Advocacy milestones

  • Christopher Reeve met with President Clinton and the First Lady in oval office shortly after his accident, eventually securing an additional $10 million for National Institutes of Health (NIH) funding – 1995
  • Reeve-Irvine Research Center in California is established – 1995
  • Christopher Reeve, the Reeve Foundation, and its advocates led efforts to abolish the lifetime and annual caps on insurance – 1996
  • Christopher Reeve served as Master of Ceremonies at the Paralympic Games in Atlanta, Georgia – 1996
  • As part of a broader national patient movement, Christopher Reeve testified before Congress in support of doubling the National Institute of Health's budget – 1998
  • Advocated for the establishment of the Roman Reed Spinal Cord Injury Research Act in California – 1999
  • The Christopher & Dana Reeve Foundation was a founding member of the Coalition for the Advancement of Medical Research (CAMR) – 2001-2013
  • Christopher Reeve accepted a $2 million check from Senator Tom Harkin and Representative Bill Young to create the Christopher & Dana Reeve Foundation Paralysis Resource Center (PRC) – 2002
  • Public launch and ribbon cutting of the PRC with New Jersey Governor Jim McGreevey – 2002
  • Passage of Research Review Act, which called for a review across NIH of all spinal cord injury research and a collaboration between efforts – 2004
  • Christopher Reeve honored by the National Organization on Disability (which he would eventually chair); testified at the United Nations in support of the Convention on the Rights of Persons with Disabilities – 2004
  • Dana Reeve visited Walter Reed Army Medical Center to present a Quality of Life Grant check to the Henry M. Jackson Foundation for the Advancement of Military Medicine – 2004
  • Passage of Stem Cell Research Enhancement Act – 2005
  • Dana Reeve and hundreds of Reeve advocates attended first Working2Walk Rally in Washington, D.C. – 2005
  • Created and secured initial Department of Defense funding for the North American Clinical Trials Network (NACTN) ($5.4 million) – 2007
    • Funding awarded to the Reeve Foundation to support expansion of translational research to find treatments for military men and women with spinal cord injuries
  • Passage of the Christopher & Dana Reeve Paralysis Act – 2009
    • Matthew Reeve called on stage and recognized by President Obama during bill signing
  • Affordable Care Act includes rehabilitation and habilitation as Essential Health Benefits, prohibits lifetime and annual caps on insurance, and prohibits discrimination on the basis of disability in health care – 2010
  • Led coalition of a dozen disability organizations and hundreds of advocates to protect funding and stopped consolidation of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) – 2012
    • Reeve Foundation leadership met with White House staff and Director of the Center for Disease Control (CDC)
  • Transferred the Paralysis Resource Center to the Administration for Community Living (ACL) – 2013
  • Secured $8 million for New York Spinal Cord Injury Research Program (SCIRP), a program that was originally created in 1998 with the help of paralyzed New York State Police Sergeant Paul Richter, but defunded in 2010 – April 2014