2021 Priority Impact Quality of Life Grants

17 Grants totaling $499,700

ALS Association Greater Philadelphia Chapter

Ambler, PA 19002-2755

$30,000 – Tier 2 - Respite / Caregiving

Howard I. Abrams In-Home Care Program

This Priority Impact grant supports an in-home custodial care respite program for caregivers of people living with Amyotrophic Lateral Sclerosis (ALS). Custodial care is not covered by Medicare or other private insurance plans. Through the provision of custodial care by home health aides for up to 9 hours per week at no cost to patient families, The Howard I. Abrams In-Home Care Program fulfills two significant needs simultaneously: it allows patients to remain in their own home and be an important part of their family’s lives, while giving family caregivers a much-needed break. Grant funds will provide approximately 1,200 hours for caregivers in need and will provide respite for 21 families in the Abrams Program.

Assistive Technology of Alaska (ATLA)

Anchorage, AK 99503-3505

$30,000 – Tier 2 - Assistive Technology

Mobility Assistive Tech for Independence (MATI)

This Priority Impact grant supports the development of a new state-of-the-art smart home demonstration room within the ATLA Anchorage resource center. This demonstration room will simulate both physical accessibility and technology options. Staff will provide demonstrations on-site and virtually with devices in the categories of computer access, mobility, and environmental adaptations for short-term loans and provide outreach activities to increase awareness of the benefits of home and community-based technology for individuals with paralysis. The MATI Project will also provide participants access through various methods such as speech, switch, and head control. This project will give individuals with paralysis, their caregivers, and providers a better understanding of how home and community-based AT may increase their independence and enhance their quality of life. Funds will provide demonstrations and short-term loans to 50 people living with paralysis and their families.

Community Vision, Inc. (CVI)

Portland, OR 97214-5426

$25,000 – Tier 2 - Assistive Technology

Smart Home AT Demonstration Room & Pilot

This Priority Impact grant supports a Smart Home AT Demonstration Room, loan closet, and pilot Smart Home AT consultations. In addition to in-person opportunities, a video tour of the Demonstration Room will be created and posted on CVI’s website, social media, YouTube, and shared across its networks, which include regional and national disability-related organizations, City of Portland agencies, and State agencies. This project will serve an estimated 70 people living with paralysis and their families.

disABILITYsa

San Antonio, TX 78201-2859

$30,000 – Tier 2 - Assistive Technology

Mobile Change Unit Project

This Priority Impact grant addresses multiple barriers to participation in community experiences due to a lack of fully accessible toileting facilities in most public facilities and outdoor venues. The Mobile Changing Unit (MCU) program will feature a 20ft trailer with fully-accessible toileting facilities to meet the needs of those living with paralysis and with ambulatory disabilities. The mobile facilities will include a power hoist/hoyer lift for safe transfers, a height-adjustable universal changing table, a handheld showerhead, and ADA toilet, handlebars, and sink. The MCU will be available at events and community gatherings throughout the San Antonio area. The MCU webpage and educational marketing materials distributed at all MCU deployments will help advance public understanding around barriers that unintentionally impede the inclusion of children and adults with disabilities in community gatherings and experiences. MCU demonstrations will occur at trade shows and community resource fairs to promote the collective use of the MCU and build upon a database of public and private institutions working to ensure diversity, equity, inclusion and access (DEIA) at their events. Funding will serve hundreds of people living with paralysis in the San Antonio region.

Easter Seals Southern California, Inc. (ESSC)

Irvine, CA 92614-5554

$25,000 – Tier 2 - Assistive Technology

Technology Inclusion Project for Maximum Engagement in Remote Adult Day Services

This Priority Impact grant supports ESSC’s Technology Inclusion Project to meet the need for increased and enhanced engagement of 300 adults living with paralysis in Easterseals Southern California’s new Virtual Campus, a digital resource for Adult Day Services participants to learn, connect and access information and instructional content, safely and remotely. While participants and ESSC staff may not be in the same physical location, they can “attend” classes and enjoy activities by accessing online resources across a variety of subjects, including, but not limited to: meditation, fitness, dance, nutrition, yoga, job skills, computer skills, art, music, writing, games and wellness. Virtual Campus resources are designed to work from anywhere, on any device.

Easterseals Delaware & Maryland's Eastern Shore, Inc. (EDMES)

New Castle, DE 19720-2405

$30,000 – Tier 2 - Assistive Technology

Creating Virtual Access to Easterseals Resource & Technology Demonstration Center

This Priority Impact grant creates virtual access and provides virtual tours for people living with paralysis, their families and caregivers of EDMES’s Resource & Technology Demonstration Center (Resource Center). Funds will be used to improve and increase the Resource Center’s equipment and smart home technology inventory, as well as set up and install the new devices for demonstrations.Types of equipment purchased will include voice activated home assistants, electronic door openers, light switches and devices to control them, such as tablets or iPads. Other assistive items such as anti-scald devices, motion activated lighting and transfer devices will also be included. Funding will serve over 30 individuals living with paralysis and their families through short-term loans, AT assistance and virtual Resource Center tours.

