Program timeline

This grants program is for nonprofit organizations that provide respite programs and/or subcontract for direct respite services that serve individuals with paralysis.

The access code for this application is RC2017.

2017 online application timeline:

  • Application opens: March 6, 2017
  • Online submission deadline: April 13, 2017
  • Decisions announced: May 15, 2017

Program overview

The Reeve Foundation recognizes that most family caregivers of individuals with mobility limitations have significant responsibilities that include assistance with important health issues that are unique to paralysis (bowel and bladder programs, skin care oversight, transferring, respiratory care, autonomic dysreflexia oversight, spasticity management, etc.). This important caregiver assistance can allow many individuals to stay in their homes and maintain independence at a level that may not be available to them outside of this environment. Other environments such as institutionalization can put individuals at higher risk for abuse and neglect as well as a potential for a decreased quality of life. Providing this high level of care to a person with paralysis may also impact the career, finances, general health and well-being of the caregiver themselves.

The Christopher & Dana Reeve Foundation would like to recognize family caregivers and the vital role they play for their loved ones by creating a new pilot grant program that supports nonprofits that address the additional episodic respite care needed to prevent caregiver ‘burn out.’ This Respite Care Grant Program will award one year grants to nonprofit organizations throughout the United States that provide episodic planned and unplanned respite care services to children or adults with paralysis in the communities they serve. These organizations can apply for grants of up to $10,000 to provide 4-6 days of respite (per family) so that a caregiver can attend to their own medical needs, appointments and overall well-being. The forms of respite we will support through this grant are as follows:

  • Emergency Respite
  • Home-Based Services
  • Sitter-Companion Services
  • Consumer-Directed Respite
  • Out-of-Home Respite
  • Family Care Homes or Host Family
  • Respite Center-based
  • Adult day healthcare centers
  • Parent/Family Cooperative

Additional Grant Details

Applications are welcome from nonprofit organizations with IRS 501 (c)(3) status. Grants are awarded to organizations that address the needs of people living with paralysis caused by spinal cord injuries, diseases or birth conditions including (but not limited to) stroke, spina bifida, multiple sclerosis, cerebral palsy and amyotrophic lateral sclerosis (ALS). Applications can focus on an expansion of an existing program or a new program or service. The Reeve Foundation will award up to $10,000 to organizations who have not received a grant from us in the last 18 months. There is one application cycle per year and the grant applications are to be submitted online through the Reeve Foundation website. Before you begin the application, please read the following:

Application Guidelines

People First Language Guide

List of Application Questions

FAQ

Applicants click here to access the application.

The Reeve Foundation cannot award grants to individuals, but our team of information specialists can help identify resources and organizations that can provide financial assistance.

This project was supported, in part by grant number 90PR3002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.