spinal cord injury in a body surfing accident, Shepherd and his parents founded the Shepherd Center in 1975 to address a lack of rehabilitative care options for spinal cord injuries in the Southeast. Named a model spinal cord injury center by the National Institute on Disability, Independent Living, and Rehabilitation Research, the Shepherd Center now serves thousands of patients each year.

To get a free copy of the “Restoring Hope” booklet, call our Information Specialist team at 800-539-7309 or go to www.ChristopherReeve.org/Ask.

The National Paralysis Resource Center website is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $8,700,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.