2019 2nd Cycle High Impact Priority Quality of Life Grants

17 Grants Totaling $520,000

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PRRC0002-01-01)

Amyotrophic Lateral Sclerosis Association - NY (Greater New York Chapter)

New York, NY 10004-3873

$30,000 – Transportation

The Greater New York Patient Transportation Expansion Project

This High Impact Priority grant will support a transportation program that offers rides at no cost to ALS patients traveling to clinic appointments throughout all of NYC, Long Island and Queens, the Hudson Valley, and Northern & Central New Jersey. Due to the fast and ongoing progression of the disease, people with ALS often find it difficult to leave the home and travel, as they require specialized assistance and accessible modes of transport. These services are provided to patients who otherwise would not have the means for safe and dignified transportation.

Barrow Neurological Foundation

Phoenix, AZ 85013-4414

$30,000 – Transportation

Transportation Assistance Fund for the Barrow Neuro-Rehabilitation Center

This High Impact Priority grant will provide reliable transportation to and from outpatient appointments for individuals living with paralysis. Transportation is also provided for community outings and opportunities where patients, as part of their rehabilitative journey can take that first trip to the bank, the grocery store or support group by utilizing the ride share or medical transport company under the safety net of Barrow, before they need to do so on their own.

Center for Independent Living of Broward

Fort Lauderdale, FL 33319-5805

$40,000 – Nursing Home Transition

Nursing Home Transition Program for People with Paralysis

This High Impact Priority grant will expand the Center’s Nursing Home Transition Program to help people with paralysis and other cross-disabilities move from institutional settings to independent living. Funds provide installation of smart technology of up to ten apartments allowing more individuals with spinal cord injury (SCI) to transition to independent living. The Center currently leases several multi-bedroom apartments renovated to accommodate those with limited mobility or who use wheelchairs. Smart Home Technology will ensure the health, welfare and safety of the participant enabling them to function with greater independence and prevent institutionalization.

Children's Hospital of Wisconsin Foundation

Milwaukee, WI 53214-1599

$30,000 – Respite/Caregiving

Children's Hospital of Wisconsin Community-based Volunteer Respite Care Program

This High Impact Priority grant will support a respite care program that proves 8-10 community-based respite events annually. The events are free to families and offered in locations (school, church, or university) throughout the Milwaukee area. Events offer inclusive, age- and developmentally-appropriate activities, including arts and crafts projects, interactive games, sports, bingo, face painting, music, and entertainment. Volunteer nursing staff meets the medical and toileting needs of those attending respite events. Funds will support expansion of program reach to serve more families, including those on wait lists.

Communities Actively Living Independent & Free (CALIF) (CIL)

Los Angeles, CA 90014-3921

$40,000 – Nursing Home Transition

Transition, with Peer Counseling on Waivers & Rescue

This High Impact Priority grant will 1) transition four people living with paralysis from nursing homes and/or skilled nursing facilities, to their own homes through a thoughtful case management process. 2) Provide Independent Living Skills and Peer Counseling to the tranisitioning recipients and ensure the skills they need to efficiently manage and use their network of contacts and resources to keep them progressing after their treatment. 3) Conduct a study on the use of waivers for home care. 4) Ensure inclusion of People with Disabilities, Especially those with Spinal Cord Injuries, in Disaster Preparedness Planning.

Eden I&R

Hayward, CA 94541-5004

$30,000 – Disaster Preparedness

Disaster Preparedness Project

This High Impact Priority grant enables Eden I&R to expand upon free Disaster Preparedness trainings for individuals living with paralysis and their families. During the 12-month grant period, EIR anticipates serving at least 100 people with paralysis and at least 150 family members and caregivers at trainings specifically targeting individuals living with paralysis. Additionally, EIR plans to distribute emergency preparedness materials to 7,500 individuals at events and meetings targeting populations with access and functional needs (AFN). Trainings will be conducted throughout Alameda County, CA and topics will include personal preparedness, agency preparedness, Planned Safety Power Shutoffs, active shooter/workplace violence, and many more.

Headwaters Regional Development Commission

Bemidji, MN 56619-0906

$5,000 – Transportation

Hubbard County Medical Transportation Shuttle

This High Impact Priority grant will support a non-emergency medical shuttle. The service operates twice a week from Park Rapids (pop. 4,000) using a 15-passenger bus which includes accommodations for two wheelchairs. The shuttle will stop at any requested medical facility in Fargo such as the VA Hosptial, Sanford Rehabilitation Hospital, and Sanford Brain & Spine Clinic.

Lifespan Respite Washington, PAVE

Tacoma, WA 98465-1900

$30,000 – Respite/Caregiving

Lifespan Respite Voucher Grant Program

This High Impact Priority grant will provide respite vouchers for unpaid, unserved family caregivers who provide 40 or more hours of direct care, monitoring, and/or supervision. This will benefit caregivers by reducing isolation and increasing positive self-care, normalizing newfound roles and reducing associated stigma. It will help caregivers maintain their own health and wellbeing--a side benefit to the individual who has a disability who might otherwise lose the ability to remain in place in their home settings and gain more access to community supports.

