The Christopher & Dana Reeve Foundation respects your privacy. We do not collect personal information from you unless you offer it.
Our intention is to provide an informative tool for those interested in spinal cord injury research, clinical trials and active lifestyle issues related to paralysis, the Reeve Foundation Quality of Life grants, information about Foundation activities, and to allow our supporters to become more involved in our mission.
We recognize that visitors to our site may be concerned about the information they provide to us and how we treat that information.
The Foundation uses “cookies” — codes that allow us to recognize your computer when you visit our website. We collect and store only anonymous information about your computer and mode of Internet access, including the name of the domain from which you access the Internet, the date and time you access our site, how long you stayed on our site, and the Internet address that brought you to our site.
We track this information to improve the usefulness, value, and navigation of our website.
The Reeve Foundation takes very seriously the protection of sensitive materials regarding online donations.
We work with vendors to secure transactions according to industry standards using generally agreed upon methods of encryption and encoding. Personal information is stored in a database with reasonable protections in place against privacy breaches using multiple “firewalls.”
Any vendors affiliated with the Foundation are held to industry-standard practices including, without limitation, confidentiality.
The Foundation collects personal information when you register with us to make a donation or become a member of the website. We may ask for information such as your name, address, phone number, fax number, and email address.
We reserve the right to email you for fundraising efforts unless you expressly request not to be emailed. Our emails are never sent unsolicited. Unsubscribe information can be found at the bottom of every email sent.
Personal information is stored in a database with reasonable protections in place against privacy breaches using multiple “firewalls.” Any vendors affiliated with the Foundation are held to industry-standard practices including, without limitation, confidentiality.
Any information collected by the Reeve Foundation Paralysis Resource Center is also covered by this policy.
The Foundation provides a separate online form to join our mailing list. The information we collect includes: name, address, e-mail address, and phone number. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year, either via e-mail or regular mail.
Please contact us via e-mail to [email protected] or call 800-225-0292 if you would like to correct or change the personal information you have previously provided.
To protect your privacy and security, we will take certain steps to verify your identity before granting access to your information or making corrections. Callers will be asked specific questions, including full name, address, and phone number in order to verify their identity and protect the privacy of the Foundation’s donors and members of its mailing list.
If you no longer wish to receive emails from us, please use the unsubscribe link on our emails or let us know by sending your request via e-mail to [email protected]
If you do not want to receive postal mail from us call (800-225-0292) or write the Foundation at the address below:
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
The Foundation will never rent, trade or sell your email address. However, with your permission by checking the appropriate third party opt-in box, we may on occasion share your name, email and postal address with other organizations.
If you would prefer that your name, email, and postal address not be shared with other organizations, simply call (800-225-0292) or write the Foundation at the address below:
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
National Paralysis Resource Center
The National Paralysis Resource Center website is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $9,447,037 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.
Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.
Personally identifiable information collected by the National Paralysis Resource Center (NPRC) may be shared with third parties, such as the ACL.
Because NPRC is administered by the Reeve Foundation, and receives funding and other services from parties, we – by necessity – must share information with our partners. If you do not wish for PRC to share your information, you may opt out of the sharing, but this might mean that you are unable to take advantage of services on our website.
Companies with whom we do share your information are prohibited from using that information for any purpose other than for a limited stated purpose. If you wish to opt-out of the NPRC sharing your information please email [email protected]
The opinions expressed in our blogs are the author’s own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.
Links to Other Websites
The information contained on this website is presented for the purpose of educating people about paralysis. Nothing contained on this website should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider.
Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified healthcare provider before embarking on a new treatment, diet, or fitness program.
You should never disregard medical advice or delay in seeking it because of something you have read on this website.
The Reeve Foundation National Paralysis Resource Center Information Specialists are reachable business weekdays, Monday through Friday, toll-free at 800-539-7309 from 9:00 am to 8:00 pm Eastern U.S. Time. International callers use 973-467-8270. You may also schedule a call or send a message online.
Your Data Rights, As Expressed by GDPR
All individuals have rights regarding data that is identified or connected to their identity (“Personal Data”). The European Union’s (EU) General Data Protection Regulations (GDPR) describes these rights in law, but Christopher & Dana Reeve Foundation believes they apply to all individuals. They include:
- You have the right to clear and transparent communication about your Personal Data. We want to make this policy as clear as possible and provide a friendlier version to help you understand it.
- You have the right to request a copy of your Personal Data in a common digital format. To request this information, please email [email protected]
- You have the right to edit or correct any Personal Data. You can edit most of your information on the site. If you need help with this, email [email protected]
- You have the right to request that your Personal Data be deleted. To do this, contact our email [email protected]
- You have the right to be notified of any breach involving your Personal Data. We will notify the appropriate data protection authority within 72 hours of detecting a breach involving your data. We will notify you as soon as possible after that.
- You have the right to object to the processing of your data. You may decline any consent request to share Personal Data with a Partner and this will have no impact on your use of the service. For clarity, we may still share with our Partners data regarding you that does not identify you and is not connected with you (“De-Identified Data”). You may withdraw consent at any time, though that will not change any processing that has already occurred or research where analysis has started or is completed. You may also request to close your account at any time.
In some cases, these rights might be restricted. Some examples would include where the information requested compromises the privacy of another individual or is the subject of legal proceedings or investigation. Additionally, processing that has already occurred cannot be undone. Further, these rights to edit, delete, be notified of a breach, and object to processing all apply to Personal Data and do not apply to De-Identified Data that, for example, has been shared by us with our Partners and Vendors.