2019 2nd Cycle High Impact Priority Quality of Life Grants

17 Grants Totaling $520,000

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PRRC0002-01-01)

Amyotrophic Lateral Sclerosis Association - NY (Greater New York Chapter)

New York, NY 10004-3873

$30,000 – Transportation

The Greater New York Patient Transportation Expansion Project

This High Impact Priority grant will support a transportation program that offers rides at no cost to ALS patients traveling to clinic appointments throughout all of NYC, Long Island and Queens, the Hudson Valley, and Northern & Central New Jersey. Due to the fast and ongoing progression of the disease, people with ALS often find it difficult to leave the home and travel, as they require specialized assistance and accessible modes of transport. These services are provided to patients who otherwise would not have the means for safe and dignified transportation.

Barrow Neurological Foundation

Phoenix, AZ 85013-4414

$30,000 – Transportation

Transportation Assistance Fund for the Barrow Neuro-Rehabilitation Center

This High Impact Priority grant will provide reliable transportation to and from outpatient appointments for individuals living with paralysis. Transportation is also provided for community outings and opportunities where patients, as part of their rehabilitative journey can take that first trip to the bank, the grocery store or support group by utilizing the ride share or medical transport company under the safety net of Barrow, before they need to do so on their own.

Center for Independent Living of Broward

Fort Lauderdale, FL 33319-5805

$40,000 – Nursing Home Transition

Nursing Home Transition Program for People with Paralysis

This High Impact Priority grant will expand the Center’s Nursing Home Transition Program to help people with paralysis and other cross-disabilities move from institutional settings to independent living. Funds provide installation of smart technology of up to ten apartments allowing more individuals with spinal cord injury (SCI) to transition to independent living. The Center currently leases several multi-bedroom apartments renovated to accommodate those with limited mobility or who use wheelchairs. Smart Home Technology will ensure the health, welfare and safety of the participant enabling them to function with greater independence and prevent institutionalization.

Children's Hospital of Wisconsin Foundation

Milwaukee, WI 53214-1599

$30,000 – Respite/Caregiving

Children's Hospital of Wisconsin Community-based Volunteer Respite Care Program

This High Impact Priority grant will support a respite care program that proves 8-10 community-based respite events annually. The events are free to families and offered in locations (school, church, or university) throughout the Milwaukee area. Events offer inclusive, age- and developmentally-appropriate activities, including arts and crafts projects, interactive games, sports, bingo, face painting, music, and entertainment. Volunteer nursing staff meets the medical and toileting needs of those attending respite events. Funds will support expansion of program reach to serve more families, including those on wait lists.

Communities Actively Living Independent & Free (CALIF) (CIL)

Los Angeles, CA 90014-3921

$40,000 – Nursing Home Transition

Transition, with Peer Counseling on Waivers & Rescue

This High Impact Priority grant will 1) transition four people living with paralysis from nursing homes and/or skilled nursing facilities, to their own homes through a thoughtful case management process. 2) Provide Independent Living Skills and Peer Counseling to the tranisitioning recipients and ensure the skills they need to efficiently manage and use their network of contacts and resources to keep them progressing after their treatment. 3) Conduct a study on the use of waivers for home care. 4) Ensure inclusion of People with Disabilities, Especially those with Spinal Cord Injuries, in Disaster Preparedness Planning.

Eden I&R

Hayward, CA 94541-5004

$30,000 – Disaster Preparedness

Disaster Preparedness Project

This High Impact Priority grant enables Eden I&R to expand upon free Disaster Preparedness trainings for individuals living with paralysis and their families. During the 12-month grant period, EIR anticipates serving at least 100 people with paralysis and at least 150 family members and caregivers at trainings specifically targeting individuals living with paralysis. Additionally, EIR plans to distribute emergency preparedness materials to 7,500 individuals at events and meetings targeting populations with access and functional needs (AFN). Trainings will be conducted throughout Alameda County, CA and topics will include personal preparedness, agency preparedness, Planned Safety Power Shutoffs, active shooter/workplace violence, and many more.