Integrative Touch for Kids (ITK)

Tucson, AZ 85704-3884

$30,000 – Tier 2 - COVID-19: Addressing Social Isolation

Integrative Touch for Kids TeleHealth Program

This Priority Impact grant supports a “Whole Child, Whole Family, Whole Community” TeleHealth program and wellness model. The TeleFriend Program pairs an adult and a young person (a “Buddy Team”) to be friends with a child living with paralysis who is hospitalized or isolated at home. The Buddy Team talks, plays games, read stories, shares wellness tools, and provides connection with peers to create social connections and build friendships. The TeleWellness Program provides wellness skills for managing stress, pain, and anxiety for children living with paralysis and their families. One hundred seventy-five children living with paralysis will be served.

Jefferson Health Foundation - New Jersey

Voorhees, NJ 08043-4405

$30,000 – Tier 2 - COVID-19: Addressing Social Isolation

Maressa Center for MS Wellness

This Priority Impact grant supports a virtual wellness program that focuses on promoting physical, emotional, and spiritual wellness while providing an opportunity for social interaction. Classes, workshops and sessions include Tai Chi, chair yoga, meditation, group therapy, cooking demonstrations, painting, drawing and sculpting classes, and lectures on topics including medical cannabis, MS memory research, and the COVID-19 vaccine. A minimum of 50 people living with paralysis will benefit from this program.

LiveLikeLou Foundation

Oxford, OH 45056-1801

$30,000 – Tier 2 - Respite / Caregiving

The Great LiveLikeLou Outdoor Clean Up Program for ALS Families

This Priority Impact grant supports a unique program that fills a critical gap in compassionate care for families facing the ALS journey by matching volunteers from the Phi Delta Theta Fraternity to families living with this devastating disease. Volunteers provide COVID-friendly, occasional, and outdoor arms-and-legs support for registered ALS families living with paralysis. Snow-shoveling, yard clean-up, garage clean-out, holiday light hanging, errands, and light repairs, bring dignity, relief, and community, to these families and builds the next generation of advocates through service. Funds aim to provide services to 350 people.

Mounting Horizons Inc.

Cypress, TX 77539-5597

$50,000 – Tier 4 - Employment

Finding Your Path

This Priority Impact grant assists individuals living with paralysis with finding and identifying their career path through virtual career exploration modules, work readiness training, work internships/job shadowing, post-secondary counseling, and self-advocacy training. The project focuses on career development, employment preparation, transportation training, independence, and community integration, as well as building motivation and self-esteem. Participants will receive resume assistance, interview training, job placement, and workplace skills training. The Finding Your Path project aims to help 50 individuals living with paralysis achieve independence by finding a career path that relates to their interests and skills as they become self-advocates and integrate into competitive employment.

PennCares

Hanover, PA 17331

$21,370 – Tier 2 - COVID-19: Addressing Social Isolation

Isolation - Managing Adjustments after the Pandemic-Webinar Series

This Priority Impact grant provides10 webinar trainings to address social isolation for people living with paralysis. Trainings include: The New Age of Anxiety and Depression: Navigating Consumers through Stress During Chaotic Times; Coping with Change and Loss-Regaining Normalcy from the Impacts of COVID-19; Isolation in Older Adults: Managing Adjustments after the Losses of the Pandemic; Healthy Thoughts in Older Adulthood: Recognizing and Treating Anxiety and Depression; as well as Care for the Caregiver: Using Selfcare to Combat Compassion Fatigue-Participants and others. In addition, loneliness and isolation guide booklets and resources such as tips for staying connected will be distributed to the webinar participants. It is estimated that over 350 individuals will be served through these webinars.

Ryan House

Phoenix, AZ 85013-4500

$30,000 – Tier 2 - Respite / Caregiving

Sponsor-a-Stay Program

This Priority Impact grant provides short-term overnight respite care stays for children living with paralysis and life-limiting conditions that help their families take a break from the stress of 24/7 home care. The children with paralysis who participate in respite care at Ryan House include: C1-C4 Spinal Cord Injury, cerebral palsy (including Spastic Hemiplegic and Spastic Quadriplegic), Congenital Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, and others. Thirty children will benefit from this respite program as will countless family members.

Spina Bifida Resource Network (SBRN)

Flemington, NJ 08822

$21,200 – Tier 2 - COVID-19: Addressing Social Isolation

Virtual Empowerment Speaker Series (VES)

This Priority Impact grant expands SBRN’s national Virtual Empowerment Speaker Series (VES) which provides adults with paralysis and other disabilities an interactive space for peer and expert-led discussion, education and skill building. The program is also intended to minimize social isolation, which has increased during the COVID-19 pandemic. VES is designed to optimize physical, social and emotional health and wellbeing and is coordinated by adults with paralysis and nearly all presenters and workshop leaders identify as having a disability. Disabled Black, Indigenous People of Color (BIPOC ) and/or people who identify as LGBTQIA+ are given priority consideration for all of the roles. Funds will serve 200 people living with paralysis.