Linking Employment, Abilities and Potential (LEAP) (CIL)

Cleveland, OH 44113-3412

$40,000 – Nursing Home Transition

Welcome Home Transition Services

This High Impact Priority grant will provide nursing home transition services to approximately 35 individuals with neurological conditions living in NorthEast Ohio including but not limited to spinal cord injury, traumatic brain injury, stroke, cerebral palsy, multiple sclerosis, ALS, etc. Services include transition planning and coordination, discharge planning participation, as well as follow-up within first 90 days to evaluate consumer’s adjustment to transition and determine additional needs and supports.

Miracle Flights for Kids

Las Vegas, NV 89119-2120

$30,000 – Transportation

Medical Flight Support

This High Impact Priority grant will support the Medical Flight Program which provides free commercial air transportation to individuals who are battling rare medical disorders and would otherwise lack access to specialized medical care. Funds will be used for about 75 life-saving flights for individuals with paralysis causing conditions and their families.

Mission to Assist and Provide for Seniors (MAPS Charities)

Sherman Oaks, CA 91423-2717

$25,000 – Respite/Caregiving

Transportation and Respite Caregiving Project

This High Impact Priority grant will expand MAPS Charities services by building out a model that combines client transportation with respite care for underserved seniors with paralysis. MAPS will engage professional caregivers through licensed agencies that are equipped to provide transportation for fragile seniors with mobility challenges. These caregivers will also be available to provide supplemental support including prescription pick-ups, meal preparation, and other services as needed.

Movimiento para el Alcance de Vida Independiente

Hato Rey, PR 00928-5277

$30,000 – Disaster Preparedness

Emergency Preparedness for People with Disabilities

This High Impact Priority grant will offer an extensive training program and educational tool specifically designed for the safe and effective handling of people living with paralysis and other disabilities in the mitigation, preparedness, response and recovery efforts before, during and after a disaster or emergency. Workshops will be offered to organizations servicing people with disabilities and general public; one thousand (1,000) individuals with paralysis, mobility issues and disabilities in general, caregivers and members of their families on the effective way to prepare themselves for a disaster or emergency with an educational manual to be provided with the training. A capacity building program will be offered to fifty public and private agencies, community leaders, shelter administrators, elderly homes, organizations and volunteers related to the first response efforts. An average of 500 participants will be educated during these trainings. A “Train the Trainer” Program will be included in order to ensure a cross sector partnership approach that will provide a multiplying effect in the reach to additional areas of Puerto Rico.

Norton Healthcare Foundation

Louisville, KY 40202-1902

$30,000 – Transportation

Norton Healthcare Adapted Driving Education Program

This High Impact Priority grant will offer people living with a neurological condition an adaptive driving program consisting of driving assessments and behind the wheel training to increase each person’s ability to drive safely on the road. Depending on the type of adaptive equipment needed, the person will spend 3-30 hours of specialized training. The goal is to assist up to 18 people per month with driving assessments and behind the wheel training for approximately 216 people participating in the adapted driving program in its first year.

Progressive Workshop of Armstrong County

Kittanning, PA 16201-1311

$30,000 – Transportation

Employment Readiness and Skills Building

This High Impact Priority grant supports the Adult Achievement Center, an adult training program that serves individuals who are interested in being active members of their community and supports adults as they seek to increase their independence in social opportunities and community involvement. Funds will secure a wheelchair accessible van to transport individuals living with paralysis and those who use a wheelchair to and from the Center.

Rehabilitation Hospital Of The Pacific (REHAB) Foundation

Honolulu, HI 96817-2421

$30,000 – Transportation

Transportation Access for Individuals Living with Paralysis and their Caregivers

This High Impact Priority grant will enable REHAB to complete funding toward the purchase of a retrofitted 2020 Toyota Sienna L5 mobility van for its main facility located in Honolulu, Hawaii that will serve the transportation needs of up to 1,320 patients living with paralysis. REHAB will also assist in effecting a smooth transition from the hospital to the home by carefully and purposefully preparing caregivers and doing site inspection visits, training patients and caregivers in a variety of mobility issues.

The Whole Person (CIL)

Kansas City, MO 64111-1913

$40,000 – Nursing Home Transition

Quality of Life Transitions for People Living with Paralysis

This High Impact Priority grant will allow TWP staff to serve Kansas consumers with paralysis as well as Missouri consumers, whether or not they would qualify for Missouri’s federal demonstration grant Money Follows the Person (MFP) program, while providing more flexible, individualized support as they transition from nursing home environments back into their homes or a community-based setting of their choice.

University of Nebraska Foundation

Lincoln, NE 68198

$30,000 – Transportation

Munroe-Meyer Institute Recreation Therapy

This High Impact Priority grant will support a portion of the purchase price for a new, accessible van to povide safe and reliable transportation for people living with paralysis and other cross disabilities to offsite recreational and social activities. Research shows that an increasing number of young adults with intellectual, physical and developmental disabilities suffer from social isolation and depression after graduation. Their evenings are frequently spent alone in their rooms and the confines of family or group homes. Activities such as sporting events, movies, theater productions, outdoor adventures, bowling and participation in a wide variety of clubs that the Institute co-sponsors with Omaha Public Schools and other community organizations — enriches their social lives. This, in turn, elevates their self-concept and reduces isolation and depression.

This project was supported, in part, by grant number 90PRRC0002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.