Headwaters Regional Development Commission

Bemidji, MN 56619-0906

$5,000 – Transportation

Hubbard County Medical Transportation Shuttle

This High Impact Priority grant will support a non-emergency medical shuttle. The service operates twice a week from Park Rapids (pop. 4,000) using a 15-passenger bus which includes accommodations for two wheelchairs. The shuttle will stop at any requested medical facility in Fargo such as the VA Hosptial, Sanford Rehabilitation Hospital, and Sanford Brain & Spine Clinic.

Lifespan Respite Washington, PAVE

Tacoma, WA 98465-1900

$30,000 – Respite/Caregiving

Lifespan Respite Voucher Grant Program

This High Impact Priority grant will provide respite vouchers for unpaid, unserved family caregivers who provide 40 or more hours of direct care, monitoring, and/or supervision. This will benefit caregivers by reducing isolation and increasing positive self-care, normalizing newfound roles and reducing associated stigma. It will help caregivers maintain their own health and wellbeing--a side benefit to the individual who has a disability who might otherwise lose the ability to remain in place in their home settings and gain more access to community supports.

Linking Employment, Abilities and Potential (LEAP) (CIL)

Cleveland, OH 44113-3412

$40,000 – Nursing Home Transition

Welcome Home Transition Services

This High Impact Priority grant will provide nursing home transition services to approximately 35 individuals with neurological conditions living in NorthEast Ohio including but not limited to spinal cord injury, traumatic brain injury, stroke, cerebral palsy, multiple sclerosis, ALS, etc. Services include transition planning and coordination, discharge planning participation, as well as follow-up within first 90 days to evaluate consumer’s adjustment to transition and determine additional needs and supports.

Miracle Flights for Kids

Las Vegas, NV 89119-2120

$30,000 – Transportation

Medical Flight Support

This High Impact Priority grant will support the Medical Flight Program which provides free commercial air transportation to individuals who are battling rare medical disorders and would otherwise lack access to specialized medical care. Funds will be used for about 75 life-saving flights for individuals with paralysis causing conditions and their families.

Mission to Assist and Provide for Seniors (MAPS Charities)

Sherman Oaks, CA 91423-2717

$25,000 – Respite/Caregiving

Transportation and Respite Caregiving Project

This High Impact Priority grant will expand MAPS Charities services by building out a model that combines client transportation with respite care for underserved seniors with paralysis. MAPS will engage professional caregivers through licensed agencies that are equipped to provide transportation for fragile seniors with mobility challenges. These caregivers will also be available to provide supplemental support including prescription pick-ups, meal preparation, and other services as needed.

Movimiento para el Alcance de Vida Independiente

Hato Rey, PR 00928-5277

$30,000 – Disaster Preparedness

Emergency Preparedness for People with Disabilities

This High Impact Priority grant will offer an extensive training program and educational tool specifically designed for the safe and effective handling of people living with paralysis and other disabilities in the mitigation, preparedness, response and recovery efforts before, during and after a disaster or emergency. Workshops will be offered to organizations servicing people with disabilities and general public; one thousand (1,000) individuals with paralysis, mobility issues and disabilities in general, caregivers and members of their families on the effective way to prepare themselves for a disaster or emergency with an educational manual to be provided with the training. A capacity building program will be offered to fifty public and private agencies, community leaders, shelter administrators, elderly homes, organizations and volunteers related to the first response efforts. An average of 500 participants will be educated during these trainings. A “Train the Trainer” Program will be included in order to ensure a cross sector partnership approach that will provide a multiplying effect in the reach to additional areas of Puerto Rico.