Summit Independent Living (SIL)

Missoula, MT 59803-1489

$29,232 – Tier 2 - COVID-19: Addressing Social Isolation

Promoting Fun and Friendship in the Time of COVID-19

This Priority Impact grant addresses the scourge of social isolation and loneliness during a time when COVID-19 is worsening in SIL’s seven-county western Montana service area. The project will 1) specifically provide outreach to recruit individuals with paralysis, their families, and caregivers including veterans; underserved groups including ethnic minorities and indigenous people, including members of the Confederated Salish and Kootenai Tribes of the Flathead Indian Reservation; the LGBTQ community; low income and homeless people; adults and the elderly; rural communities; and newly injured people with paralysis; and 2) provide virtual services and activities including an Audio Book Club, Adaptive Yoga, CHEW Cooking Classes, Friendship Club, and Role-Playing Game Days. A loan closet of Kindle Fire tablets with Wi-Fi hotspots would be available for checkout by individuals who do not have a computer, tablet, or smartphone to participate on Zoom. A total of 40 individuals living with paralysis are projected to enroll in one or more project activities.

Texas Technology Access Program (TTAP)

Austin, TX 78759-5316

$27,899 – Tier 2 - Assistive Technology

Game On! Developing Accessible Electronic Gaming Options for Texans with Paralysis

This Priority Impact grant expands TTAP’s loan closet to include accessible gaming kits in Xbox and PlayStation platforms, mounting kits for the Xbox adaptive controller, and additional switches/controllers to support people with paralysis in decision making for modified gaming, and will create in-the-box and video training materials to support consumers in setting up the accessible gaming kits. Additionally, TTAP intends to demonstrate the kits at information awareness events such as the two Abilities Expos that occur in Texas annually and to engage with Comicpalooza (a large-scale popular culture con in Houston) and the well-known SXSW Conference (a tech conference in Austin) to expose the general technology population, consumers and vendors to accessible gaming. TTAP expects 20 people living with paralysis to be served through the program, up to 30 people served through the loan closet and countless others at the events.

The Spina Bifida Association of Central Florida

Orlando, FL 32801-1018

$30,000 – Tier 2 - COVID-19: Addressing Social Isolation

Peer Mentoring and Networking

This Priority Impact grant establishes a peer mentoring and networking program to address social isolation in teens and adults and the need for social connection and aid in physical and mental health support of people living with paralysis. A whole-person approach that focuses on physical, social, emotional, and intellectual wellness will be utilized. The program will include a two-part approach 1) Virtual Peer Mentoring and 2) In-Person Group Activities and Recreation. Approximately 180 individuals will be served.

Utah Assistive Technology Program

Logan, UT 84322-6855

$29,999 – Tier 2 - Assistive Technology

Tremor assistive technology demonstration and loan library

This Priority Impact supports a loan closet that will benefit people with paralysis who are experiencing tremors by providing demonstrations to agencies, families and individuals and loaning out devices that will increase their independence, inclusion and quality of life. Equipment will include tremor devices, weighted eating utensils, computer aids, writing devices, etc. One hundred people living with paralysis will be served through the program.

​2020 2nd Cycle High Impact Priority Quality of Life Grants

14 Grants totaling $477,644

Able South Carolina (CIL)

Columbia, SC 29210

$50,000 - Employment

Paving the Path for Workforce Inclusion

This High Impact Priority grant supports employment services and supports, including individualized services, peer support groups, and referral to other supports, to individuals living with paralysis in Richland and Greenville Counties in South Carolina.

ALS Association Golden West Chapter

Agoura Hills, CA 91376

$30,000 - Respite/Caregiving

ALS Respite Care: Improving Quality of Life and Caring for the Caregiver

This High Impact Priority grant provides respite care for 40 families who live with the challenges of ALS every day in 31 counties in California and the state of Hawaii.

Center for People With Disabilities

Boulder, CO 80301

Nursing Home Transitions for People with Paralysis

This High Impact Priority Grant supports a program that assists people living with paralysis in accessing appropriate housing and transitioning into their own homes.

EOD Warrior Foundation

Niceville, FL 32578

$15,000 - Respite/Caregiving

Volunteer Supported Non-Medical Respite & Socialization Program

This High Impact Priority grant supports the development of a volunteer training program to assist and increase socialization of paralyzed, mobility challenged, and wounded veterans and provide non-medial respite care for their families. In 2021, the Foundation hopes to train 100 volunteers, assisting 50-100 families.

George Mark Children's House

San Leandro, CA 94578

$27,655 - Respite/Caregiving

Psychosocial Services for Respite Clients with Paralysis

This High Impact Priority grant provides respite care for parents of 50-60 children with paralysis with complex physical and medical needs and 175 family members. Families are ethnically and linguistically diverse, reflecting the demographics of the San Francisco Bay Area, and over half are low to very low income.