Norton Healthcare Foundation

Louisville, KY 40202-1902

$30,000 – Transportation

Norton Healthcare Adapted Driving Education Program

This High Impact Priority grant will offer people living with a neurological condition an adaptive driving program consisting of driving assessments and behind the wheel training to increase each person’s ability to drive safely on the road. Depending on the type of adaptive equipment needed, the person will spend 3-30 hours of specialized training. The goal is to assist up to 18 people per month with driving assessments and behind the wheel training for approximately 216 people participating in the adapted driving program in its first year.

Progressive Workshop of Armstrong County

Kittanning, PA 16201-1311

$30,000 – Transportation

Employment Readiness and Skills Building

This High Impact Priority grant supports the Adult Achievement Center, an adult training program that serves individuals who are interested in being active members of their community and supports adults as they seek to increase their independence in social opportunities and community involvement. Funds will secure a wheelchair accessible van to transport individuals living with paralysis and those who use a wheelchair to and from the Center.

Rehabilitation Hospital Of The Pacific (REHAB) Foundation

Honolulu, HI 96817-2421

$30,000 – Transportation

Transportation Access for Individuals Living with Paralysis and their Caregivers

This High Impact Priority grant will enable REHAB to complete funding toward the purchase of a retrofitted 2020 Toyota Sienna L5 mobility van for its main facility located in Honolulu, Hawaii that will serve the transportation needs of up to 1,320 patients living with paralysis. REHAB will also assist in effecting a smooth transition from the hospital to the home by carefully and purposefully preparing caregivers and doing site inspection visits, training patients and caregivers in a variety of mobility issues.

The Whole Person (CIL)

Kansas City, MO 64111-1913

$40,000 – Nursing Home Transition

Quality of Life Transitions for People Living with Paralysis

This High Impact Priority grant will allow TWP staff to serve Kansas consumers with paralysis as well as Missouri consumers, whether or not they would qualify for Missouri’s federal demonstration grant Money Follows the Person (MFP) program, while providing more flexible, individualized support as they transition from nursing home environments back into their homes or a community-based setting of their choice.

University of Nebraska Foundation

Lincoln, NE 68198

$30,000 – Transportation

Munroe-Meyer Institute Recreation Therapy

This High Impact Priority grant will support a portion of the purchase price for a new, accessible van to povide safe and reliable transportation for people living with paralysis and other cross disabilities to offsite recreational and social activities. Research shows that an increasing number of young adults with intellectual, physical and developmental disabilities suffer from social isolation and depression after graduation. Their evenings are frequently spent alone in their rooms and the confines of family or group homes. Activities such as sporting events, movies, theater productions, outdoor adventures, bowling and participation in a wide variety of clubs that the Institute co-sponsors with Omaha Public Schools and other community organizations — enriches their social lives. This, in turn, elevates their self-concept and reduces isolation and depression.

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2019 1st Cycle High Impact Priority Quality of Life Grants

7 Grants Totaling $232,266

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PRRC0002-01-01)

Ability360

Phoenix, AZ 85034

$40,000 – Nursing Home Transition

Transition from Nursing Home to Community Living

This High Impact Priority Quality of Life grant supports a program that assists nursing home residents’ transition back into their communities by introducing them to Independent Living Philosophy and developing independent living plans that include Independent Living Skills Instruction and resource development in housing, transportation, education, social/recreational activities, self-advocacy skills and family. Grant funds will support the costs of four people living with paralysis transition into independent living.

Amyotrophic Lateral Sclerosis Association – Arizona Chapter

Phoenix, AZ 84004

$30,000 - Transportation

ALS Clinic and Program Transportation

This High Impact Priority Quality of Life grant supports wheelchair accessible transportation for individuals living with ALS. The ALS Arizona Chapter holds 19 multidisciplinary clinics each month, at which patients see a neurologist, respiratory therapist, dietician, social worker, occupational therapist, and physical therapist. Support will enable ALS Arizona to meet the increasing demand for accessible transportation, which averages $300 per round-trip for local distance and can run up to $800 for those living in rural Arizona. Approximately 200 individuals with ALS, their family members, and caregivers will benefit from this transportation service.