Handi-Wheels Transportation

Fargo, ND 58102

$30,000 - Transportation

Handi-Wheels Transportation Wheelchair Accessible Van

This High Impact Priority grant supports a wheelchair accessible van to provide crucial transportation service to people living with paralysis to access medical care and participate in other activities so vital to people's overall well-being and self-sufficiency.

Hope Network

Grand Rapids, MI 49546

$50,000 - Employment

Hope Network’s Vocational Services Return to Work Program for Individuals with Spinal Cord Injuries

This High Impact Priority grant supports the Hope Network Return to Work program which focuses on creating competitive employment opportunities. This involves a thorough assessment of the person's strengths, barriers, and interests; resume development; individualized job search; employer development; interview coaching; job matching; benefit counseling; identification of various challenges; and follow-up for a year to resolve any issues that arise. The program also includes evaluation services, situational assessments, and rehabilitation counseling. Hope Network will also launch an SCI Return to Work Advisory Panel consisting of a project coordinator, at least one individual with a SCI, several local employers, and at least one rehabilitation clinician.

IndependenceFirst (CIL)

Milwaukee, WI 53204

$40,000 - Nursing Home Transition

Developing a Virtual Transition Program for Sustainable Community Living

This High Impact Priority grant supports IndependenceFirst to develop and implement a virtual transition approach and increase coordination of support resources to empower independent living for individuals living with paralysis. Program participants will have the choice to utilize Independence First’s Independent Living Skills training, access to a Benefits Specialist, Assistive Technology Specialist, Personal Attendant Services, Peer Support through virtual support groups, and access to a low-interest loan for assistive technology.

On My Own, Inc

Nevada, MO 64772

$50,000 - Employment

On My Own, INC Supported Employment Program

This High Impact Priority grant supports a new employment program with integrated supported employment services to help people living with paralysis and other cross-disabilities to obtain and maintain competitive employment, build a career, and become a valued member of the workforce. Integrated employment services are provided in a community setting. Ongoing supports may be included as an integrated employment service if they are needed for the individual to maintain their job. The individual's preferences, interests, and capacities drive the choice of the job and career.

RAMP - Regional Access & Mobilization Project (CIL)

Rockford, IL 61107

$24,989 - Employment

RAMP Employment Services

This High Impact Priority grant provides employment services including resume development, master application development, interview skills training, career exploration, soft/Essential skills training, transportation training, job seeking skills training, job shadow/volunteer opportunities, job placement, job retention services, and benefit planning assistance/referral to people living with paralysis.

Resource Center for Independent Living, Inc. (CIL)

Utica, NY 13501

Preparing for an Emergency: Ensuring Central New Yorkers With Paralysis Are Ready for Anything

This High Impact Priority grant supports the creation of an emergency preparedness online resource center and working group that will help members of the community living with paralysis and their caregivers plan and prepare for disasters. The online resource center will be a repository of information targeted toward individuals with paralysis and the emergencies most likely to occur in the Mohawk Valley region of New York.

Special Kids Special Families

Colorado Springs, CO 80916

$30,000 - Respite/Caregiving

Circle of Support Respite Program

This High Impact Priority grant supports a program to address the respite care needs of adults living with paralysis and other developmental and behavioral needs with in-home respite care designed to improve the wellbeing of clients and caregivers. This respite care will decrease the isolation that is a perpetual issue for individuals with mobility limitations and those at high medical risk; a problem that has been greatly exacerbated by the pandemic. Respite will also relieve caregivers, allowing them to engage in self-care that is often challenging when caring for someone who requires high levels of assistance with daily living.

The ALS Association of Georgia

Atlanta, GA 30328

$30,000 - Transportation

The Paul B. Williams ALS Transportation Program of The ALS Association of Georgia

This High Impact Priority grant supports a program to address the transportation needs of individuals who have been diagnosed with ALS providing them access to quality care and the ability to attend family, cultural and spiritual events that positively impact the quality of life.

The ALS Association, Minnesota, North Dakota, South Dakota Chapter

St. Paul, MN 3596

$30,000 - Respite/Caregiving

The Jack Norton Family Respite Program

This High Impact Priority grant supports the Jack Norton Family Respite Program to provide rest and relief to dedicated caregivers of people living with ALS. The Respite Program is a vital support to the caregiver dynamic and directly affects the quality of life in the home of a person living with ALS. Caregiver burnout can result in physical and emotional strain, which decrease the quality of life of a person living with ALS and increase risks of injury for all people involved in care. This program, the only of its kind serving the ALS population, operates on a year-round basis across a service area, which includes all of Minnesota, North Dakota and South Dakota.

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2019 2nd Cycle High Impact Priority Quality of Life Grants

17 Grants Totaling $520,000

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PRRC0002-01-01)

Amyotrophic Lateral Sclerosis Association - NY (Greater New York Chapter)

New York, NY 10004-3873

$30,000 – Transportation

The Greater New York Patient Transportation Expansion Project

This High Impact Priority grant will support a transportation program that offers rides at no cost to ALS patients traveling to clinic appointments throughout all of NYC, Long Island and Queens, the Hudson Valley, and Northern & Central New Jersey. Due to the fast and ongoing progression of the disease, people with ALS often find it difficult to leave the home and travel, as they require specialized assistance and accessible modes of transport. These services are provided to patients who otherwise would not have the means for safe and dignified transportation.

Barrow Neurological Foundation

Phoenix, AZ 85013-4414

$30,000 – Transportation

Transportation Assistance Fund for the Barrow Neuro-Rehabilitation Center

This High Impact Priority grant will provide reliable transportation to and from outpatient appointments for individuals living with paralysis. Transportation is also provided for community outings and opportunities where patients, as part of their rehabilitative journey can take that first trip to the bank, the grocery store or support group by utilizing the ride share or medical transport company under the safety net of Barrow, before they need to do so on their own.

Center for Independent Living of Broward

Fort Lauderdale, FL 33319-5805

$40,000 – Nursing Home Transition

Nursing Home Transition Program for People with Paralysis

This High Impact Priority grant will expand the Center’s Nursing Home Transition Program to help people with paralysis and other cross-disabilities move from institutional settings to independent living. Funds provide installation of smart technology of up to ten apartments allowing more individuals with spinal cord injury (SCI) to transition to independent living. The Center currently leases several multi-bedroom apartments renovated to accommodate those with limited mobility or who use wheelchairs. Smart Home Technology will ensure the health, welfare and safety of the participant enabling them to function with greater independence and prevent institutionalization.

Children's Hospital of Wisconsin Foundation

Milwaukee, WI 53214-1599

$30,000 – Respite/Caregiving

Children's Hospital of Wisconsin Community-based Volunteer Respite Care Program

This High Impact Priority grant will support a respite care program that proves 8-10 community-based respite events annually. The events are free to families and offered in locations (school, church, or university) throughout the Milwaukee area. Events offer inclusive, age- and developmentally-appropriate activities, including arts and crafts projects, interactive games, sports, bingo, face painting, music, and entertainment. Volunteer nursing staff meets the medical and toileting needs of those attending respite events. Funds will support expansion of program reach to serve more families, including those on wait lists.

Communities Actively Living Independent & Free (CALIF) (CIL)

Los Angeles, CA 90014-3921

$40,000 – Nursing Home Transition

Transition, with Peer Counseling on Waivers & Rescue

This High Impact Priority grant will 1) transition four people living with paralysis from nursing homes and/or skilled nursing facilities, to their own homes through a thoughtful case management process. 2) Provide Independent Living Skills and Peer Counseling to the tranisitioning recipients and ensure the skills they need to efficiently manage and use their network of contacts and resources to keep them progressing after their treatment. 3) Conduct a study on the use of waivers for home care. 4) Ensure inclusion of People with Disabilities, Especially those with Spinal Cord Injuries, in Disaster Preparedness Planning.

Eden I&R

Hayward, CA 94541-5004

$30,000 – Disaster Preparedness

Disaster Preparedness Project

This High Impact Priority grant enables Eden I&R to expand upon free Disaster Preparedness trainings for individuals living with paralysis and their families. During the 12-month grant period, EIR anticipates serving at least 100 people with paralysis and at least 150 family members and caregivers at trainings specifically targeting individuals living with paralysis. Additionally, EIR plans to distribute emergency preparedness materials to 7,500 individuals at events and meetings targeting populations with access and functional needs (AFN). Trainings will be conducted throughout Alameda County, CA and topics will include personal preparedness, agency preparedness, Planned Safety Power Shutoffs, active shooter/workplace violence, and many more.

Headwaters Regional Development Commission

Bemidji, MN 56619-0906

$5,000 – Transportation

Hubbard County Medical Transportation Shuttle

This High Impact Priority grant will support a non-emergency medical shuttle. The service operates twice a week from Park Rapids (pop. 4,000) using a 15-passenger bus which includes accommodations for two wheelchairs. The shuttle will stop at any requested medical facility in Fargo such as the VA Hosptial, Sanford Rehabilitation Hospital, and Sanford Brain & Spine Clinic.

Lifespan Respite Washington, PAVE

Tacoma, WA 98465-1900

$30,000 – Respite/Caregiving

Lifespan Respite Voucher Grant Program

This High Impact Priority grant will provide respite vouchers for unpaid, unserved family caregivers who provide 40 or more hours of direct care, monitoring, and/or supervision. This will benefit caregivers by reducing isolation and increasing positive self-care, normalizing newfound roles and reducing associated stigma. It will help caregivers maintain their own health and wellbeing--a side benefit to the individual who has a disability who might otherwise lose the ability to remain in place in their home settings and gain more access to community supports.