Amyotrophic Lateral Sclerosis Association – Pennsylvania (Greater Philadelphia) Chapter

Ambler, PA 19002

$30,000 – Respite/Caregiving

Howard I. Abrams In-Home Care Program of the Patient Care Services Program

This High Impact Priority Quality of Life grant supports a program that offers respite to family members and caregivers of individuals living with ALS by providing up to 12 hours a week of custodial care. The Greater Philadelphia ALS Chapter serves over 1,100 people yearly and covers a broad service area that encompasses eastern and central Pennsylvania, central and southern New Jersey, and all of Delaware. Grant funds will support 1,500 hours of custodial care, improving the quality of life of 250 individuals.

New Horizons, Inc.

Unionville, CT 06085

$30,000 - Transportation

New Horizons – Accessible Transportation to Medical Appointments

This High Impact Priority Quality of Life grant supports a program that supports wheelchair accessible transportation. Programming will expand to include non-emergency medical transportation to New Horizons’ 101 residents as well as disabled community members. Grant funds will support the expansion of the current transportation fleet, increasing the number of accessible vans from 6 to 7. Funding represents 81% of the wheelchair accessible van cost at $37,048.

Rancho Research Institute / Rancho Los Amigos National Rehabilitation Center

Downey, CA 90242

$48,742 - Employment

Rancho Works Café and Gift Shop: Changing the Image of Disability to Ability, One Job at a Time

This High Impact Priority Quality of Life grant supports an employment program that helps participants with paralysis sharpen their work skills and increase their confidence before transitioning to competitive employment. Grant funds will support the salaries and training of seven program participants, allowing the program to expand from five participants to nine during 2019.

Services for Independent Living

Cleveland, OH 44132

$28,524 – Disaster Response

The ABC’s of Disaster Preparedness for Persons with Disabilities

This High Impact Priority Quality of Life grant supports a program that will provide trainings to individuals with paralysis and social services professionals on how to plan for an emergency, including the development of a personal emergency plan. Trainings will cover emergency response from assembling go-bags, to the basic supplies that should be on hand, developing community resources, natural supports, shelters and identifying communication mechanisms. Over 340 people across the Cuyahoga, Lake and Geauga, Ohio counties will be affected by these trainings.

The Spina Bifida Association of Central Florida

Orlando, FL 32801

$25,000 - Transportation

Adaptive Driving Program

This High Impact Priority Quality of Life grant supports an adaptive driving program for young adults living with Spina Bifida. Grant funds will subsidize the initial assessment of 40 drivers, as well as orientation classes taught by SBACF staff that will provide program participants with program information and resources for vehicle modification. Funding represents 100% of the overall project cost. Approximately 150 people with Spina Bifida, their family members, and caregivers will be served by this grant.

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2018 1st Cycle High Impact Priority Quality of Life Grants

18 Grants Totaling $679,922

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PR3002)

Abilitree
Bend, OR 97702
$50,000 – Employment
Rural Job Development for People with Disabilities
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the expansion of job development services for people with disabilities to areas of rural Central Oregon.

Access to Independence of San Diego, Inc.
San Diego, CA 92108
$40,000 – Nursing Home Transition
Oahu Ho'olilo Project
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the replication of their successful transition program in their Hawaii branch. People living with paralysis who reside in skilled nursing facilites, rehabilitation hospitals and acute-care hospitals will be assisted in transitioning to community-based living.

Amyotrophic Lateral Sclerosis Association - NV (Nevada Chapter)
Las Vegas, NV 89120
$30,000 – Transportation
pALS Transportation Program
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will allow this organization to provide wheelchair accessible transportation on demand to ALS patients to visit various ALSA health and social services clinics.

Bay Area Center for Independent Living, Inc.
Salisbury, MD 21804
$50,000 – Employment
Paralysis to Placement
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will help those living with paralysis to find gainful employment thus increasing the sustainability of their community-based living.