Linking Employment, Abilities and Potential (LEAP) (CIL)

Cleveland, OH 44113-3412

$40,000 – Nursing Home Transition

Welcome Home Transition Services

This High Impact Priority grant will provide nursing home transition services to approximately 35 individuals with neurological conditions living in NorthEast Ohio including but not limited to spinal cord injury, traumatic brain injury, stroke, cerebral palsy, multiple sclerosis, ALS, etc. Services include transition planning and coordination, discharge planning participation, as well as follow-up within first 90 days to evaluate consumer’s adjustment to transition and determine additional needs and supports.

Miracle Flights for Kids

Las Vegas, NV 89119-2120

$30,000 – Transportation

Medical Flight Support

This High Impact Priority grant will support the Medical Flight Program which provides free commercial air transportation to individuals who are battling rare medical disorders and would otherwise lack access to specialized medical care. Funds will be used for about 75 life-saving flights for individuals with paralysis causing conditions and their families.

Mission to Assist and Provide for Seniors (MAPS Charities)

Sherman Oaks, CA 91423-2717

$25,000 – Respite/Caregiving

Transportation and Respite Caregiving Project

This High Impact Priority grant will expand MAPS Charities services by building out a model that combines client transportation with respite care for underserved seniors with paralysis. MAPS will engage professional caregivers through licensed agencies that are equipped to provide transportation for fragile seniors with mobility challenges. These caregivers will also be available to provide supplemental support including prescription pick-ups, meal preparation, and other services as needed.

Movimiento para el Alcance de Vida Independiente

Hato Rey, PR 00928-5277

$30,000 – Disaster Preparedness

Emergency Preparedness for People with Disabilities

This High Impact Priority grant will offer an extensive training program and educational tool specifically designed for the safe and effective handling of people living with paralysis and other disabilities in the mitigation, preparedness, response and recovery efforts before, during and after a disaster or emergency. Workshops will be offered to organizations servicing people with disabilities and general public; one thousand (1,000) individuals with paralysis, mobility issues and disabilities in general, caregivers and members of their families on the effective way to prepare themselves for a disaster or emergency with an educational manual to be provided with the training. A capacity building program will be offered to fifty public and private agencies, community leaders, shelter administrators, elderly homes, organizations and volunteers related to the first response efforts. An average of 500 participants will be educated during these trainings. A “Train the Trainer” Program will be included in order to ensure a cross sector partnership approach that will provide a multiplying effect in the reach to additional areas of Puerto Rico.

Norton Healthcare Foundation

Louisville, KY 40202-1902

$30,000 – Transportation

Norton Healthcare Adapted Driving Education Program

This High Impact Priority grant will offer people living with a neurological condition an adaptive driving program consisting of driving assessments and behind the wheel training to increase each person’s ability to drive safely on the road. Depending on the type of adaptive equipment needed, the person will spend 3-30 hours of specialized training. The goal is to assist up to 18 people per month with driving assessments and behind the wheel training for approximately 216 people participating in the adapted driving program in its first year.

Progressive Workshop of Armstrong County

Kittanning, PA 16201-1311

$30,000 – Transportation

Employment Readiness and Skills Building

This High Impact Priority grant supports the Adult Achievement Center, an adult training program that serves individuals who are interested in being active members of their community and supports adults as they seek to increase their independence in social opportunities and community involvement. Funds will secure a wheelchair accessible van to transport individuals living with paralysis and those who use a wheelchair to and from the Center.

Rehabilitation Hospital Of The Pacific (REHAB) Foundation

Honolulu, HI 96817-2421

$30,000 – Transportation

Transportation Access for Individuals Living with Paralysis and their Caregivers

This High Impact Priority grant will enable REHAB to complete funding toward the purchase of a retrofitted 2020 Toyota Sienna L5 mobility van for its main facility located in Honolulu, Hawaii that will serve the transportation needs of up to 1,320 patients living with paralysis. REHAB will also assist in effecting a smooth transition from the hospital to the home by carefully and purposefully preparing caregivers and doing site inspection visits, training patients and caregivers in a variety of mobility issues.

The Whole Person (CIL)

Kansas City, MO 64111-1913

$40,000 – Nursing Home Transition

Quality of Life Transitions for People Living with Paralysis

This High Impact Priority grant will allow TWP staff to serve Kansas consumers with paralysis as well as Missouri consumers, whether or not they would qualify for Missouri’s federal demonstration grant Money Follows the Person (MFP) program, while providing more flexible, individualized support as they transition from nursing home environments back into their homes or a community-based setting of their choice.

University of Nebraska Foundation

Lincoln, NE 68198

$30,000 – Transportation

Munroe-Meyer Institute Recreation Therapy

This High Impact Priority grant will support a portion of the purchase price for a new, accessible van to povide safe and reliable transportation for people living with paralysis and other cross disabilities to offsite recreational and social activities. Research shows that an increasing number of young adults with intellectual, physical and developmental disabilities suffer from social isolation and depression after graduation. Their evenings are frequently spent alone in their rooms and the confines of family or group homes. Activities such as sporting events, movies, theater productions, outdoor adventures, bowling and participation in a wide variety of clubs that the Institute co-sponsors with Omaha Public Schools and other community organizations — enriches their social lives. This, in turn, elevates their self-concept and reduces isolation and depression.

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2019 1st Cycle High Impact Priority Quality of Life Grants

7 Grants Totaling $232,266

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PRRC0002-01-01)

Ability360

Phoenix, AZ 85034

$40,000 – Nursing Home Transition

Transition from Nursing Home to Community Living

This High Impact Priority Quality of Life grant supports a program that assists nursing home residents’ transition back into their communities by introducing them to Independent Living Philosophy and developing independent living plans that include Independent Living Skills Instruction and resource development in housing, transportation, education, social/recreational activities, self-advocacy skills and family. Grant funds will support the costs of four people living with paralysis transition into independent living.

Amyotrophic Lateral Sclerosis Association – Arizona Chapter

Phoenix, AZ 84004

$30,000 - Transportation

ALS Clinic and Program Transportation

This High Impact Priority Quality of Life grant supports wheelchair accessible transportation for individuals living with ALS. The ALS Arizona Chapter holds 19 multidisciplinary clinics each month, at which patients see a neurologist, respiratory therapist, dietician, social worker, occupational therapist, and physical therapist. Support will enable ALS Arizona to meet the increasing demand for accessible transportation, which averages $300 per round-trip for local distance and can run up to $800 for those living in rural Arizona. Approximately 200 individuals with ALS, their family members, and caregivers will benefit from this transportation service.

Amyotrophic Lateral Sclerosis Association – Pennsylvania (Greater Philadelphia) Chapter

Ambler, PA 19002

$30,000 – Respite/Caregiving

Howard I. Abrams In-Home Care Program of the Patient Care Services Program

This High Impact Priority Quality of Life grant supports a program that offers respite to family members and caregivers of individuals living with ALS by providing up to 12 hours a week of custodial care. The Greater Philadelphia ALS Chapter serves over 1,100 people yearly and covers a broad service area that encompasses eastern and central Pennsylvania, central and southern New Jersey, and all of Delaware. Grant funds will support 1,500 hours of custodial care, improving the quality of life of 250 individuals.

New Horizons, Inc.

Unionville, CT 06085

$30,000 - Transportation

New Horizons – Accessible Transportation to Medical Appointments

This High Impact Priority Quality of Life grant supports a program that supports wheelchair accessible transportation. Programming will expand to include non-emergency medical transportation to New Horizons’ 101 residents as well as disabled community members. Grant funds will support the expansion of the current transportation fleet, increasing the number of accessible vans from 6 to 7. Funding represents 81% of the wheelchair accessible van cost at $37,048.

Rancho Research Institute / Rancho Los Amigos National Rehabilitation Center

Downey, CA 90242

$48,742 - Employment

Rancho Works Café and Gift Shop: Changing the Image of Disability to Ability, One Job at a Time

This High Impact Priority Quality of Life grant supports an employment program that helps participants with paralysis sharpen their work skills and increase their confidence before transitioning to competitive employment. Grant funds will support the salaries and training of seven program participants, allowing the program to expand from five participants to nine during 2019.

Services for Independent Living

Cleveland, OH 44132

$28,524 – Disaster Response

The ABC’s of Disaster Preparedness for Persons with Disabilities

This High Impact Priority Quality of Life grant supports a program that will provide trainings to individuals with paralysis and social services professionals on how to plan for an emergency, including the development of a personal emergency plan. Trainings will cover emergency response from assembling go-bags, to the basic supplies that should be on hand, developing community resources, natural supports, shelters and identifying communication mechanisms. Over 340 people across the Cuyahoga, Lake and Geauga, Ohio counties will be affected by these trainings.

The Spina Bifida Association of Central Florida

Orlando, FL 32801

$25,000 - Transportation

Adaptive Driving Program

This High Impact Priority Quality of Life grant supports an adaptive driving program for young adults living with Spina Bifida. Grant funds will subsidize the initial assessment of 40 drivers, as well as orientation classes taught by SBACF staff that will provide program participants with program information and resources for vehicle modification. Funding represents 100% of the overall project cost. Approximately 150 people with Spina Bifida, their family members, and caregivers will be served by this grant.

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2018 1st Cycle High Impact Priority Quality of Life Grants

18 Grants Totaling $679,922

Grants are funded through a cooperative agreement with the Administration for Community Living (ACL) (Cooperative Agreement Number 90PR3002)

Abilitree
Bend, OR 97702
$50,000 – Employment
Rural Job Development for People with Disabilities
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the expansion of job development services for people with disabilities to areas of rural Central Oregon.