Burke Rehabilitation Hospital
White Plains, NY 10605
$30,000 – Respite/Caregiving
Launching a First-of-its-Kind Caregiver Center at Burke Rehabilitation Center
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support Burke's new caregiver center which will provide support, education and programs to help alleviate stress and to plan for and improve a patient's recovery.

Caregivers Workforce Development Institute
Placitas, NM 87043
$30,000 – Respite/Caregiving
Caregiver Leadership and Coping Skills
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support workshops and skills training for caregivers of people with paralysis leading to better care for people living with paralysis.

Center for People With Disabilities
Boulder, CO 80301
$40,000 – Nursing Home Transitions
Nursing Home Transitions
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support expansion of a Transitions Program to increase the number of people living with paralysis who transition from living in facilities to living in their own homes or communities.

Craig Hospital Foundation
Englewood, CO 80113
$50,000 – Employment
Community Reintegration for Individuals Living with SCI and TBI at Craig Hospital
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the Community Reintegration program which provides career exploration, job coaching, adaptive technology and employer education in order to make the transition back into employment as smooth as possible for people living with paralysis.

Disability Connection
Gulfport. MS 39501
$50,000 – Employment
Employment Connection
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support individuals living with paralysis to prepare for and find employment by providing an online employment resource center.

Easter Seals Rehabilitation Center
Evansville, IN 47714
$30,000 – Transportation
Transportation independence through driver's training for individuals living with disabilities
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the modification of a van to enable driver training to virtualy all types of wheelchair users thus giving them independence.

Easy Does It Emergency Services
Berkeley, CA 94703
$30,000 – Disaster Response
Disaster Preparedness Program for People with Disabilities
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the development of a robust disaster preparedness program for people living with disabilities and their caregivers. It will enable home visits to assess the home, offer preparation assistance, education in creating an emergency kit and tips on earthquake-proofing the interiors of their home.

Independence Place
Lexington, KY 40503
$50,000 – Employment
Inclusion & Employment First
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will provide supported employment and peer support to individuals who seek employment including information and referral to the office of vocational rehabilitation, pre-employment transition services, employment training, employer support training, and long term planning.

IndependenceFirst
Milwaukee, WI 53204
$40,000 – Nursing Home Transition
IndependenceFirst Nursing Home Transition Initiative
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support their initiative to assist individuals with disabilities to leave institutions and live independently in the community. This is supported with education about choices for community based living, teaching decision-making skills and self-advocacy, teaching independent living skills, and helping in identifying community resources.

Main Line Health/ Bryn Mawr Rehab Hospital
Malvern, PA 19355
$30,000 – Transportation
Driver Rehab Program: The Road to Independence
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the purchase of adaptive equipment to enable people with paralysis to learn how to drive and increase their independence and transportation options.

Muscular Dystrophy Association - National Headquarters
Chicago, IL 60606
$30,000 – Disaster Response
MDA Emergency Response Program
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support a Disaster Response program which will include a disaster preparedness toolkit, enhanced technology to be able to text those in disaster-hit areas, and ensure the ability to call all MDA families in event of disaster.

TBI Warrior Foundation
Boerne, TX 78006
$29,922 – Respite/Caregiving
Caregiving Skills Toolbox: Successful Caregiving of Veterans, Adults and Children with Paralysis
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the provision of education and skills training to family caregivers of individuals with paralysis. This will enhance caregvier skills and also bring caregivers of people with paralysis together for mutual support.

The World Institute on Disability
Berkeley, CA 94703
$30,000 – Disaster Response
Disability and Disaster Readiness: National Policy and Education Initiative
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the creation of a comprehensive set of materials and trainings on disaster response preparation for individuals living with paralysis.

Paths to Independent Transitional Living (TRPIL)
Washington, PA 15301
$40,000 – Nursing Home Transition
TRPIL's Increased Initiative for Nursing Home Transition

This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the services and equipment needed to enable the transition of people living with paralysis from facilities to community-based living.

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This project was supported, in part, by grant number 90PRRC0002, from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.