Access to Independence of San Diego, Inc.
San Diego, CA 92108
$40,000 – Nursing Home Transition
Oahu Ho'olilo Project
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the replication of their successful transition program in their Hawaii branch. People living with paralysis who reside in skilled nursing facilites, rehabilitation hospitals and acute-care hospitals will be assisted in transitioning to community-based living.

Amyotrophic Lateral Sclerosis Association - NV (Nevada Chapter)
Las Vegas, NV 89120
$30,000 – Transportation
pALS Transportation Program
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will allow this organization to provide wheelchair accessible transportation on demand to ALS patients to visit various ALSA health and social services clinics.

Bay Area Center for Independent Living, Inc.
Salisbury, MD 21804
$50,000 – Employment
Paralysis to Placement
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will help those living with paralysis to find gainful employment thus increasing the sustainability of their community-based living.

Burke Rehabilitation Hospital
White Plains, NY 10605
$30,000 – Respite/Caregiving
Launching a First-of-its-Kind Caregiver Center at Burke Rehabilitation Center
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support Burke's new caregiver center which will provide support, education and programs to help alleviate stress and to plan for and improve a patient's recovery.

Caregivers Workforce Development Institute
Placitas, NM 87043
$30,000 – Respite/Caregiving
Caregiver Leadership and Coping Skills
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support workshops and skills training for caregivers of people with paralysis leading to better care for people living with paralysis.

Center for People With Disabilities
Boulder, CO 80301
$40,000 – Nursing Home Transitions
Nursing Home Transitions
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support expansion of a Transitions Program to increase the number of people living with paralysis who transition from living in facilities to living in their own homes or communities.

Craig Hospital Foundation
Englewood, CO 80113
$50,000 – Employment
Community Reintegration for Individuals Living with SCI and TBI at Craig Hospital
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the Community Reintegration program which provides career exploration, job coaching, adaptive technology and employer education in order to make the transition back into employment as smooth as possible for people living with paralysis.

Disability Connection
Gulfport. MS 39501
$50,000 – Employment
Employment Connection
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support individuals living with paralysis to prepare for and find employment by providing an online employment resource center.

Easter Seals Rehabilitation Center
Evansville, IN 47714
$30,000 – Transportation
Transportation independence through driver's training for individuals living with disabilities
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the modification of a van to enable driver training to virtualy all types of wheelchair users thus giving them independence.

Easy Does It Emergency Services
Berkeley, CA 94703
$30,000 – Disaster Response
Disaster Preparedness Program for People with Disabilities
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the development of a robust disaster preparedness program for people living with disabilities and their caregivers. It will enable home visits to assess the home, offer preparation assistance, education in creating an emergency kit and tips on earthquake-proofing the interiors of their home.

Independence Place
Lexington, KY 40503
$50,000 – Employment
Inclusion & Employment First
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will provide supported employment and peer support to individuals who seek employment including information and referral to the office of vocational rehabilitation, pre-employment transition services, employment training, employer support training, and long term planning.

IndependenceFirst
Milwaukee, WI 53204
$40,000 – Nursing Home Transition
IndependenceFirst Nursing Home Transition Initiative
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support their initiative to assist individuals with disabilities to leave institutions and live independently in the community. This is supported with education about choices for community based living, teaching decision-making skills and self-advocacy, teaching independent living skills, and helping in identifying community resources.

Main Line Health/ Bryn Mawr Rehab Hospital
Malvern, PA 19355
$30,000 – Transportation
Driver Rehab Program: The Road to Independence
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the purchase of adaptive equipment to enable people with paralysis to learn how to drive and increase their independence and transportation options.

Muscular Dystrophy Association - National Headquarters
Chicago, IL 60606
$30,000 – Disaster Response
MDA Emergency Response Program
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support a Disaster Response program which will include a disaster preparedness toolkit, enhanced technology to be able to text those in disaster-hit areas, and ensure the ability to call all MDA families in event of disaster.

TBI Warrior Foundation
Boerne, TX 78006
$29,922 – Respite/Caregiving
Caregiving Skills Toolbox: Successful Caregiving of Veterans, Adults and Children with Paralysis
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the provision of education and skills training to family caregivers of individuals with paralysis. This will enhance caregvier skills and also bring caregivers of people with paralysis together for mutual support.

The World Institute on Disability
Berkeley, CA 94703
$30,000 – Disaster Response
Disability and Disaster Readiness: National Policy and Education Initiative
This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the creation of a comprehensive set of materials and trainings on disaster response preparation for individuals living with paralysis.

Paths to Independent Transitional Living (TRPIL)
Washington, PA 15301
$40,000 – Nursing Home Transition
TRPIL's Increased Initiative for Nursing Home Transition

This award is a High Impact Priority QOL Grant for the purpose of supporting individuals living with paralysis and their families. This award will support the services and equipment needed to enable the transition of people living with paralysis from facilities to community-based living.

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The National Paralysis Resource Center website is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $8,700,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.